Results 31 to 40 of about 382,587 (364)

The importance of patient engagement in the management of giant cell arteritis

, 2022
Giant cell arteritis (GCA) is a vascular condition characterized by ocular, systemic and neurological symptoms. Visual loss is the dreaded complication of this condition, prompting expedient diagnosis and treatment. Treatment typically involves prolonged
Sundaram, Arun NE., Patil, Nikhil S., Rodrigues, Santano L., Santano L. Rodrigues, Maxwell J. Gelkopf, Arun NE. Sundaram, Gelkopf, Maxwell J., Nikhil S. Patil   +7 more
core   +1 more source

HowNotToDoPatientEngagement: The Engaging with Purpose Patient Engagement Framework based on a Twitter Analysis of Community Perspectives on Patient Engagement

Research Involvement and Engagement, 2023
Abstract Background: Evaluation of patient engagement practices are frequently researcher-driven, researcher-funded and asymmetric in power dynamics. Little to almost no literature exists that documents patient experiences in patient engagement that are organic and non-institutional.
Brianna Dunstan, Francine Buchanan, Alies Maybee, Aisha Lofters, Ambreen Sayani   +4 more
openaire   +3 more sources

Co-designing new tools for collecting, analysing and presenting patient experience data in NHS services: working in partnership with patients and carers

Research Involvement and Engagement, 2021
Plain English summary The way we collect and use patient experience data is important because of concern that patients and carers may be excluded by the limited ways it is currently done in NHS services.
Nicola Small, Bie Nio Ong, Annmarie Lewis, Dawn Allen, Nigel Bagshaw, Papreen Nahar, Caroline Sanders, the DEPEND team   +7 more
doaj   +1 more source

Patient engagement in action: Timing and intensity of strategies used to engage low income depressed mothers of infants and toddlers

, 2020
The purpose of this study was to illuminate the process of patient engagement and to determine how components of patient engagement were operationalized in the nurse-patient interpersonal relationship with low income, depressed mothers, a traditionally ...
Linda Beeber, Linda S Beeber, Beth Perry Black, Maureen Baker, Baker, Maureen J, Beth Black, Black, Beth Perry, Beeber, Linda S, Maureen J Baker   +8 more
core   +1 more source

Demographic Characteristics Among Members of Patient Family Advisory Councils at a Pediatric Health System

Journal of Patient Experience, 2021
Patient Family Advisory Councils (PFACs) are groups of patients, families, and clinical health system leaders collaborating to improve the quality, safety, and experience of care.
Amanda Montalbano MD, MPH, FAAP, Sheryl Chadwick BS, DeeJo Miller BA, Kathryn Taff MBA, MHA, CPXP, Evelyn Donis De Miranda BHS, Kimberly Pina MPH, Andrea Bradley-Ewing MPA, MA   +6 more
doaj   +1 more source

Meaningful and effective patient engagement: What matters most to stakeholders

, 2015
To determine what resources, preparation, and support are needed for patients, providers, and leaders to meaningfully and appropriately engage in patient-centred health system redesign, researchers sought to learn what really matters to these three ...
Bellows, Mandy, Surgeoner, Brae, Gallivan, Jennifer, Katharina Kovacs Burns, Karen Jackson, Mandy Bellows, Jennifer Gallivan, Kovacs Burns, Katharina, Brae Surgeoner, Jackson, Karen   +9 more
core   +1 more source

Patient-Engagement - Die zukünftige Rolle des Nutzers in der Prothesenentwicklung

, 2020
Die Einbeziehung von Patientenerfahrung und -kompetenz während des gesamten Produktlebenszyklus' ist ein Schlüssel für überzeugende, patientenorientierte und innovative Produkte und Dienstleistungen. Patient Engagement wird auch unter regulatorischen und

core   +1 more source

Patient engagement in an academic community-based primary care practice’s management committee: A case study

, 2021
Patient engagement in primary care has been the focus of many studies; however, little research has evaluated its added value to organisational management in an academic community-based primary care practice (ACBPCP).
Marie-Pascale Pomey, Trépanier, Emmanuelle, Pomey, Marie-Pascale, Emmanuelle Trépanier, Paule Lebel, Lebel, Paule   +5 more
core   +1 more source

Patient-reported experiences and outcomes of virtual care during COVID-19: a systematic review

Journal of Patient-Reported Outcomes, 2023
Introduction The onset of COVID-19 has caused an international upheaval of traditional in-person approaches to care delivery. Rapid system-level transitions to virtual care provision restrict the ability of healthcare professionals to evaluate care ...
Bishnu Bajgain, Sarah Rabi, Sadia Ahmed, Veronika Kiryanova, Paul Fairie, Maria J. Santana   +5 more
doaj   +1 more source

Time Toxicity in Wilms Tumor: Quantifying the Burden of Healthcare Interaction in the First Year After Diagnosis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Wilms tumor (WT) treatment imposes a significant time burden on patients and their families. Time toxicity is a patient‐centered metric that quantifies the burden of healthcare interaction. We sought to define time toxicity in the first year after diagnosis of WT and hypothesized that it would increase as tumor stage and treatment ...
Caleb Q. Ashbrook, Veerain Gupta, Nicholas J. Clark, Vijay Rings, Lauren E. Corona, Douglass B. Clayton, Daniel J. Benedetti   +6 more
wiley   +1 more source