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Patient-Reported Outcomes in Lupus

Rheumatic Disease Clinics of North America, 2021
Patient-reported outcome (PRO) was identified as a core systemic lupus erythematosus (SLE) outcome in 1999. More than 20 years later, however, generic PRO measures evaluating impact in SLE are used mainly for research. Generic and disease-targeted PRO tools have unique advantages.
Narender Annapureddy, Meenakshi Jolly
openaire   +3 more sources

Patient-reported Outcomes in Arthrogryposis

Journal of Pediatric Orthopaedics, 2020
Background: Little is known about patient-reported health status in children and adolescents with arthrogryposis. Utilizing the Patient-Reported Outcome Measurement Information System (PROMIS) and Pediatric Outcomes Data Collection Instrument (PODCI) questionnaires, we investigated functional and psychosocial measures in ...
Donald S. Bae   +4 more
openaire   +2 more sources

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