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Seeing is Engaging: Vlogs as a Tool for Patient Engagement [PDF]
The Patient - Patient-Centered Outcomes Research, 2017 Video blogs (‘vlogs’ – pronounced as one syllable) are a popular platform for conveying know-how online and can be used as a tool for patient engagement. It can be challenging to engage patients in their own care, and the unique attributes of vlogs overcome some of the barriers to engagement such as high treatment burden and a lack of the sense of ...
Lee, Joy L. +4 more
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Patient Engagement: The Quebec Path
HealthcarePapers, 2016 The issue on "The Patient Experience in Ontario 2020: What is Possible?" taught us how Ontario is trying to shift to a consistent culture of patient engagement at all levels of its healthcare system, from clinical to organizational and political. In this commentary, the authors share some of the avenues that have been taken in Quebec to structure ...
Marie-Pascale, Pomey, Paule, Lebel
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Patient engagement in fertility research: bench research, ethics, and social justice
Research Involvement and Engagement, 2021 Plain English summary Patients are increasingly becoming involved in all stages of the research process. Patient and public involvement has been shown to answer questions that matter to patients, increase enrollment in studies, and improve the spread of ...
Perry R. Fleming +9 more
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European Heart Journal, 2017 Published on behalf of the European Society of Cardiology. All rights reserved. © The Author 2017.
Graham, Ian +5 more
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Health Expectations, 2022 Background Inflammatory bowel diseases (IBDs) are chronic gastrointestinal diseases that negatively affect the enjoyment of food and engagement in social and cultural gatherings.
Jenna Rines +9 more
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F1000Research, 2021 Background: Aortic stenosis (AS) treatments include surgical aortic valve replacement (SAVR) and transcatheter aortic valve replacement (TAVR). Choosing between SAVR and TAVR requires patients to trade-off benefits and risks.
Kevin Marsh +4 more
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Health Expectations, 2023 Introduction Patient engagement in patient‐oriented research (POR) is described as patients collaborating as active and equal research team members (patient research partners [PRPs]) on the health research projects and activities that matter to them. The
Ingrid Nielssen +5 more
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Tokenism in patient engagement [PDF]
Family Practice, 2016 Patient engagement throughout research is a way to generate more relevant patient-important research questions, methods and results with the ultimate aim of facilitating translation of research into practice. Tokenism is defined as the practice of making perfunctory or symbolic efforts to engage communities or patients.We wanted to explore how tokenism
David L, Hahn +5 more
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The Importance of Patient Engagement [PDF]
Genetic Testing and Molecular Biomarkers, 2013 We read with interest Terry's recent editorial, “Don't Just Invite Us to the Table: Authentic Community Engagement” (Terry 2013). Terry makes the key point that there are merits to community engagement in developing policies affecting individuals and their families undergoing clinical exome and genome sequencing that can generate incidental findings ...
Janet K, Williams +4 more
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International Journal of Population Data Science, 2022 The ability of hospitals and health systems to learn from those who use its services (i.e., patients and families) is crucial for quality improvement and the delivery of high-quality patient-centered care.
Kyle Kemp +3 more
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