Results 11 to 20 of about 2,582,753 (309)

Patient-reported outcomes [PDF]

JACC: Heart Failure, 2019
Authors of systematic reviews that include patient-reported outcomes (PROs) should have a good understanding of how patient-reported outcome measures (PROMs) are developed, including the constructs they are intended to measure, their reliability, validity and responsiveness.
Johnston, Bradley C., Patrick, Donald L., Devji, Tahira, Maxwell, Lara J., Bingham, Clifton O., Beaton, Dorcas E., Boers, Maarten, Briel, Matthias, Busse, Jason W., Carrasco-Labra, Alonso, Christensen, Robin, Da Costa, Bruno R., Dib, Regina El, Lyddiatt, Anne, Ostelo, Raymond W., Shea, Beverley, Singh, Jasvinder, Terwee, Caroline B., Williamson, Paula R., Gagnier, Joel J., Tugwell, Peter, Guyatt, Gordon H.   +21 more
core   +10 more sources

Patients' self-management of adverse events and patient-reported outcomes in advanced renal cell carcinoma treated with targeted therapies: A prospective, longitudinal, observational study [PDF]

, 2022
Background: Early intervention to reduce the impact of adverse events (AEs) may improve patients' quality of life and enable optimal treatment duration.
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core   +1 more source

The Real-World Global Use of Patient-Reported Outcomes for the Care of Patients With Inflammatory Bowel Disease. [PDF]

, 2023
peer reviewedBACKGROUND: Many patient-reported outcomes (PROs) have been developed for inflammatory bowel disease (IBD) without recommendations for clinical use.
Horrigan, Jamie M, Travis, Simon, Spinelli, Antonino,, Panaccione, Remo, Moum, Bjorn,, Halfvarson, Jonas,, Travis, Simon,, Salwen-Deremer, Jessica, Panaccione, Remo,, Munkholm, Pia,, Siegel, Corey A, Louis, Edouard, Halfvarson, Jonas, Louis, Edouard,, Horrigan, Jamie M.,, Salwen-Deremer, Jessica,, Spinelli, Antonino, Dubinsky, Marla C, Munkholm, Pia, Moum, Bjorn, Dubinsky, Marla C.,, Siegel, Corey A.,   +21 more
core   +1 more source

Swedish translation and cross-cultural adaptation of eight pediatric item banks from the Patient-Reported Outcomes Measurement Information System (PROMIS)® [PDF]

, 2021
Background: This study is part of the Swedish initiative for the establishment of standardized, modern patient-reported measures for national use in Swedish healthcare.
Nilsson, E., Henje, E., Henje, Eva,, Evalill Nilsson, Eva Henje, Chaplin, John Eric,, Chaplin, John Eric, Henje Blom, Eva, Henje Blom, Eva,, Blomqvist, Ida, Dennhag, Inga, Nilsson, Evalill,, Chaplin, John,, Dennhag, I., Nilsson, Evalill, Dennhag, Inga,, Inga Dennhag, Blomqvist, I., Ida Blomqvist, John Eric Chaplin, Blomqvist, Ida,   +20 more
core   +1 more source

Measuring patients' views: a bifactor model of distinct patient-reported outcomes in psychosis. [PDF]

, 2011
BACKGROUND: Patient-reported outcomes (PROs) are widely used for evaluating the care of patients with psychosis. Previous studies have reported a considerable overlap in the information captured by measures designed to assess different outcomes. This may
Burns, T., McCabe, R, Reininghaus, Ulrich, Reininghaus, U., Priebe, S., Burns, T, Croudace, T.; id_orcid, Priebe, Stefan, McCabe, R., Reininghaus, U, McCabe, Rosemarie, McCabe, Rose, Croudace, T, Croudace, T., Burns, Tom, Priebe, S, Croudace, Tim   +16 more
core   +1 more source

Delphi survey to inform patient-reported symptom monitoring after ovarian cancer treatment

Journal of Patient-Reported Outcomes, 2020
Background Increasing numbers of ovarian cancer patients are living longer and requiring regular follow-up to detect disease recurrence. New models of follow-up care are needed to meet the growing number and needs of this patient group. The potential for
Leanne Shearsmith, Fiona Kennedy, Oana C. Lindner, Galina Velikova   +3 more
doaj   +1 more source

Co-production of a feasibility trial of pacing interventions for Long COVID

Research Involvement and Engagement, 2023
Plain English summary The World Health Organisation defines Long COVID as a condition which impacts people 3 months after they first had COVID-19. Some of the symptoms that characterise Long COVID symptoms include fatigue, breathlessness and brain fog ...
Grace M. Turner, Christel McMullan, Olalekan Lee Aiyegbusi, Sarah E. Hughes, Anita Walker, Felicity Jeyes, Yvonne Adler, Amy Chong, Lewis Buckland, David Stanton, Elin Haf Davies, Shamil Haroon, Melanie Calvert   +12 more
doaj   +1 more source

‘Give Us The Tools!’: development of knowledge transfer tools to support the involvement of patient partners in the development of clinical trial protocols with patient-reported outcomes (PROs), in accordance with SPIRIT-PRO Extension

BMJ Open, 2021
Objectives (a) To adapt the Standard Protocol Items: Recommendations for Interventional Trials (SPIRIT)-patient-reported outcome (PRO) Extension guidance to a user-friendly format for patient partners and (b) to codesign a web-based tool to support the ...
Ameeta Retzer, Anita Slade, Melanie Calvert, Rebecca Mercieca-Bebber, Gary Price, Lesley Roberts, Claudia Rutherford, Olalekan Lee Aiyegbusi, Samantha Cruz Rivera, Richard Stephens, Rav Verdi, Roger Wilson, Philip Edge, Lesley Gosden   +13 more
doaj   +1 more source

Using patient-reported outcomes (PROs) to compare the providers of surgery: does the choice of measure matter? [PDF]

, 2013
BACKGROUND: Patient-reported outcomes (PROs) are being used to compare health care providers with little knowledge of how the choice of measure affects such comparisons.
Hutchings, Andrew, van der Meulen, Jan, Neuburger, Jenny, Black, Nick   +3 more
core   +1 more source

A scoping review and mapping exercise comparing the content of patient-reported outcome measures (PROMs) across heart disease-specific scales [PDF]

, 2020
BACKGROUND: Over the past decade, the importance of person-centered care has led to increased interest in patient-reported outcome measures (PROMs). In cardiovascular care, selecting an appropriate PROM for clinical use or research is challenging because
Mårtensson, Jan,, Årestedt, Kristofer,, Fridlund, Bengt,, Malm, Dan,, Algurén, Beatrix,, Coenen, Michaela,   +5 more
core   +1 more source