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Tokenism in patient engagement [PDF]
Family Practice, 2016 Patient engagement throughout research is a way to generate more relevant patient-important research questions, methods and results with the ultimate aim of facilitating translation of research into practice. Tokenism is defined as the practice of making perfunctory or symbolic efforts to engage communities or patients.We wanted to explore how tokenism
David L, Hahn +5 more
openaire +2 more sources
The Importance of Patient Engagement [PDF]
Genetic Testing and Molecular Biomarkers, 2013 We read with interest Terry's recent editorial, “Don't Just Invite Us to the Table: Authentic Community Engagement” (Terry 2013). Terry makes the key point that there are merits to community engagement in developing policies affecting individuals and their families undergoing clinical exome and genome sequencing that can generate incidental findings ...
Janet K, Williams +4 more
openaire +2 more sources
Patient Experience Journal Awards: Celebrating our 2019 Recipients [PDF]
, 2020 In association with The Beryl Institute, Patient Experience Journal introduced the inaugural Patient Experience Journal (PXJ) Awards. The annual awards celebrate important contributions to the literature and articles of impact in research and practice ...
Journal, Patient Experience +1 more
core +1 more source
Motivations, experiences, and aspirations in patient engagement of people living with metastatic cancer [PDF]
, 2021 The objective of this patient-led study was to explore the motivations, experiences, and aspirations of people living with metastatic cancer who volunteer in patient engagement.
Duran, Leslie +4 more
core +1 more source
Seeing is Engaging: Vlogs as a Tool for Patient Engagement [PDF]
The Patient - Patient-Centered Outcomes Research, 2017 Video blogs (‘vlogs’ – pronounced as one syllable) are a popular platform for conveying know-how online and can be used as a tool for patient engagement. It can be challenging to engage patients in their own care, and the unique attributes of vlogs overcome some of the barriers to engagement such as high treatment burden and a lack of the sense of ...
Lee, Joy L. +4 more
openaire +2 more sources
Patient-centric culture and implications for patient engagement during the COVID-19 pandemic [PDF]
, 2020 Some consider patient engagement as the “holy grail” of healthcare because of its potential to revolutionize how we view and address health system problems.
Majid, Umair +3 more
core +1 more source
Experiences of an HCV Patient engagement group: a seven-year journey
Research Involvement and Engagement, 2021 Historically, few publications exist where patient engagement in clinical studies is a driving force in study design and implementation. The Patient Centered Outcomes Research Institute (PCORI), established in 2010, employed a new model of integrating ...
UNC Chapel Hill HCV Patient Engagement Group +7 more
doaj +1 more source
International Journal of Population Data Science, 2022 The ability of hospitals and health systems to learn from those who use its services (i.e., patients and families) is crucial for quality improvement and the delivery of high-quality patient-centered care.
Kyle Kemp +3 more
doaj +1 more source
Identifying sources of patient dissatisfaction when seeking care for a chronic and complex disease [PDF]
, 2023 Patients’ evaluations of healthcare often rely on patient satisfaction and encounter-specific approaches. Instead, valuable information can be gained by focusing on patient dissatisfaction with healthcare over time.
Harsin, Amanda +10 more
core +1 more source
Youth engagement in research: exploring training needs of youth with neurodevelopmental disabilities
Research Involvement and Engagement, 2023 Background Authentic researcher-youth partnerships in patient-oriented research (POR) where the research responds to the needs expressed by youth themselves are essential to make research meaningful.
Samantha Yimeng Dong +10 more
doaj +1 more source