Results 31 to 40 of about 1,808,242 (260)

Therapies for Long COVID in non-hospitalised individuals: from symptoms, patient-reported outcomes and immunology to targeted therapies (The TLC Study)

BMJ Open, 2022
Introduction Individuals with COVID-19 frequently experience symptoms and impaired quality of life beyond 4–12 weeks, commonly referred to as Long COVID. Whether Long COVID is one or several distinct syndromes is unknown.
Tom Marshall, Elizabeth Sapey, Krishnarajah Nirantharakumar, Anuradhaa Subramanian, Christel McMullan, Melanie Calvert, Alastair K Denniston, Joht Singh Chandan, Louise J Jackson, Gary Price, George Gkoutos, Tim Williams, Sarah E Hughes, Janet Lord, Krishna Gokhale, Puja Myles, Dawit T Zemedikun, Kirsty McGee, David C Wraith, Shamil Haroon, Kirsty Brown, Karen Jones, Grace Turner, Olalekan Lee Aiyegbusi, Elin Haf Davies, Amy Bamford, Anita Walker, Christopher Frost, Thomas Taverner, Nikita Simms-Williams, Steven Marwaha, Gary McNamara, Karen Matthews, Jennifer Camaradou, Edward Leggett, Clare Iles, Michael Saint-Cricq, Sumita Kumar, Yvonne Alder, David E Stanton, Lisa Agyen, Megan Baber, Hannah Blaize   +42 more
doaj   +1 more source

Interpreting Patient-Reported Outcome Measures

Philosophy of Medicine, 2021
Patient-reported outcome measures (PROMs) are valued in healthcare evaluation for bringing patient perspectives forward, and enabling patient-centered care.
Keith Meadows
doaj   +1 more source

Consistent Patient-Reported Outcomes

Value in Health, 2002
Health-related quality of life (HRQL) measures extend patient outcome assessment beyond survival, adverse effects, and clinical efficacy, and reflect the patient’s perspective on the impact of disease and its treatment on functioning and wellbeing. An important objective for evaluating HRQL outcomes is to demonstrate the value of new pharmaceutical ...
openaire   +2 more sources

Routine patient assessment and the use of patient-reported outcomes in specialized palliative care in Japan

Journal of Patient-Reported Outcomes, 2023
Background Discrepancies in symptom assessment between providers and patients are reported in cancer care, and the use of patient-reported outcome measures (PROMs) has been recommended for patients receiving palliative care.
Nao Ito, Yoko Ishii, Maho Aoyama, Hirofumi Abo, Akihiro Sakashita, Yuko Matsumura, Mitsunori Miyashita   +6 more
doaj   +1 more source

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

Health‐Related Social Needs in Children With Sickle Cell Disease Are Associated With Worse Health‐Related Quality of Life

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Children with sickle cell disease (SCD) face multiple acute and chronic medical complications that may impact their quality of life as reported by patients themselves. Health‐related social needs (HRSNs), such as food and housing insecurity, are common in people with SCD, but the association between HRSNs and patient‐reported ...
Sarah J. Marks, Molly Sonenklar, Cerelia Donald, Cecelia Valrie, Wally Smith, India Sisler   +5 more
wiley   +1 more source

Response scale selection in adult pain measures: results from a literature review

Journal of Patient-Reported Outcomes, 2018
Background The purpose of this literature review was to examine the existing patient-reported outcome measurement literature to understand the empirical evidence supporting response scale selection in pain measurement for the adult population.
Shima Safikhani, Katharine S. Gries, Jeremiah J. Trudeau, David Reasner, Katja Rüdell, Stephen Joel Coons, Elizabeth Nicole Bush, Jennifer Hanlon, Lucy Abraham, Margaret Vernon   +9 more
doaj   +1 more source

Patient-reported outcome measurement [PDF]

Journal of the Royal Society of Medicine, 2010
Alan Maynard and Karen Bloor1 raise interesting questions, particularly in relation to breast cancer. One issue is that treatment-related toxicities may not become problematic for several years, particularly when radiotherapy is administered. Research so far seems to indicate that hypofractionation causes more long-term problems than hyperfractionation,
openaire   +2 more sources

Cup‐Like Nuclei Is a Hallmark of DUX4/ERG Acute Lymphoblastic Leukemia and Reveals Cytoplasmic Mitochondria Accumulation

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Cup‐like nuclei are a distinctive morphological feature observed in certain cases of acute lymphoblastic leukemia (ALL). We provide evidence that they characterize DUX4/ERG ALL independently of IKZF1 deletion and reveal marked mitochondrial accumulation in this ALL subset.
Chloé Arfeuille, Hugo Roux, Odile Fenneteau, Aurélie Caye‐Eude, Alexia Kinoo, Yoann Vial, André Baruchel, Marion Strullu, Elodie Lainey, Hélène Cavé   +9 more
wiley   +1 more source

Genomic Diversity and Clinical Variability in Pediatric Primary Cutaneous Anaplastic Large Cell Lymphoma: A Case Series

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Primary cutaneous anaplastic large cell lymphoma (pcALCL) is a rare pediatric CD30‐positive T‐cell lymphoproliferative disorder with an excellent prognosis, but its genomic drivers are poorly defined. We report three children with skin‐limited disease demonstrating striking molecular heterogeneity, including NPM::ALK, NUP214::FRK, and a novel ...
Shoshana Greenberger, Efrat Bar‐Ilan, Victoria Marcu, Evgeny Grishin, Rinat Yacobi, Aviv Barzilai, Hana Golan, Assaf Arie Barg   +7 more
wiley   +1 more source