Results 31 to 40 of about 11,141,924 (294)

The HIT Network for Children and Adolescents With CNS Tumors Facilitates Improvements of Diagnostic Assessments, Multimodal Treatments, Individual Counseling, and Research in Germany, Austria, and Switzerland

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background The HIT network was established in 2000 to create a population‐based structure aiming to improve survival rates and reduce late effects for children with central nervous system (CNS) tumors by conducting comprehensive clinical trials.
Stefan Rutkowski   +59 more
wiley   +1 more source

Stressful Events Reported by Childhood Cancer Survivors and Community Controls From the St. Jude Lifetime (SJLIFE) Cohort: A Mixed Method Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Characterizing stressful events reported by childhood cancer survivors experienced throughout the lifespan may help improve trauma‐informed care relevant to the survivor experience. Methods Participants included 2552 survivors (54% female; 34 years of age) and 469 community controls (62% female; 33 years of age) from the St.
Megan E. Ware   +13 more
wiley   +1 more source

Evolution of a research team: the patient partner perspective

open access: yesResearch Involvement and Engagement, 2022
Plain English Summary Patients and caregivers who have lived with a condition have an important and unique perspective researchers should consider. To this end, patients and caregivers have expanded their involvement in the design and conduct of clinical
Suzanne Madison   +17 more
doaj   +1 more source

Intravascular Iodinated Contrast Media Administration in Adults: A Patient Safety Approach [PDF]

open access: yes, 2017
In 2013, The ICPS Contrast Media Usage and Exposure Workgroup was formed to review, define, assess and implement best practices regarding the use of intravascular iodinated contrast media (CM) in diagnostic and interventional procedures with respect to ...
Indianapolis Coalition for Patient Safety
core  

Patient Activation in Childhood, Adolescent, and Young Adult Cancer Survivors: Current Insights and Implications for Survivorship Care—A Systematic Review From the e‐QuoL Project

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Purpose Patient activation—encompassing knowledge, confidence, and skills in managing individual's health—is a cornerstone of person‐centered care. However, its significance among childhood, adolescent, and young adult cancer survivors (CAYACS) remains unexplored. This article examines the application of the 13‐item Patient Activation Measure (
Charlotte Demoor‐Goldschmidt   +12 more
wiley   +1 more source

Patient-powered research networks: building capacity for conducting patient-centered clinical outcomes research. [PDF]

open access: yes, 2014
The Patient-Centered Outcomes Research Institute (PCORI) recently launched PCORnet to establish a single inter-operable multicenter data research network that will support observational research and randomized clinical trials.
Andrew A. Nierenberg   +24 more
core   +1 more source

Dialysis patients: vulnerable group of patients [PDF]

open access: yesKidney International, 2010
To the Editor: We have read the article by Anderson et al,1 as well as the editorial by Abdel-Kader and Lynn Unruh2 with great interest and would like to comment.
Pavlović, Draško   +3 more
openaire   +4 more sources

Utility of Computed Tomography Surveillance of Asymptomatic Infection in Children and Young Adults Before Allogeneic Hematopoietic Stem Cell Transplant

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Asymptomatic infection poses a significant risk for children undergoing hematopoietic stem cell transplantation (HSCT). Pre‐transplant surveillance computed tomography (CT) is commonly used to identify occult infection, though its diagnostic yield remains uncertain.
Tyler Obermark   +9 more
wiley   +1 more source

Special Issue – July 2021 The Impact of Inequity & Health Disparities on the Human Experience

open access: yesPatient Experience Journal, 2020
Patient Experience Journal (PXJ) is excited to announce the call for submissions for its July 2021 special issue on the impact of racial inequality, health disparities, and discrimination on the human experience.
Patient Experience Journal
doaj  

September 2019-Printed Issue

open access: yesPatient Safety, 2019
Welcome to the first issue of Patient Safety! Brought to you by the Patient Safety Authority, an independent agency of the Commonwealth of Pennsylvania, this brand-new journal is unlike any other you’ve seen. Since patients are at the heart of everything
Patient Safety Authority
doaj   +1 more source

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