Results 31 to 40 of about 4,662,895 (269)

Unlocking sociocultural and community factors for the global adoption of genomic medicine

Orphanet Journal of Rare Diseases, 2022
Advances in genomic sequencing and genetic testing are increasingly transforming the diagnosis and treatment of diseases—specifically, rare diseases. However, the application and benefit of such technologies remain inequitable globally.
Lynsey Chediak, Nicola Bedlington, Ayesha Gadson, Alastair Kent, Aiedah Abdul Khalek, Luke Rosen, Malisa Rust, Mohd. Farooq Shaikh, Meng Yoe Tan, Samuel Agyei Wiafe, Gareth Baynam, Charles A. Steward   +11 more
doaj   +1 more source

Correction to: Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research

Health Research Policy and Systems, 2018
It has been highlighted that the original manuscript [1] contains a typesetting error in the surname of Virginia Vandall-Walker. This was incorrectly captured as Virgnia Vandall-Walker in the original manuscript which has since been updated.
Elizabeth Manafo, Lisa Petermann, Ping Mason-Lai, Virginia Vandall-Walker   +3 more
doaj   +1 more source

Researchers, patients, and other stakeholders’ perspectives on challenges to and strategies for engagement

Research Involvement and Engagement, 2020
Background There is growing interest in patient and stakeholder engagement in research, yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes Research Institute (PCORI) has funded patient-centered comparative ...
Andrea Heckert, Laura P. Forsythe, Kristin L. Carman, Lori Frank, Rachel Hemphill, Emily A. Elstad, Laura Esmail, Julie Kennedy Lesch   +7 more
doaj   +1 more source

Patient Experience Journal Awards: Celebrating our 2019 Recipients [PDF]

, 2020
In association with The Beryl Institute, Patient Experience Journal introduced the inaugural Patient Experience Journal (PXJ) Awards. The annual awards celebrate important contributions to the literature and articles of impact in research and practice ...
Journal, Patient Experience, Patient Experience Journal   +1 more
core   +1 more source

Freiwilliges Engagement in Deutschland [PDF]

, 2022
Das Open Access Buch bietet eine aktuelle Bestandsaufnahme zum freiwilligen Engagement in Deutschland. Die Ergebnisse basieren auf dem Deutschen Freiwilligensurvey, der zum fünften Mal im Jahr 2019 durchgeführt wurde und vom Bundesministerium für Familie,

core   +1 more source

Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research

Health Research Policy and Systems, 2018
Background Over the last 10 years, patient engagement in health research has emerged as the next evolution in healthcare research. However, limited evidence about the clear role and scope of patient engagement in health research and a lack of evidence ...
Elizabeth Manafo, Lisa Petermann, Ping Mason-Lai, Virginia Vandall-Walker   +3 more
doaj   +1 more source

Showcasing patient and public involvement: Using consultation, collaboration and co-design to shape a respiratory programme [PDF]

, 2022
The NHS is committed to working with patient groups and the public to co-design health services to ensure that lived experience is used to optimise service design and delivery.
Williams, Elizabeth, Strong, Kate, Hancock, Jude, Dr   +2 more
core   +1 more source

Patient-centered benefit-risk analysis of transcatheter aortic valve replacement [version 2; peer review: 2 approved]

F1000Research, 2019
Background: Aortic stenosis (AS) treatments include surgical aortic valve replacement (SAVR) and transcatheter aortic valve replacement (TAVR). Choosing between SAVR and TAVR requires patients to trade-off  benefits and risks.
Kevin Marsh, Natalia Hawken, Ella Brookes, Carrie Kuehn, Barry Liden   +4 more
doaj   +1 more source

The Provincial Patient and Family Group (PFG) for Alberta Health Services Transforms How Care is Planned and Delivered: A Decade of Experience

Journal of Patient Experience, 2021
Although many health care organizations made significant headway in building relationships with patients and families at the point of care, there continues to be opportunities to partner with them at the system level.
Deanna Picklyk MSW, MBA (c), RSW, Shawn Volk BScN, Katharina Kovacs Burns MSc, MHSA, PhD   +2 more
doaj   +1 more source

The development and validation of the SOLES, a new scale measuring engagement with mental health services in people with psychosis [PDF]

, 2009
Background: No reliable and well-validated patient-rated scale exists for measuring engagement with mental health services. Alliance scales are often used as a proxy measure and most are clinician-rated.
Singh, Swaran P., Aileen O'brien, White, Sarah, Fahmy, Rana, Sarah White, O'Brien, Aileen, Swaran P. Singh, Rana Fahmy   +7 more
core   +1 more source