Results 21 to 30 of about 99,154 (254)

Equitable partnership: patient and public involvement and engagement and community engagement in mental health research in Pakistan. [PDF]

Res Involv Engagem
Abstract Background & aim Patient and public involvement and engagement (PPIE), alongside community engagement, are crucial in mental health research to ensure relevance and impact. This study, part of the Medical Research Council (MRC) UK-funded,
Hamid S, Jamal SF, Shah SMU, Azeemi IT, Khan AJ, Sheikh S, Ayub T, Fonseka N, Milner A, Azeemi MMUH, Khan MF, Khan S, Nauman AA, Sanauddin N, Farooq S, Canvin K.   +15 more
europepmc   +2 more sources

Patient and public involvement and engagement in clinical trials at scale: Analysis of the first 3250 responses on the POrtal for Patient and Public Engagement in Dementia (POPPED). [PDF]

Alzheimers Dement
Abstract INTRODUCTION Patient and public involvement and engagement (PPIE) improves research quality but is often limited in scale. This study explored the potential for large‐scale PPIE using a Web‐based approach. METHODS
Qin H, Pointon L, Carpenter J, Raymont V, Dunne R, Reeves S, Ali S, Iqbal S, Bonet-Olivares C, Whittle J, Rizzo L, Malhotra P, Underwood BR, AD‐SMART team.   +13 more
europepmc   +6 more sources

Activities and impacts of patient engagement in CIHR SPOR funded research: a cross-sectional survey of academic researcher and patient partner experiences

Research Involvement and Engagement, 2022
Plain English Summary The Canadian Institutes of Health Research developed the Strategy for Patient-Oriented Research (SPOR) to help increase capacity for patient engagement in research.
Anna Maria Chudyk, Roger Stoddard, Nicola McCleary, Todd A. Duhamel, Carolyn Shimmin, Serena Hickes, Annette S. H. Schultz   +6 more
doaj   +1 more source

Using the UK standards for public involvement to evaluate the public involvement sections of annual reports from NIHR managed research centres

Research Involvement and Engagement, 2023
Background Within the United Kingdom (UK), the National Institute for Health and Care Research is the largest funder of health and social care research, and additionally funds research centres that support the development and delivery of research.
Alice Moult, Dereth Baker, Ali Aries, Paul Bailey, Steven Blackburn, Tom Kingstone, Saumu Lwembe, Zoe Paskins   +7 more
doaj   +1 more source

Thoughts on reporting public and patient engagement and involvement in research in the Journal of Advanced Nursing

Journal of Advanced Nursing, 2022
Historically, patient stakeholders (patients, families and caregivers) have been the subject of research, mere datapoints in the research enterprise. Researchers used participants' data and rarely considered other contributions they could offer. Over the last 15 years, this perspective has changed, as researchers and funding agencies now acknowledge ...
Georgia Tobiano, Craig M Dale
openaire   +3 more sources

Evaluation of the Establishment of a Public and Patient Involvement and Engagement Group to Support Clinical Trials in Pakistan: Protocol for a Mixed-Methods Study [version 2; peer review: 2 approved]

Wellcome Open Research
Background Patient and public involvement and engagement (PPIE) in research is a collaboration between researchers, patients, and the public, enhancing research acceptability, relevance, and impact.
Monaza Khan, Shehla Farooq, Srinivas Murthy, Nikhat Ahmed, Saima Saleem, Adnan Masood, Shahnaz Zaman, Zahyd Shuja, Arishay Hussaini, Timo Tolppa, Arjen M Dondorp, Madiha Hashmi   +11 more
doaj   +1 more source

Understanding who is and isn’t involved and engaged in health research: capturing and analysing demographic data to diversify patient and public involvement and engagement

Research Involvement and Engagement, 2023
Abstract Background Patient and public involvement and engagement (PPIE) can improve the relevance, quality, ethics and impact of research thus contributing to high quality research. Currently in the UK, people who get involved in research tend to be aged 61 years or above, White and female ...
Keane, Annie, Islam, Safina, Parsons, Suzanne, Verma, Arpana; id_orcid 0000-0002-7950-2649, Farragher, Tracey; id_orcid 0000-0002-1968-6378, Forde, Davine, Holmes, Leah, Cresswell, Katharine, Williams, Susannah, Arru, Paolo, Howlett, Emily, Turner-Uaandja, Hannah, MacGregor, Issy, Grey, Tracy, Arain, Zahra, Scahill, Maura, Starling, Bella   +16 more
openaire   +4 more sources

Patient and public involvement and engagement: Do we need an 'ethical anchor'? [PDF]

Res Involv Engagem
Working alongside patients and the public to shape and engage with research, Patient and Public Involvement and Engagement (PPIE), facilitates more impactful research outcomes. The UK Standards for Public Involvement provides a framework for conducting PPIE; however, they do not refer directly to ethical conduct.
Suri S, Harrison SL, Bevin-Nicholls A, Shenton F, Atkinson S, Earle J, Williams G, Lally J.   +7 more
europepmc   +5 more sources

From patient to partner: Bridging the divide from laboratory to patient through a “Dragons' Den” style model of co-creation in cancer research

Technical Innovations & Patient Support in Radiation Oncology
Patient and public involvement and engagement (PPIE) in cancer research is increasingly recognised as valuable; yet meaningful participation early in the cancer research pathway remains less common, particularly in pre-clinical science [1] .
Ashwini Job, Beverly Agass, Charlotte E. Coles, Helene Judge, Andrew Land, Deborah Pitfield, Hilary Stobart, Amy Tang, Rhys Grant, Nicola Le Blond, Neil G. Burnet   +10 more
doaj   +1 more source

Series: Public engagement with research. Part 1: The fundamentals of public engagement with research

European Journal of General Practice, 2023
Background In the first of a four-part series, we describe the fundamentals of public engagement in primary care research.Objectives The article’s purpose is to encourage, inform and improve the researcher’s awareness about public engagement in research.
Steven Blackburn, Megan Clinch, Maarten de Wit, Albine Moser, Jette Primdahl, Esther van Vliet, Christine Walker, Fiona Stevenson   +7 more
doaj   +1 more source