Results 71 to 80 of about 12,998,017 (261)

Routine use of patient-reported experience and outcome measures for children and young people: a scoping review

Systematic Reviews
Background Patient-reported outcome measures (PROMs) measure people’s views of their health status whereas patient-reported experience measures (PREMs) are questionnaires measuring perceptions of their experience whilst receiving healthcare.
Anne Alarilla, Katharine Terrell, Paula Kelly, Heather Chesters, Faith Gibson, Geralyn Oldham, Debbie Sell, Gwyneth Davies, Jo Wray   +8 more
doaj   +1 more source

Use of Patient-Reported Experience Measures in Pediatric Care

Frontiers in pediatrics, 2021
Introduction: Patient-reported Experience Measures (PREMs) are validated questionnaires, that gather patients' and families' views of their experience receiving care and are commonly used to measure the quality of care, with the goal to make care more patient and family-centered.
Bele, Sumedh, Teela, Lorynn, Zhang, Muning, Rabi, Sarah, Ahmed, Sadia, van Oers, Hedy Aline, Gibbons, Elizabeth, Dunnewold, Nicole, Haverman, Lotte, Santana, Maria J.   +9 more
openaire   +1 more source

Venetoclax‐Based Therapy as a Bridge to Hematopoietic Stem Cell Transplantation in Relapsed or Refractory Pediatric Acute Leukemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Relapsed and/or refractory (R/R) pediatric acute leukemia carries a dismal prognosis, largely driven by chemoresistance to conventional salvage therapy. The BH3‐mimetic venetoclax, combined with chemotherapy or hypomethylating agents, has demonstrated efficacy in small clinical trials.
Katherine S. Colman, Deborah Meyran, Vajiranee Malalasekera, Heather Weerdenburg, Janine Campbell, Rachel Conyers, Stacie Wang, Hannah Walker, Seong Lin Khaw, Diane Hanna   +9 more
wiley   +1 more source

Shared-decision-making, trust in the healthcare system and health literacy are associated with self-reported pain levels: a population-based cross-sectional study in individuals living with a chronic health condition in Wales

BMC Health Services Research
Background Pain is an invisible condition which has significant morbidity, mortality and healthcare system burden, and is a leading cause of disability worldwide.
Katherine E. Woolley, Nichola Thuvesholmen, Sarah Puntoni, Sally Cox, Alexander Shaw, Owen Hughes, Kathleen Withers   +6 more
doaj   +1 more source

Language, Culture, and Cancer: Qualitative Insights Into Communication Disparities Among Spanish‐Speaking Caregivers of Children With Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Latino children are projected to make up nearly one‐third of United States (US) children by 2060, and many of their caregivers speak Spanish. Prior survey research has documented communication difficulties for Spanish‐speaking caregivers of children with cancer, but contemporary qualitative data are limited.
Jenny Ruiz, Alejandra Curbelo‐Paz, Sonia Morales, Elizabeth Contreras, Amy Houtrow, Scott H. Maurer, Judy C. Chang   +6 more
wiley   +1 more source

Perceptions of patient-centered care among veterans with gastroesophageal reflux disease on proton pump inhibitor therapy [PDF]

, 2018
The aim of this study was to explore perceptions of patient-centered care (PCC) among Veterans with gastroesophageal reflux disease (GERD) on proton pump inhibitor (PPI) therapy using patient-reported outcome (PRO) measures.
LaVela, Sherri L., PhD, MPH, MBA, Gawron, Andrew, Balbale, Salva N   +2 more
core   +1 more source

Patient expectation and experience of MR-guided radiotherapy using a 1.5T MR-Linac

Technical Innovations & Patient Support in Radiation Oncology
Background and Purpose: Online adaptive MR-guided radiotherapy (MRgRT) is a relatively new form of radiotherapy treatment, delivered using a MR-Linac. It is unknown what patients expect from this treatment and whether these expectations are met.
S.R. de Mol van Otterloo, J.M. Westerhoff, T. Leer, R.H.A. Rutgers, L.T.C. Meijers, L.A. Daamen, M.P.W. Intven, H.M. Verkooijen   +7 more
doaj   +1 more source

Identification of patient-reported outcomes measures (PROMs) and patient-reported experiences measures (PREMs) in Gaucher disease in Spain

Medicina Clínica
Patient-reported outcome measures (PROMs) and patient-reported experiences measures (PREMs) are crucial for understanding the impact of GD on quality of life and patient's perceptions on care, but also to guide decision-making processes. Nevertheless, no specific PREMs in GD have been published, neither PROMs for Spanish GD patients have been developed.
Giraldo P, Camprodón M, Alcolea PC, Gras-Colomer E, Ibarretxe D, Lakhwani S, Mora E, Calderón MPV, Morales-Conejo M   +8 more
openaire   +3 more sources

Bone Mineral Density After Contemporary Treatment for Acute Lymphoblastic Leukaemia: A Matched Cross‐Sectional Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Reduced bone mineral density (BMD) has been reported in survivors of childhood and young adult acute lymphoblastic leukaemia (ALL); however, data from cohorts treated with contemporary protocols and including matched controls remain limited.
Karen Schow Jensen, Mette Tiedemann Skipper, Niels Holtum Birkebæk, Kjeld Schmiegelow, Thomas Leth Frandsen, Bente Langdahl, Rikke Beck Jensen, Asger Roer Pedersen, Christian Mølgaard, Liv Andrés‐Jensen, Birgitte Klug Albertsen   +10 more
wiley   +1 more source

Defining Patient Experience [PDF]

, 2014
In recent years, perceptions of performance and quality of healthcare organizations have begun to move beyond examining the provision of excellent clinical care, alone, and to consider and embrace the patient experience as an important indicator.
LaVela, Sherri L., PhD, MPH, MBA, Marshburn, Dianne, PhD, RN, NE-BC, Niederhauser, Victoria, DrPH, RN, Wolf, Jason A, PhD, CPXP   +3 more
core   +1 more source