Results 51 to 60 of about 4,662,895 (269)

Seeing the Invisible Resiliency (STIR): Chronic Autoimmune Conditions and Post‐Secondary Education Experiences in Young Adulthood

Health Expectations
Introduction Young adults with chronic autoimmune conditions face unique and often overlooked challenges in post‐secondary education due to the invisible and unpredictable nature of these conditions.
Samantha A. Morin, Angelina Horta, Katelyn Greer, Parveen Priya Rai, Haley Gross, Raegan Reiter, Ingrid Nielssen, Marcia Bruce, Kim Giroux, Deborah A. Marshall   +9 more
doaj   +1 more source

Patient-reported experiences and outcomes of virtual care during COVID-19: a systematic review

Journal of Patient-Reported Outcomes, 2023
Introduction The onset of COVID-19 has caused an international upheaval of traditional in-person approaches to care delivery. Rapid system-level transitions to virtual care provision restrict the ability of healthcare professionals to evaluate care ...
Bishnu Bajgain, Sarah Rabi, Sadia Ahmed, Veronika Kiryanova, Paul Fairie, Maria J. Santana   +5 more
doaj   +1 more source

Impact of Radiation Therapy on Physical and Psychosocial Health of Adolescents and Young Adults: A Joint Report From the Children's Oncology Group AYA and Radiation Oncology Committees

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Rates of cancer among adolescents and young adults (AYA), age 15–39 years, are increasing. Consequently, radiation oncologists are treating more AYAs who have diagnoses spanning both pediatric and adult practices. Compared to pediatric and older adult patients, AYAs face a unique set of challenges.
Hesham Elhalawani, Rachel K. Peterson, Avani D. Rao, Laurie J. McKenzie, Ahmed Magdy Elmotayam, Leslie Chang, Michael Roth, Susan L. McGovern   +7 more
wiley   +1 more source

Establishment of a patient and public involvement and engagement group to support clinical trials in Pakistan: Initial lessons learned

Research Involvement and Engagement
Background Patient and public involvement and engagement (PPIE) in clinical trials is increasingly recognized as vital for ensuring research relevance and accessibility.
Timo Tolppa, Arishay Hussaini, Nikhat Ahmed, Arjen M. Dondorp, Shehla Farooq, Monaza Khan, Adnan Masood, Srinivas Murthy, Saima Saleem, Zahyd Shuja, Shahnaz Zaman, Madiha Hashmi   +11 more
doaj   +1 more source

Social Functioning Within the First Years After Pediatric Brain Tumor Diagnosis and the Relationship With Family Psychosocial Risk

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Survivors of pediatric brain tumors (PBTs) can experience long‐term social difficulties, impacting quality of life. Beyond medical and environmental factors, family psychosocial risk may play a role in social outcomes by shaping the caregiving environment and may provide intervention options.
Renske H. Houben, Marisa H. Huisman, Martha A. Grootenhuis, Femke K. Aarsen, Marita Partanen   +4 more
wiley   +1 more source

Patient Health Engagement (PHE) model in enhanced recovery after surgery (ERAS): Monitoring patients' engagement and psychological resilience in minimally invasive thoracic surgery

, 2018
In the last decade, the humanization of medicine has contributed to an important shift in medical paradigms (from a doctor-centered to a patient-centered approach to care). This paradigm shift promoted a greater acknowledgement of patient engagement as a
Graffigna, Guendalina, Guendalina Graffigna, Barello, Serena, Serena Barello   +3 more
core   +1 more source

Measuring person-centred care in the mission, vision, and core value statements of Canadian healthcare organizations

BMC Health Services Research
Background Person-centred care (PCC) has been shown to improve health outcomes. The inclusion and incorporation of person-centredness in care has been a growing priority for healthcare organizations across Canada.
Iqmat Iyiola, Sadia Ahmed, Paul Fairie, Matthew Luzentales-Simpson, Kimberly Manalili, Maria J. Santana   +5 more
doaj   +1 more source

Referral Patterns and Diagnostic Timeliness in Pediatric Cancer: A Hospital‐Based Study in Indonesia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Timely diagnosis and treatment are critical for improving survival among children with cancer. In low‐ and middle‐income countries (LMICs), delays are common and may be influenced by fragmented referral pathways and diagnostic limitations.
Nur Melani Sari, Regina Hadi Putri, Fatimah Assyifa, Judith Spijkerman, Gertjan Johannes Kaspers, Susi Susanah   +5 more
wiley   +1 more source

Language, Culture, and Cancer: Qualitative Insights Into Communication Disparities Among Spanish‐Speaking Caregivers of Children With Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Latino children are projected to make up nearly one‐third of United States (US) children by 2060, and many of their caregivers speak Spanish. Prior survey research has documented communication difficulties for Spanish‐speaking caregivers of children with cancer, but contemporary qualitative data are limited.
Jenny Ruiz, Alejandra Curbelo‐Paz, Sonia Morales, Elizabeth Contreras, Amy Houtrow, Scott H. Maurer, Judy C. Chang   +6 more
wiley   +1 more source

Experience-based co-design: A method for patient and family engagement in system-level quality improvement [PDF]

, 2017
Integrating patient and family member needs, wants and preferences in healthcare is of utmost importance. However, a standardized patient and family engagement model to understand these needs, wants and preferences in order to translate into high quality
Law, Madelyn P, Dr., Bridge, Erica, Fucile, Bianca, Duliban, Charlene   +3 more
core   +1 more source