Results 51 to 60 of about 2,568,476 (309)

European Standard Clinical Practice Guideline and EXPeRT Recommendations for the Diagnosis and Management of Gastroenteropancreatic Neuroendocrine Neoplasms in Children and Adolescents

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Pediatric gastroenteropancreatic neuroendocrine neoplasms (GEP‐NENs) are extremely rare and clinically heterogeneous. Management has largely been extrapolated from adult practice. This European Standard Clinical Practice Guideline (ESCP), developed by the EXPeRT network in collaboration with adult NEN experts, provides (adult) evidence ...
Michaela Kuhlen, Calogero Virgone, Antje Redlich, Michael Abele, Ricardo Lopez‐Almaraz, Tal Ben‐Ami, Ewa Bien, Gianni Bisogno, Maja Mazic Cesen, Andrea Ferrari, Malgorzata A. Krawczyk, Yves Reguerre, Dominik T. Schneider, Ines B. Brecht, Charlotte Rigaud, Bilgehan Yalcin, Rainer Claus, Christian Vokuhl, Constantin Lapa, Jörg Fuchs, Segolene Hescot, Thomas Walter, Julien Hadoux, Daniel Orbach   +23 more
wiley   +1 more source

Development and validation of a new patient-reported outcome measure for patients with pressure ulcers: the PU-QOL instrument. [PDF]

, 2013
BACKGROUND: Patient-reported outcome (PRO) data are integral to patient care, policy decision making and healthcare delivery. PRO assessment in pressure ulcers is in its infancy, with few studies including PROs as study outcomes.
Gorecki, C, McGinnis, Elizabeth, Cano, S, Coleman, S, Briggs, Michelle; id_orcid, McGinnis, E, Wilson, L, Briggs, Michelle, Nelson, AE, Nelson, Andrea E, Cano, Stefan, Cano, S. J., Dealey, Carol, Dealey, C, Stubbs, N, Briggs, M, Nixon, J, Lamping, DL, Brown, Julia M., Lamping, D. L., Coleman, Susanne, Nixon, Jane, Lamping, Donna L., Brown, Julia M, Wilson, Lyn, Nelson, Andrea E.; id_orcid, Lamping, Donna L, Stubbs, Nikki, Gorecki, Claudia, Brown, JM   +29 more
core   +1 more source

Patient-reported outcomes collected in the study.

, 2022
Patient-reported outcomes collected in the study.
Charlotte Vanden Bulcke (11944338), Sophie Degroote (3620834), Linos Vandekerckhove (105574), Dirk Vogelaers (20503)   +3 more
core   +1 more source

eRAPID electronic patient self-Reporting of Adverse-events: Patient Information and aDvice: a pilot study protocol in pelvic radiotherapy

Pilot and Feasibility Studies, 2018
Background An estimated 17,000 patients are treated annually in the UK with radical radiotherapy (RT) for pelvic cancer. New treatment approaches in RT have increased survivorship and changed the subjective toxicity profile for patients who experience ...
Patricia Holch, Simon Pini, Ann M. Henry, Susan Davidson, Jacki Routledge, Julia Brown, Kate Absolom, Alexandra Gilbert, Kevin Franks, Claire Hulme, Carolyn Morris, Galina Velikova, on behalf of the eRAPID radiotherapy work group   +12 more
doaj   +1 more source

Using patient-reported outcome measures during the management of patients with end-stage kidney disease requiring treatment with haemodialysis (PROM-HD): a qualitative study

BMJ Open, 2021
Objectives Patients undergoing haemodialysis report elevated symptoms and reduced health-related quality of life, and often prioritise improvements in psychosocial well-being over long-term survival.
Paul Cockwell, Derek Kyte, Christel McMullan, Melanie Calvert, Mary Dutton, Nicola Elzabeth Anderson, Olalekan L Aiyegbusi   +6 more
doaj   +1 more source

Patient-reported outcome measurement [PDF]

Journal of the Royal Society of Medicine, 2010
Alan Maynard and Karen Bloor1 raise interesting questions, particularly in relation to breast cancer. One issue is that treatment-related toxicities may not become problematic for several years, particularly when radiotherapy is administered. Research so far seems to indicate that hypofractionation causes more long-term problems than hyperfractionation,
openaire   +2 more sources

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Patient-reported outcomes.

, 2017
Patient-reported outcomes.
Dick J. Veltman (116681), Sanne B. Schagen (2849912), Liesbeth Reneman (301735), Sanne Menning (3760573), Michiel B. de Ruiter (763735), Hester S. A. Oldenburg (3818062), Willem Boogerd (809326)   +6 more
core   +1 more source

Patient-reported outcome measures for clinical decision-making in outpatient follow-up: validity and reliability of a renal disease questionnaire

Journal of Patient-Reported Outcomes, 2021
Background Patient-reported outcome measures are increasingly used by clinicians to support communication in telephone- or face-to-face consultations with patients.
Birgith Engelst Grove, Liv Marit Valen Schougaard, Per Ramløv Ivarsen, Derek Kyte, Niels Henrik Hjollund, Annette de Thurah   +5 more
doaj   +1 more source

Clinical and Biological Features of Response in Resistant Neuroblastoma to 131I‐Metaiodobenzylguanidine Radiotherapy in the Anti‐GD2 Immunotherapy Era

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background 131I‐metaiodobenzylguanidine (131I‐MIBG) radiotherapy is a key treatment for relapsed and refractory (R/R) neuroblastoma (NB). Patients with R/R disease treated in the modern era are increasingly exposed to anti‐GD2 immunotherapy, which exerts selective pressure and may modify both tumor cell state and microenvironment.
Benjamin J. Lerman, Katherine K. Matthay, Fabienne Hollinger, Catriona Black, Ann A. Lazar, Miguel Pampaloni, Steven G. DuBois, Kieuhoa T. Vo   +7 more
wiley   +1 more source