Results 21 to 30 of about 11,226,138 (306)

Patient and clinician opinions of patient reported outcome measures (PROMs) in the management of patients with rare diseases: a qualitative study

Health and Quality of Life Outcomes, 2020
Background Rare diseases may be life-threatening or chronically debilitating conditions. Patient care needs are often complex and challenging to coordinate and deliver effectively.
Olalekan Lee Aiyegbusi, Fatima Isa, Derek Kyte, Tanya Pankhurst, Larissa Kerecuk, James Ferguson, Graham Lipkin, Melanie Calvert   +7 more
doaj   +1 more source

Key considerations to reduce or address respondent burden in patient-reported outcome (PRO) data collection

Nature Communications, 2022
The collection of patient-reported outcomes (PROs) may capture patients’ assessments of their health status. Here authors highlight PRO-specific issues that should be considered to minimise respondent burden in clinical trials and routine care.
Olalekan Lee Aiyegbusi, Jessica Roydhouse, Samantha Cruz Rivera, Paul Kamudoni, Peter Schache, Roger Wilson, Richard Stephens, Melanie Calvert   +7 more
doaj   +1 more source

Patient-reported outcomes collected in the study.

, 2022
Patient-reported outcomes collected in the study.
Charlotte Vanden Bulcke (11944338), Sophie Degroote (3620834), Linos Vandekerckhove (105574), Dirk Vogelaers (20503)   +3 more
core   +1 more source

Measuring patients' views: a bifactor model of distinct patient-reported outcomes in psychosis. [PDF]

, 2011
BACKGROUND: Patient-reported outcomes (PROs) are widely used for evaluating the care of patients with psychosis. Previous studies have reported a considerable overlap in the information captured by measures designed to assess different outcomes. This may
Burns, T., McCabe, R, Reininghaus, Ulrich, Reininghaus, U., Priebe, S., Burns, T, Croudace, T.; id_orcid, Priebe, Stefan, McCabe, R., Reininghaus, U, McCabe, Rosemarie, McCabe, Rose, Croudace, T, Croudace, T., Burns, Tom, Priebe, S, Croudace, Tim   +16 more
core   +1 more source

Co-production of a feasibility trial of pacing interventions for Long COVID

Research Involvement and Engagement, 2023
Plain English summary The World Health Organisation defines Long COVID as a condition which impacts people 3 months after they first had COVID-19. Some of the symptoms that characterise Long COVID symptoms include fatigue, breathlessness and brain fog ...
Grace M. Turner, Christel McMullan, Olalekan Lee Aiyegbusi, Sarah E. Hughes, Anita Walker, Felicity Jeyes, Yvonne Adler, Amy Chong, Lewis Buckland, David Stanton, Elin Haf Davies, Shamil Haroon, Melanie Calvert   +12 more
doaj   +1 more source

Delphi survey to inform patient-reported symptom monitoring after ovarian cancer treatment

Journal of Patient-Reported Outcomes, 2020
Background Increasing numbers of ovarian cancer patients are living longer and requiring regular follow-up to detect disease recurrence. New models of follow-up care are needed to meet the growing number and needs of this patient group. The potential for
Leanne Shearsmith, Fiona Kennedy, Oana C. Lindner, Galina Velikova   +3 more
doaj   +1 more source

‘Give Us The Tools!’: development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension

BMJ Open, 2021
Objectives (a) To adapt the Standard Protocol Items: Recommendations for Interventional Trials (SPIRIT)-patient-reported outcome (PRO) Extension guidance to a user-friendly format for patient partners and (b) to codesign a web-based tool to support the ...
Ameeta Retzer, Anita Slade, Melanie Calvert, Rebecca Mercieca-Bebber, Gary Price, Lesley Roberts, Claudia Rutherford, Olalekan Lee Aiyegbusi, Samantha Cruz Rivera, Richard Stephens, Rav Verdi, Roger Wilson, Philip Edge, Lesley Gosden   +13 more
doaj   +1 more source

Defining Patient-Reported Outcomes

Value in Health, 2004
This paper considers and defines the different types of patient-reported outcomes that can be collected in clinical studies. In particular, it argues that quality of life (QoL) is a distinctly different type of outcome from Health-Related Quality of Life (HRQL).
Doward, Lynda C., McKenna, Stephen P.
openaire   +2 more sources

Heterogeneity in patient-reported outcomes following low-intensity mental health interventions:a multilevel analysis [PDF]

, 2014
BackgroundVariability in patient-reported outcomes of psychological treatments has been partly attributed to therapists ? a phenomenon commonly known as therapist effects.
Alfonso Miranda, Ali Shehzad, Simon Gilbody, Croudace, Tim; id_orcid, McMillan, Dean, Miranda Alfonso, Miranda, A., Tim Croudace, Croudace, T., McMillan Dean, Croudace Tim, Gilbody Simon, Miranda, Alfonso, Littlewood Elizabeth, Delgadillo, J., Delgadillo Jaime, Gilbody, Simon, Shehzad Ali, Delgadillo, Jaime, McMillan, D., Jaime Delgadillo, Ali, Shehzad, Gilbody, S., Littlewood, E., Ali, S., Littlewood, Elizabeth, Elizabeth Littlewood, Dean McMillan   +27 more
core   +1 more source

Patient-reported outcomes in schizophrenia [PDF]

British Journal of Psychiatry, 2007
BackgroundPatient-reported outcomes are increasingly used to evaluate the care of people with schizophreniaAimsTo review established and emerging patient-reported outcomes in schizophrenia research, assessment tools and key findingsMethodA non-systematic review addressing relevant constructs, the associated scales and key empirical ...
McCabe, R, Saidi, M, Priebe, S
openaire   +3 more sources