Results 1 to 10 of about 2,568,476 (309)

Development of a novel patient-reported outcome measure to assess signs and symptoms of COVID-19

Journal of Patient-Reported Outcomes, 2022
Background Given the urgent need for vaccines and treatments for coronavirus disease 2019 (COVID-19), the Symptoms of Infection with Coronavirus-19 (SIC), a comprehensive, patient-reported outcome (PRO) measure of signs and symptoms associated with COVID-
Carla Romano, Sheri Fehnel, Jeffrey Stoddard, Jerald Sadoff, Sandy Lewis, Pauline McNulty, Eric K. H. Chan, Emily Evans, Carol Jamieson, Ashley F. Slagle, Allen Mangel, Kelly McQuarrie   +11 more
doaj   +1 more source

Correlated physical and mental health composite scores for the RAND-36 and RAND-12 health surveys: can we keep them simple?

Health and Quality of Life Outcomes, 2022
Background The RAND-36 and RAND-12 (equivalent to versions 1 of the SF-36 Health Survey and SF-12 Health Survey, respectively) are widely used measures of health-related quality of life.
John Roger Andersen, Kyrre Breivik, Inger Elise Engelund, Marjolein M. Iversen, Jorunn Kirkeleit, Tone Merete Norekvål, Kjersti Oterhals, Anette Storesund   +7 more
doaj   +1 more source

Electronic patient-reported monitoring of symptoms during follow-up of ovarian cancer patients: a feasibility study

BMC Cancer, 2022
Background Ovarian cancer patients require monitoring for relapse. Innovative follow-up methods are increasingly being explored. An electronic patient-reported outcome (ePRO) follow-up pathway was developed for women treated for ovarian cancer.
Fiona Kennedy, Leanne Shearsmith, Marie Holmes, Zoe Rogers, Rob Carter, Uschi Hofmann, Galina Velikova   +6 more
doaj   +1 more source

Symptom burden and health-related quality of life impacts of smoldering multiple myeloma: the patient perspective

Journal of Patient-Reported Outcomes, 2020
Background Smoldering multiple myeloma (SMM) is an early form of multiple myeloma (MM). SMM is typically considered asymptomatic, and research on how it affects health-related quality of life (HRQoL) is limited. This study assessed the symptoms and HRQoL
Milenka Jean-Baptiste, Katharine S. Gries, William R. Lenderking, John Fastenau   +3 more
doaj   +1 more source

Patient-Reported Outcome Measures in Endometriosis [PDF]

Journal of Clinical Medicine, 2021
Patient Reported Outcome Measures (PROM) evoke measurements that allow capturing patients’ perspectives on their condition. In endometriosis care, physicians’ understanding of the effect of the disease and the treatment on patients is often poor. The use of PROMs in endometriosis clinical practice can facilitate patient-provider communication and the ...
Nicolas-Boluda, Alba, Oppenheimer, Anne, Bouaziz, Jerome, Fauconnier, Arnaud   +3 more
openaire   +3 more sources

Outcome selection for tissue-agnostic drug trials for immune-mediated inflammatory diseases: a systematic review of core outcome sets and regulatory guidance

Trials, 2022
Background Tissue-agnostic drug development provides a paradigm shift in precision medicine and requires innovative trial designs. However, outcome selection for such trials can prove challenging.
Olalekan Lee Aiyegbusi, Lavinia Ferrante di Ruffano, Ameeta Retzer, Philip N. Newsome, Christopher D. Buckley, Melanie J. Calvert   +5 more
doaj   +1 more source

Patient-reported outcomes in schizophrenia [PDF]

British Journal of Psychiatry, 2007
BackgroundPatient-reported outcomes are increasingly used to evaluate the care of people with schizophreniaAimsTo review established and emerging patient-reported outcomes in schizophrenia research, assessment tools and key findingsMethodA non-systematic review addressing relevant constructs, the associated scales and key empirical ...
McCabe, R, Saidi, M, Priebe, S
openaire   +3 more sources

Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

Nature Communications, 2022
The collection of patient-reported outcomes (PROs) may capture patients’ assessments of their health status. Here authors highlight PRO-specific issues that should be considered to minimise respondent burden in clinical trials and routine care.
Olalekan Lee Aiyegbusi, Jessica Roydhouse, Samantha Cruz Rivera, Paul Kamudoni, Peter Schache, Roger Wilson, Richard Stephens, Melanie Calvert   +7 more
doaj   +1 more source

Patient-Reported Outcomes and Fibromyalgia [PDF]

Rheumatic Disease Clinics of North America, 2016
Fibromyalgia (FM) is classified as a chronic pain condition accompanied by symptoms of fatigue, sleep problems, problems with cognition, negative mood, limited functional status, and the presence of other chronic overlapping pain conditions. Comprehensive assessment of all of these components can be challenging.
David A, Williams, Anna L, Kratz
openaire   +2 more sources

Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study

Health and Quality of Life Outcomes, 2020
Background Rare diseases may be life-threatening or chronically debilitating conditions. Patient care needs are often complex and challenging to coordinate and deliver effectively.
Olalekan Lee Aiyegbusi, Fatima Isa, Derek Kyte, Tanya Pankhurst, Larissa Kerecuk, James Ferguson, Graham Lipkin, Melanie Calvert   +7 more
doaj   +1 more source