Results 41 to 50 of about 382,587 (364)

Seeing the Invisible Resiliency (STIR): Chronic Autoimmune Conditions and Post‐Secondary Education Experiences in Young Adulthood

Health Expectations
Introduction Young adults with chronic autoimmune conditions face unique and often overlooked challenges in post‐secondary education due to the invisible and unpredictable nature of these conditions.
Samantha A. Morin, Angelina Horta, Katelyn Greer, Parveen Priya Rai, Haley Gross, Raegan Reiter, Ingrid Nielssen, Marcia Bruce, Kim Giroux, Deborah A. Marshall   +9 more
doaj   +1 more source

Supporting Survivor‐Centered Care Through Digital Health Integration

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Survivors of childhood cancer face barriers to receiving guideline‐based, long‐term follow‐up care. Two digital tools, Passport for Care (PFC) and Cancer SurvivorLink (SurvivorLink), address complementary gaps by enabling tailored survivorship care plan (SCP) generation, updating, storage, and sharing.
Jordan G. Marchak, Rebecca Williamson‐Lewis, Michael O'Connor, Michael Palgon, Yu‐Ra Kim, Michael Schuckenbrock, Paula Edwards, Abraham Mendoza, Anthony Adams, Brian Arriaga‐Solis, Justin Parker, Harry Tinoco‐Giraldo, Jason King, C. Michael Fordis, Karen E. Effinger, Maria Monica Gramatges   +15 more
wiley   +1 more source

Establishment of a patient and public involvement and engagement group to support clinical trials in Pakistan: Initial lessons learned

Research Involvement and Engagement
Background Patient and public involvement and engagement (PPIE) in clinical trials is increasingly recognized as vital for ensuring research relevance and accessibility.
Timo Tolppa, Arishay Hussaini, Nikhat Ahmed, Arjen M. Dondorp, Shehla Farooq, Monaza Khan, Adnan Masood, Srinivas Murthy, Saima Saleem, Zahyd Shuja, Shahnaz Zaman, Madiha Hashmi   +11 more
doaj   +1 more source

Co-creation of the Global Patient Experience Data Navigator: a multi-stakeholder initiative to ensure the patient voice is represented in health decision-making

Research Involvement and Engagement, 2023
Background Putting patients’ needs and priorities at the forefront of healthcare initiatives and medical product development is critical to achieve outcomes that matter most to patients.
Tom Willgoss, Omar A. Escontrias, Carole Scrafton, Elisabeth Oehrlein, Victoria Livingstone, Fiona C. Chaplin, Maddalena Benivento, Hayley Chapman, Nicholas Brooke   +8 more
doaj   +1 more source

Patient Health Engagement (PHE) model in enhanced recovery after surgery (ERAS): Monitoring patients' engagement and psychological resilience in minimally invasive thoracic surgery

, 2018
In the last decade, the humanization of medicine has contributed to an important shift in medical paradigms (from a doctor-centered to a patient-centered approach to care). This paradigm shift promoted a greater acknowledgement of patient engagement as a
Graffigna, Guendalina, Guendalina Graffigna, Barello, Serena, Serena Barello   +3 more
core   +1 more source

Meaningful engagement of patients and families in a complex trial of advance care planning in primary care

, 2023
Engagement of Patient and Family Advisors (PFAs) is increasingly recommended as best practice in research. During the design and conduct of a large trial of advance care planning (ACP) in primary care, we expanded on the funder’s (Patient-Centered ...
Dokken, Deborah L, Minniti, Mary M., Totten, Annette M, Combe, Angela K.   +3 more
core   +1 more source

A Bibliometric Analysis of Publications in Uremic Toxins From 1991 to 2024

Therapeutic Apheresis and Dialysis, EarlyView.
ABSTRACT Background Uremic toxins are a growing area of research in nephrology, with significant implications in the progression and treatment of chronic kidney disease (CKD) and the management of end‐stage kidney disease (ESKD). This bibliometric analysis aims to evaluate the global research trends, key contributors, and the impact of publications in ...
Yuh‐Shan Ho, Karim M. Soliman, Wisit Cheungpasitporn, Wannasit Wathanavasin, Ahmed Daoud, Ahmed I. Kamal, Balázs Szamosfalvi, Tibor Fülöp   +7 more
wiley   +1 more source

Measuring person-centred care in the mission, vision, and core value statements of Canadian healthcare organizations

BMC Health Services Research
Background Person-centred care (PCC) has been shown to improve health outcomes. The inclusion and incorporation of person-centredness in care has been a growing priority for healthcare organizations across Canada.
Iqmat Iyiola, Sadia Ahmed, Paul Fairie, Matthew Luzentales-Simpson, Kimberly Manalili, Maria J. Santana   +5 more
doaj   +1 more source

Organ‐specific redox imbalances in spinal muscular atrophy mice are partially rescued by SMN antisense oligonucleotides

FEBS Letters, EarlyView.
We identified a systemic, progressive loss of protein S‐glutathionylation—detected by nonreducing western blotting—alongside dysregulation of glutathione‐cycle enzymes in both neuronal and peripheral tissues of Taiwanese SMA mice. These alterations were partially rescued by SMN antisense oligonucleotide therapy, revealing persistent redox imbalance as ...
Sofia Vrettou, Brunhilde Wirth
wiley   +1 more source

Patient Engagement Partnerships in Clinical Trials: Development of Patient Partner and Investigator Decision Aids [PDF]

, 2020
Background: A 2017 systematic review suggested patient engagement in clinical trials has been limited, with little active engagement in trial design or data analysis, interpretation or dissemination.
Bjørnnes, Ann Kristin, Najam, Adhiyat, Ellis, Anne K, Parry, Monica, Toupin April, K, Marlin, Susan, Park, Marianne, Sivakumar, A, Gilron, Ian, Ceroni, Tina, Wells, David, Richards, Dawn   +11 more
core   +1 more source