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The growing research toolbox for SLC13A5 citrate transporter disorder: a rare disease with animal models, cell lines, an ongoing Natural History Study and an engaged patient advocacy organization. [PDF]
Ther Adv Rare DisBrown TL +4 more
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Pancreatology, 2008
Regardless of the treatment regimens and ongoing research we do as medical doctors and scientists, our bottom line is to improve the lives of those suffering from pancreatic cancer; certainly not an easy undertaking. In a previous issue of Pancreatology (April 2008, vol. 8), our editor discussed the importance of empathy toward our patients.
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Regardless of the treatment regimens and ongoing research we do as medical doctors and scientists, our bottom line is to improve the lives of those suffering from pancreatic cancer; certainly not an easy undertaking. In a previous issue of Pancreatology (April 2008, vol. 8), our editor discussed the importance of empathy toward our patients.
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Patient Advocacy During COVID-19
Orthopedics, 2020[ ]the cost-effectiveness of and improvement in patient quality of life after primary hip arthroplasty are well documented 1 This is just one example of how orthopedic surgery positively contributes to public well-being [ ]procedures designed to address these conditions should be considered safely delayed rather than elective, as these patients ...
Stephen D, Lockey, William F, Postma
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New England Journal of Medicine, 1996
In this decade of cost containment in medicine,1,2 many of us have encountered insurance carriers that denied coverage for certain medically indicated procedures or treatments.
B, Weston, M, Lauria
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In this decade of cost containment in medicine,1,2 many of us have encountered insurance carriers that denied coverage for certain medically indicated procedures or treatments.
B, Weston, M, Lauria
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Patient Advocacy Organizations
2018A patient advocacy organization is a type of nonprofit, charitable entity that focuses on improving the health and well-being of individuals who share a particular chronic disease or disability or a set of diseases or disabilities. Also known as a voluntary health agency, patient advocacy organizations typically work in one or more of the following ...
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Getting political about patient advocacy
Nursing, 2017I'M A SECOND-CAREER nurse. In 1999, at the age of 40, I graduated with honors from a nursing program in a large New Jersey community college. Last year, I obtained my MSN in nursing leadership and education, and I'm now taking business courses for pleasure.
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Patient advocacy: a concept analysis
Nursing Standard, 2003To clarify the ill-defined concept of patient advocacy and develop a model.An eclectic concept analysis was used in the study.Results of the analysis reveal that advocacy has three essential attributes: valuing, apprising and interceding. Antecedents to advocacy include a vulnerable population and a nurse willing to take on the responsibility for ...
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2011
Lymphedema – how does one feel, what does one do when given this diagnosis? I know because our daughter was born in 1993 with a complex lymphatic disease – including lymphedema. We were told at the time that there is insufficient scientific/medical knowledge to make a precise diagnosis, there are grossly inadequate treatment options, and there is no ...
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Lymphedema – how does one feel, what does one do when given this diagnosis? I know because our daughter was born in 1993 with a complex lymphatic disease – including lymphedema. We were told at the time that there is insufficient scientific/medical knowledge to make a precise diagnosis, there are grossly inadequate treatment options, and there is no ...
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Patient advocacy in palliative care
British Journal of Nursing, 1994Advocacy is a contentious and topical issue and there is continued debate as to whether a nurse can ever truly represent patients' views and interests. This article will address this argument with particular reference to palliative care.
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