Authors of systematic reviews that include patient-reported outcomes (PROs) should have a good understanding of how patient-reported outcome measures (PROMs) are developed, including the constructs they are intended to measure, their reliability, validity and responsiveness.
Johnston, Bradley C. +21 more
core +8 more sources
The Real-World Global Use of Patient-Reported Outcomes for the Care of Patients With Inflammatory Bowel Disease. [PDF]
peer reviewedBACKGROUND: Many patient-reported outcomes (PROs) have been developed for inflammatory bowel disease (IBD) without recommendations for clinical use.
Horrigan, Jamie M +21 more
core +2 more sources
Patients' self-management of adverse events and patient-reported outcomes in advanced renal cell carcinoma treated with targeted therapies: A prospective, longitudinal, observational study [PDF]
Background: Early intervention to reduce the impact of adverse events (AEs) may improve patients' quality of life and enable optimal treatment duration.
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Patient-Reported Outcome Measures in Endometriosis [PDF]
Patient Reported Outcome Measures (PROM) evoke measurements that allow capturing patients’ perspectives on their condition. In endometriosis care, physicians’ understanding of the effect of the disease and the treatment on patients is often poor. The use of PROMs in endometriosis clinical practice can facilitate patient-provider communication and the ...
Nicolas-Boluda, Alba +3 more
openaire +3 more sources
Patient-Reported Outcomes and Fibromyalgia [PDF]
Fibromyalgia (FM) is classified as a chronic pain condition accompanied by symptoms of fatigue, sleep problems, problems with cognition, negative mood, limited functional status, and the presence of other chronic overlapping pain conditions. Comprehensive assessment of all of these components can be challenging.
David A, Williams, Anna L, Kratz
openaire +2 more sources
Measuring patients' views: a bifactor model of distinct patient-reported outcomes in psychosis. [PDF]
BACKGROUND: Patient-reported outcomes (PROs) are widely used for evaluating the care of patients with psychosis. Previous studies have reported a considerable overlap in the information captured by measures designed to assess different outcomes. This may
Burns, T. +16 more
core +1 more source
Defining Patient-Reported Outcomes
This paper considers and defines the different types of patient-reported outcomes that can be collected in clinical studies. In particular, it argues that quality of life (QoL) is a distinctly different type of outcome from Health-Related Quality of Life (HRQL).
Doward, Lynda C., McKenna, Stephen P.
openaire +2 more sources
Heterogeneity in patient-reported outcomes following low-intensity mental health interventions:a multilevel analysis [PDF]
BackgroundVariability in patient-reported outcomes of psychological treatments has been partly attributed to therapists ? a phenomenon commonly known as therapist effects.
Alfonso Miranda +27 more
core +1 more source
Patient-reported outcomes in schizophrenia [PDF]
BackgroundPatient-reported outcomes are increasingly used to evaluate the care of people with schizophreniaAimsTo review established and emerging patient-reported outcomes in schizophrenia research, assessment tools and key findingsMethodA non-systematic review addressing relevant constructs, the associated scales and key empirical ...
McCabe, R, Saidi, M, Priebe, S
openaire +3 more sources
Literacy levels required to complete routinely used patient-reported outcome measures in rheumatology [PDF]
Objective. To assess the reading levels required to complete patient-reported outcome measures (PROs)commonly used in rheumatology clinical and research settings.Methods. Ten PROs written in English were evaluated.
Ryan, Sarah-Jane +7 more
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