Results 61 to 70 of about 3,181,219 (306)

A qualitative study of health, social, and community professionals’ practices to reduce alcohol-related risks among people living in social precarity in the Greater Paris region

Harm Reduction Journal
Alcohol-related harms constitute a major global public health challenge. Despite similar consumption levels to their more affluent counterparts, alcohol-related morbidity and mortality is disproportionately higher in socioeconomically deprived ...
Coline Frechet, Rokhayatou Kane, Clair-Antoine Veyrier, Issifou Yaya, Tristan Alain, Martin Duracinsky, Lisa Yombo Kokule, Lorraine Cousin Cabrolier   +7 more
doaj   +1 more source

Erenumab in chronic migraine: Patient-reported outcomes in a randomized double-blind study. [PDF]

, 2019
OBJECTIVE: To determine the effect of erenumab, a human monoclonal antibody targeting the calcitonin gene-related peptide receptor, on health-related quality of life (HRQoL), headache impact, and disability in patients with chronic migraine (CM). METHODS:
Cheng, Sunfa, Desai, Pooja, Lenz, Robert, Leonardi, Dean K., Lipton, Richard B., Mikol, Daniel D., Nilsen, Jon, Reuter, Uwe, Silberstein, Stephen, Stewart, Walter F., Tepper, Stewart J.   +10 more
core   +1 more source

Establishing a core outcome set for peritoneal dialysis : report of the SONG-PD (standardized outcomes in nephrology-peritoneal dialysis) consensus workshop [PDF]

, 2020
Outcomes reported in randomized controlled trials in peritoneal dialysis (PD) are diverse, are measured inconsistently, and may not be important to patients, families, and clinicians.
Abraham, Georgi, Abu Alfa, Ali, Anumudu, Samaya, Au, Eric, Azukaitis, Karolis, Bargman, Joanne, Baumgartf, Amanda, Bernays, Sarah, Bernier-Jean, Amelie, Blake, Peter, Boudville, Neil, Brown, Edwina, Brown, Edwina A., Brunier, Gillian, Brunier, Gillian, Butt, Zeeshan, Carter, Simon A., Chen, Jenny, Cheung, Catherine, Cho, Yeoungjee, Cho, Yeoungjee, Craig, Jonathan, Craig, Jonathan C., Crowe, Sally, Cueto Manzano, Alfonso, da Silva, Viviane Calice, Davies, Simon, Dong, Jie, Dong, Jie, Dunn, Louese, Dunning, Tony, Evangelidis, Nicole, Figueiredo, Ana, Finkelstein, Fred, Germino, Greg, Goffin, Eric, Goh, Bak Leong, Guha, Chandana, Gutman, Talia, Gutman, Talia, Hanson, Camilla, Hemmelgarn, Brenda, Howell, Martin, Htay, Htay, Hurst, Helen, Ito, Yasuhiko, Jassal, Vanita, Jha, Vivekanand, Johnson, David, Johnson, David W., Ju, Angela, Kawanishi, Hideki, Kelly, Amy, Kelly, Ayano, Kilonzo, Kajiru Gad, Kim, Yong-Lim, Krishnan, Mahesh, Lambie, Mark, Levin, Adeera, Li, Philip Kam-Tao, Lichodziejewska-Niemierko, Monika, Liew, Adrian, Logeman, Charlotte, Maner, Karine, Manera, Karine E., Mann, Neelam, Manns, Braden, Matus, Andrea, McGee, Richard, Mehrotra, Rajnish, Mehrotra, Rajnish, Mendelson, Asher, Morelle, Johann, Nadeau-Fredette, Annie-Claire, Naicker, Sarala, Naicker, Saraladevi, Nataatmadja, Melissa, Nessim, Sharon, Neu, Alicia, Neumann, Joanna, Nourse, Peter, O'Lone, Emma, Oliver, Matthew, Pecoits-Filho, Roberto, Perl, Jeffrey, Perl, Jeffrey, Quinn, Robert, Robinson, Bruce, Rutherford, Claudia, Sanabria, Mauricio Rafael, Sautenet, Benedicte, Saxena, Anjali, Scholes-Robertson, Nicole, Schreiber, Martin, Schwartz, Daniel, Sharma, Ankit, Shen, Jenny, Shen, Jenny I., Sumpton, Daniel, Sweety, Soheli Ahmed, Szeto, Cheuk-Chun, Teitelbaum, Isaac, Teixeira-Pinto, Armando, Teo, Sharon, Toffelmire, Ted, Tong, Allison, Tugwell, Peter, Van Biesen, Wim, Van, Kim Linh, Verdin, Nancy, Viecelli, Andrea, Wang, Angela Yee-Moon, Wheeler, David, Wilkie, Martin, Wilkie, Martin, Wilson, Scott, Winkelmayer, Wolfgang, Yap, Hui Kim, Yeates, Karen   +118 more
core   +2 more sources

