Results 11 to 20 of about 878,195 (308)

Unlocking sociocultural and community factors for the global adoption of genomic medicine

Orphanet Journal of Rare Diseases, 2022
Advances in genomic sequencing and genetic testing are increasingly transforming the diagnosis and treatment of diseases—specifically, rare diseases. However, the application and benefit of such technologies remain inequitable globally.
Lynsey Chediak, Nicola Bedlington, Ayesha Gadson, Alastair Kent, Aiedah Abdul Khalek, Luke Rosen, Malisa Rust, Mohd. Farooq Shaikh, Meng Yoe Tan, Samuel Agyei Wiafe, Gareth Baynam, Charles A. Steward   +11 more
doaj   +1 more source

Measuring organisational readiness for patient engagement (MORE) : an international online Delphi consensus study [PDF]

, 2015
Date of Acceptance: 28/01/2015. © 2015 Oostendorp et al.; licensee BioMed Central. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0), which permits ...
A Coulter, A Coulter, A Johnson, Amy Lloyd, Australian Commission on Safety and Quality in Health Care Sydney, BJ Weiner, BJ Weiner, C Tomson, CM Shea, E King, F Hasson, F Légaré, G Elwyn, G Elwyn, G Elwyn, G Elwyn, Glyn Elwyn, I Williams, Institute for Family Centered Care and the American Hospital Association, J Gallivan, JK Rao, JP Kotter, K Gravel, KL Carman, L Moret, Linda JM Oostendorp, Marie-Anne Durand, MK Wynia, MORI Ipsos, PJ Barr, S Dentzer, S Frampton, S Keeney, SN Hofstede, SN Hofstede, Strategy Unit - NHS England   +35 more
core   +3 more sources

When Patient Activation Levels Change, Health Outcomes and Costs Change, Too [PDF]

, 2015
Patient engagement has become a major focus of health reform. However, there is limited evidence showing that increases in patient engagement are associated with improved health outcomes or lower costs.
Carmen D. Parrotta, Jessica Greene, Judith H. Hibbard, Rebecca Sacks, Valerie Overton   +4 more
core   +1 more source

Researchers, patients, and other stakeholders’ perspectives on challenges to and strategies for engagement

Research Involvement and Engagement, 2020
Background There is growing interest in patient and stakeholder engagement in research, yet limited evidence about effective methods. Since 2012, the Patient-Centered Outcomes Research Institute (PCORI) has funded patient-centered comparative ...
Andrea Heckert, Laura P. Forsythe, Kristin L. Carman, Lori Frank, Rachel Hemphill, Emily A. Elstad, Laura Esmail, Julie Kennedy Lesch   +7 more
doaj   +1 more source

Correction to: Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research

Health Research Policy and Systems, 2018
It has been highlighted that the original manuscript [1] contains a typesetting error in the surname of Virginia Vandall-Walker. This was incorrectly captured as Virgnia Vandall-Walker in the original manuscript which has since been updated.
Elizabeth Manafo, Lisa Petermann, Ping Mason-Lai, Virginia Vandall-Walker   +3 more
doaj   +1 more source

Patient engagement in Canada: a scoping review of the ‘how’ and ‘what’ of patient engagement in health research

Health Research Policy and Systems, 2018
Background Over the last 10 years, patient engagement in health research has emerged as the next evolution in healthcare research. However, limited evidence about the clear role and scope of patient engagement in health research and a lack of evidence ...
Elizabeth Manafo, Lisa Petermann, Ping Mason-Lai, Virginia Vandall-Walker   +3 more
doaj   +1 more source

The Provincial Patient and Family Group (PFG) for Alberta Health Services Transforms How Care is Planned and Delivered: A Decade of Experience

Journal of Patient Experience, 2021
Although many health care organizations made significant headway in building relationships with patients and families at the point of care, there continues to be opportunities to partner with them at the system level.
Deanna Picklyk MSW, MBA (c), RSW, Shawn Volk BScN, Katharina Kovacs Burns MSc, MHSA, PhD   +2 more
doaj   +1 more source

Improving communication skill training in patient centered medical practice for enhancing rational use of laboratory tests: The core of bioinformation for leveraging stakeholder engagement in regulatory science. [PDF]

, 2013
Requests for laboratory tests are among the most relevant additional tools used by physicians as part of patient's health problemsolving. However, the overestimation of complementary investigation may be linked to less reflective medical practice as a ...
Chiappelli, Francesco, Costa, Bruna Carvalho, de Faria, Rosa Malena Delbone, Moura, Eliane Perlatto, Moura, Josemar de Almeida, Soares, Taciana Figueiredo   +5 more
core   +1 more source

Patient-centered benefit-risk analysis of transcatheter aortic valve replacement [version 2; peer review: 2 approved]

F1000Research, 2019
Background: Aortic stenosis (AS) treatments include surgical aortic valve replacement (SAVR) and transcatheter aortic valve replacement (TAVR). Choosing between SAVR and TAVR requires patients to trade-off  benefits and risks.
Kevin Marsh, Natalia Hawken, Ella Brookes, Carrie Kuehn, Barry Liden   +4 more
doaj   +1 more source

Establishing the values for patient engagement (PE) in health-related quality of life (HRQoL) research: an international, multiple-stakeholder perspective [PDF]

, 2016
PurposeActive patient engagement is increasingly viewed as essential to ensuring that patient-driven perspectives are considered throughout the research process. However, guidance for patient engagement (PE) in HRQoL research does not exist, the evidence-
Anne Lyddiatt, D Snape, DCD Howitt, F Gradinger, I Chalmers, JE Wilkinson, JID Brown, K Charmaz, K Haywood, Kirstie Haywood, L Frank, L Spencer, M Wit de, MPT Wit de, P Wilson, PP Cheung, S Staniszewska, S Staniszewska, Sam Salek, Samantha J. Brace-McDonnell, Sophie Staniszewska   +20 more
core   +4 more sources