Results 121 to 130 of about 3,361,739 (291)

He/She Is a Great Surgeon, But...: Addressing Behaviors That Undermine a Culture of Safety

Plastic and Reconstructive Surgery, Global Open, 2015
William O. Cooper, MD, MPH
doaj   +3 more sources

ADNP‐Related Helsmoortel–Van der Aa Syndrome: A Review of the Literature and Clinical Recommendations for Assessment and Monitoring

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT ADNP‐related Helsmoortel–Van der Aa syndrome (ADNP‐related HVDAS) is a single gene form of autism spectrum disorder (ASD) caused by pathogenic sequence variants in the activity‐dependent neuroprotective protein (ADNP) gene. In addition to ASD, ADNP‐related HVDAS is associated with a wide range of cognitive, behavioral, and physical health ...
Jarrett Fastman, Ana Kolevzon, Paige Siper, Tess Levy, Jeffrey M. Saland, Yitzchak Frank, Robert Rapaport, Kayla Kupietzky, William E. Bennett Jr, Bruce Gelb, Sandra Bedrosian Sermone, Alexander Kolevzon   +11 more
wiley   +1 more source

Patient advocacy and arthritis: moving forward

Bulletin of the World Health Organization, 2004
Patient advocacy is based on the premise that people have the right to make their own choices about their health care. Personal advocacy is centred on the experiential expertise of the individual affected by the condition, whereas group advocacy is ...
Leong Amye L., Euller-Ziegler Liana
doaj  

Amplifying the Future of Patient Voices and Cross-Disease Networking Through the Advocacy Exchange

Journal of Patient Experience
Patient advocacy is essential for progress in healthcare to improve clinical practice and treatments, but advocacy is neither well understood nor supported.
Brad Love PhD, Sheila Thorne BA, Laudy Robinson BA, Eileen Shannon MS, Katie Stout BS, David Craig MBA, Jasmine Greenamyer MPH   +6 more
doaj   +1 more source

L‐Cysteine and N‐Acetylcysteine Supplementation Improves Clinical Outcome in a Patient With COXPD10

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT MTO1 is a nuclear gene that encodes a mitochondrial protein essential for modifying mitochondrial transfer RNAs (tRNAs) and stabilizing codon‐anticodon interactions to ensure accurate and efficient mitochondrial protein synthesis and oxidative phosphorylation.
Nishitha R. Pillai, Sara A. Elsbecker, Grace Bronken McCarthy, Kaitlin Weisshappel, Peter Karachunski, Fernando Scaglia   +5 more
wiley   +1 more source

Reframing Trisomy 13 and 18 Care: Moving Beyond the Myth of “Incompatibility With Life” in a South African and Low‐and Middle‐Income Country Context

American Journal of Medical Genetics Part A, EarlyView.
ABSTRACT Trisomy 13 (T13) and trisomy 18 (T18) have historically been described as “lethal” or “incompatible with life,” contributing to diagnosis‐based limitations of care. Contemporary evidence demonstrates greater heterogeneity in survival and outcomes than previously recognized, including among selected children receiving intensive care or cardiac ...
H. L. Malherbe, M. Araujo, L. Balimba, J. A. Joshi, P. Makhetha, M. Meiring, M. T. Mpe, D. Reddy, B. Shingwenyana, J. C. Carey   +9 more
wiley   +1 more source

Analysis of how students learn patient advocacy.

, 2008
A clinical paper submitted in partial fulfillment of the requirements for the degree of Master of Science in Nursing, Nurse Educator.ABSTRACT ANALYSIS OF HOW STUDENTS LEARN PATIENT ADVOCACY By Lori Dehnke A descriptive research design was ...
Dehnke, Lori
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Mental Health Stigma in Psychiatric Genetics: Insights and Recommendations From the ISPG Member Survey on Stigma

American Journal of Medical Genetics Part B: Neuropsychiatric Genetics, EarlyView.
ABSTRACT Little is known about how stigma is perceived within psychiatric genetics, a field increasingly central to public discussions about heredity, neurodiversity, and psychiatric risk. Understanding how stigma is perceived and experienced by psychiatric geneticists is important for guiding responsible communication and future stigma‐reduction ...
Anaïs B. Thijssen, Elleke Tissink, Reeteka Sud, Mandy Johnstone, Richard Josiassen, Andrea Lahti, Laura Huckins, Ariana Page, Stigma Reduction Interest Group of the ISPG, Jordan W. Smoller, Jehannine Austin, Janneke Zinkstok, Sarah E. Medland, Rada Veeneman, Anna R. Docherty   +14 more
wiley   +1 more source

Advocacy in Nursing Practice: Roles, Challenges and strategies for Effective Patient Care

Indian Journal of Psychiatric Nursing
Advocacy is one of the most meaningful responsibilities in nursing practice. Nurses spend more time with patients than any other healthcare professional, which places them in a unique position to understand patient needs, fears, concerns, and rights ...
Nathiya Ezhumalai, Radhakrishnan Govindan, K. Annapoorani, G. Balamurugan   +3 more
doaj   +1 more source

SC DMH patient advocacy report May 2023

, 2023
The Client Advocacy Office at the South Carolina Department of Mental Health publishes a monthly report with information on complaints resolved at agency centers and other statistics on the Client Advocacy ...
South Carolina State Department of Mental Health, Client Advocacy Office
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