Patient-Reported Outcome (PRO) Consortium translation process: consensus development of updated best practices

Journal of Patient-Reported Outcomes, 2018
This paper describes the rationale and goals of the Patient-Reported Outcome (PRO) Consortium’s instrument translation process. The PRO Consortium has developed a number of novel PRO measures which are in the process of qualification by the U.S. Food and
Sonya Eremenco, Sheryl Pease, Sarah Mann, Pamela Berry, on behalf of the PRO Consortium’s Process Subcommittee   +4 more
doaj   +1 more source

Adherence to Protocol Recommendations for Children With Wilms Tumour in Two Consecutive Studies in the United Kingdom and Ireland—Does Variation Matter?

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background and Aims Wilms tumour (WT) has excellent event‐free and overall survival (OS). However, small differences exist between countries participating in the same international study. This led us to examine variation in adherence to protocol recommendations as a potential contributing factor.
Suzanne Tugnait, R. Al‐Saadi, A. Lopez‐Cortes, K. Dzhuma, M. Oostveen, J. Brok, S. Irtan, M. Weeks, J. Bate, S. Baker, R. Williams, M. Powis, D. Saunders, O. Olsen, T. Watson, S. Shelmerdine, S. Vaidya, L. Howell, C. Duncan, G. M. Vujanic, C. Stiller, G. P. Balchin, T. Chowdhury, K. Pritchard‐Jones   +23 more
wiley   +1 more source

Paving the way for patient centricity in real-world evidence (RWE): Qualitative interviews to identify considerations for wider implementation of patient-reported outcomes in RWE generation

Heliyon, 2023
Objectives: Real-world evidence (RWE) generation can be enhanced by including patient-reported outcomes (PROs). Methods for collecting and using PRO data in the real-world setting are currently underdeveloped and there is no international guidance ...
Konrad Maruszczyk, Christel McMullan, Olalekan Lee Aiyegbusi, Thomas Keeley, Roger Wilson, Philip Collis, Catherine Bottomley, Melanie J. Calvert   +7 more
doaj   +1 more source

The future of measuring patient‐reported outcomes in rheumatology: Patient‐Reported Outcomes Measurement Information System (PROMIS) [PDF]

, 2011
Peer Reviewedhttp://deepblue.lib.umich.edu/bitstream/2027.42/88015/1/20581_ftp ...
Cella, Fries, Fries, Fries, Hays, Khanna, Khanna, Lovell, Reeve   +8 more
core   +1 more source

Patient-reported outcomes in schizophrenia [PDF]

British Journal of Psychiatry, 2007
BackgroundPatient-reported outcomes are increasingly used to evaluate the care of people with schizophreniaAimsTo review established and emerging patient-reported outcomes in schizophrenia research, assessment tools and key findingsMethodA non-systematic review addressing relevant constructs, the associated scales and key empirical ...
McCabe, R, Saidi, M, Priebe, S
openaire   +3 more sources

Sirolimus for Extracranial Arteriovenous Malformations: A Scoping Review of the Evidence in Syndromic and Non‐Syndromic Cases

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Arteriovenous malformations (AVMs) are rare, high‐flow, vascular anomalies that can occur either sporadically or as part of a genetic syndrome. AVMs can progress with serious morbidity and even mortality if left unchecked. Sirolimus is an mTOR inhibitor that is effective in low‐flow vascular malformations; however, its role in AVMs is unclear.
Will Swansson, Ingrid Winship, Gary Hammerschlag, Laura Scardamaglia   +3 more
wiley   +1 more source

Evaluating the Utility of Paired Tumor and Germline Targeted DNA Sequencing for Pediatric Oncology Patients: A Single Institution Report

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate the diagnostic yield and utility of universal paired tumor–normal multigene panel sequencing in newly diagnosed pediatric solid and central nervous system (CNS) tumor patients and to compare the detection of germline pathogenic/likely pathogenic variants (PV/LPVs) against established clinical referral criteria for cancer ...
Natalie Waligorski, Rebecca Ronsley, Shannon M. Stasi, Jeffrey Stevens, Erin R. Rudzinski, Christina M. Lockwood, Sarah E. S. Leary, Bonnie L. Cole, Michelle A. Ting, Vera Paulson   +9 more
wiley   +1 more source