Results 61 to 70 of about 4,662,895 (269)

Co-creation of the Global Patient Experience Data Navigator: a multi-stakeholder initiative to ensure the patient voice is represented in health decision-making

Research Involvement and Engagement, 2023
Background Putting patients’ needs and priorities at the forefront of healthcare initiatives and medical product development is critical to achieve outcomes that matter most to patients.
Tom Willgoss, Omar A. Escontrias, Carole Scrafton, Elisabeth Oehrlein, Victoria Livingstone, Fiona C. Chaplin, Maddalena Benivento, Hayley Chapman, Nicholas Brooke   +8 more
doaj   +1 more source

Parents of Youth With Cancer Report on Their Psychosocial Care: iSTEPPP Survey Finds Alignment and Gaps With Standards

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background The Standards for Psychosocial Care for Children with Cancer and Their Families guide the provision of comprehensive psychosocial care. Parallel to research characterizing implementation of the Standards from the perspective of providers, this study examines implementation of the Standards from the perspective of parents of youth ...
Emily M. Pariseau, Kimberly Buff, Michele A. Scialla, Kimberly S. Canter, Lori Wiener, Victoria Sardi‐Brown, Julia B. Tager, Kamyar Arasteh, Anne E. Kazak   +8 more
wiley   +1 more source

Showcasing patient experience and engagement best practices through an innovative forum celebrating patients, families, and multidisciplinary care teams [PDF]

, 2016
A platform was designed for interdisciplinary teams to learn from colleagues, patients, and their families, about what creates and sustains positive, lasting impressions from their care team.
Murphy, Susan, Valencia, Andres, Sastry, Sunitha K., Tothy, Alison S., MD, Springman, Mary Kate   +4 more
core   +1 more source

Patient-centered care frameworks, models and approaches: An environmental scan [PDF]

, 2023
Although the definition of patient-centered care (PCC) remains unclear, researchers and healthcare professionals describe the concept as treating the patient as a unique human being with consideration for their physical and psychosocial needs and ...
Maria Sajan, Sajan, Maria, Majid, Umair, Aghna Wasim, Umair Majid, Wasim, Aghna   +5 more
core   +1 more source

Exercise Capacity, Physical Activity, Fatigue, and Neurocognitive Function in Adult Survivors of Childhood Acute Lymphoblastic Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adult survivors of childhood acute lymphoblastic leukemia (ALL) are at risk of reduced exercise capacity, decreased physical activity levels, persistent fatigue, and neurocognitive deficits. The aim was to investigate exercise capacity and physical activity levels of adult survivors of childhood ALL and their associations with ...
Laura Jess, Gustaf Glavå, Simon Skau, Hans‐Georg Kuhn, Maria Bäck, Marianne Jarfelt   +5 more
wiley   +1 more source

The intersection of diversity, equity, and inclusion with pediatric Patient and Family Advisory Councils [PDF]

, 2022
Patient and family advisory councils (PFACs) advance patient- and family-centered care within children’s hospitals but may not reflect the diversity of the communities they serve.
Dokken, Deborah L, Meghan Fanta, Mindy Hoang, Pam Dardess, Fanta, Meghan, Carlos T Casillas, Hoang, Mindy, Dardess, Pam, Casillas, Carlos T, Hsu, Jesse, Jesse Hsu, Andrew F Beck, Ndidi I Unaka, Beck, Andrew F, Unaka, Ndidi I, Deborah L Dokken   +15 more
core   +1 more source

“We Cannot Talk as a Family”: Complexities of Survivorship Communication Among Hispanic/Latino Young Adult Survivors of Childhood Cancer, Parents, and Clinicians

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Young adult childhood cancer survivors (YA‐CCS) have an increased risk of treatment‐related health complications throughout their lives. Lifelong survivorship care is recommended, yet many YA‐CCS experience disruptions in care during pediatric‐to‐adult transitions and do not receive recommended survivorship care.
Kevin Shanchen Pu, Nicole Fernández‐Viña, Briana C. Martin‐Villa, Daniela Ramirez, Rebecca M. Lewinsohn, Mary Smith, Heidi Boynton, Lidia Schapira, Stephanie M. Smith   +8 more
wiley   +1 more source

Developing An Analytic Approach to Understanding the Patient Care Experience

Journal of Patient Experience, 2016
The amount of data available to health-care institutions regarding the patient care experience has grown tremendously. Purposeful approaches to condensing, interpreting, and disseminating these data are becoming necessary to further understand how ...
Mary Kate Springman MHA, Yalissa Bermeo MBA, Heather M Limper MPH, Alison S Tothy MD   +3 more
doaj   +1 more source

Adult Experiences with Hospitalization in Alberta, Canada During the COVID-19 Pandemic: A Comparative Cross-Sectional Study

Journal of Patient Experience, 2022
Little is known about the experiences of those hospitalized during the COVID-19 pandemic in Canada. Our aims were to (a) report on the experiences, (b) compare with historical results, and (c) assess for potential monthly differences of patients ...
Kyle A Kemp PhD, Paul Fairie PhD, Brian J Steele BA (Hons), Maria J Santana MPharm, PhD   +3 more
doaj   +1 more source

Neurocognitive, School‐Based, and Quality of Life Outcomes for Youth With Sickle Cell Disease and Thalassemia: A Scoping Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT The medical burdens of sickle cell disease (SCD) and transfusion‐dependent β‐thalassemia (TDT) are chronic and cumulative, even in children. Yet the effects expand beyond medications and healthcare visits due to their impacts on school attendance, academic performance, and peer engagement.
Mary Ann Etling, Hakim Tokhi, Alexander A. Boucher   +2 more
wiley   +1 more source