Patient-centric culture and implications for patient engagement during the COVID-19 pandemic [PDF]
Some consider patient engagement as the “holy grail” of healthcare because of its potential to revolutionize how we view and address health system problems.
Majid, Umair +3 more
core +1 more source
Meaningful engagement of patients and families in a complex trial of advance care planning in primary care [PDF]
Engagement of Patient and Family Advisors (PFAs) is increasingly recommended as best practice in research. During the design and conduct of a large trial of advance care planning (ACP) in primary care, we expanded on the funder’s (Patient-Centered ...
Dokken, Deborah L +3 more
core +1 more source
Patient engagement in action: Timing and intensity of strategies used to engage low income depressed mothers of infants and toddlers [PDF]
The purpose of this study was to illuminate the process of patient engagement and to determine how components of patient engagement were operationalized in the nurse-patient interpersonal relationship with low income, depressed mothers, a traditionally ...
Linda Beeber +8 more
core +1 more source
Experiences of an HCV Patient engagement group: a seven-year journey
Historically, few publications exist where patient engagement in clinical studies is a driving force in study design and implementation. The Patient Centered Outcomes Research Institute (PCORI), established in 2010, employed a new model of integrating ...
UNC Chapel Hill HCV Patient Engagement Group +7 more
doaj +1 more source
The ability of hospitals and health systems to learn from those who use its services (i.e., patients and families) is crucial for quality improvement and the delivery of high-quality patient-centered care.
Kyle Kemp +3 more
doaj +1 more source
Identifying sources of patient dissatisfaction when seeking care for a chronic and complex disease [PDF]
Patients’ evaluations of healthcare often rely on patient satisfaction and encounter-specific approaches. Instead, valuable information can be gained by focusing on patient dissatisfaction with healthcare over time.
Harsin, Amanda +10 more
core +1 more source
Youth engagement in research: exploring training needs of youth with neurodevelopmental disabilities
Background Authentic researcher-youth partnerships in patient-oriented research (POR) where the research responds to the needs expressed by youth themselves are essential to make research meaningful.
Samantha Yimeng Dong +10 more
doaj +1 more source
Patient engagement in an academic community-based primary care practice’s management committee: A case study [PDF]
Patient engagement in primary care has been the focus of many studies; however, little research has evaluated its added value to organisational management in an academic community-based primary care practice (ACBPCP).
Marie-Pascale Pomey +5 more
core +1 more source
Background: Aortic stenosis (AS) treatments include surgical aortic valve replacement (SAVR) and transcatheter aortic valve replacement (TAVR). Choosing between SAVR and TAVR requires patients to trade-off benefits and risks.
Kevin Marsh +4 more
doaj +1 more source
Meaningful and effective patient engagement: What matters most to stakeholders [PDF]
To determine what resources, preparation, and support are needed for patients, providers, and leaders to meaningfully and appropriately engage in patient-centred health system redesign, researchers sought to learn what really matters to these three ...
Bellows, Mandy +9 more
core +1 more source

