Strategies for Successful Patient Oriented Research [PDF]
Clinical Journal of the American Society of Nephrology, 2006 Writing grants that are subsequently funded is an integral part of the process of patient-oriented research. A catalogue of common deficiencies that are identified in the grant review process can yield valuable insights into the process of grant writing.
Rajiv, Agarwal +2 more
openaire +2 more sources
Deep Learning Pose Estimation for Phenotyping of Co‐Occurring Hyperkinetic Movement Disorders
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective To explore whether routine outpatient video combined with deep learning‐based pose estimation and clinically interpretable kinematic features can support multi‐label phenotyping of co‐occurring hyperkinetic movement disorders (HMDs).
Laura Cif +17 more
wiley +1 more source
So much more than a “pair of brown shoes”: Triumphs of patient and other stakeholder engagement in patient-centered outcomes research [PDF]
, 2015 This piece illustrates the “real world” experiences of patients and other stakeholder partners in research to help inform and inspire future patient-centered outcomes research (PCOR) efforts.
Kratchman, Amy +2 more
core +1 more source
Gravity‐Dependent Modulation of Downbeat Nystagmus: Insights From Velocity‐Storage Dysfunction
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Downbeat nystagmus varies with head position, a phenomenon termed gravity‐dependent modulation. We aimed to clarify its mechanism using a velocity‐storage model. Methods In 10 patients with downbeat nystagmus due to cerebellar disorders, we recorded eye movements at different pitch‐ and roll‐axis head positions.
Ji‐Hyung Park +5 more
wiley +1 more source
Engaging indigenous patient partners in patient-oriented research: lessons from a one-year initiative [PDF]
, 2020 Background Patient-oriented research (POR) is a specific application of participatory research that promotes active patient engagement in health research. There is a growing concern that people involved in POR do not reflect the diversity
Tremblay, Marie-Claude +10 more
core +1 more source
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Progression independent of relapse activity is a major determinant of long‐term disability in multiple sclerosis, but its immunopathologic basis remains incompletely understood. We investigated whether relapse‐independent progression in radiologically stable relapsing–remitting multiple sclerosis is associated with distinct ...
Antonio Bruno +19 more
wiley +1 more source
The person as a focus for research. The contributions of Windelband, Stern, Allport, Lamiell and Magnusson. [PDF]
, 2015 At the end of the 19th century, Wilhelm Windelband proposed a distinction between nomothetic and idiographic re-search, which became highly relevant for the discussion of the nature of psychological science. During the 20th cen-tury, a number of writers (
Lars-Gunnar Lundh +2 more
core +1 more source
White Matter and Perivascular Imaging Changes in Alzheimer's Disease and Cerebral Amyloid Angiopathy
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Peak‐width of skeletonized mean diffusivity (PSMD) and diffusion tensor imaging–analysis along the perivascular space (DTI‐ALPS), reflecting white matter integrity and glymphatic function, are altered in Alzheimer's disease (AD).
Debina Laishram +3 more
wiley +1 more source
Applied Health Services Research as a Framework for Patient-Oriented Research: A Suggested Framework for Health Care Researchers [PDF]
, 2018 Engaging the general population in the research process provides new visions that may lead to innovations and research that are relevant to patients. Many developed countries like Canada are working toward engaging the population in healthcare research ...
Alsrayheen, Enam A. +1 more
core +1 more source
Additional file 1: of Co-building a patient-oriented research curriculum in Canada
, 2019 Overview of Foundations in Patient-Oriented Research and modules.
Lidewij Vat (3848995) +6 more
core +1 more source