Maternal mental health: a key area for future research among women with congenital heart disease
In this viewpoint, we respond to the recently published national priorities for research in congenital heart disease (CHD) among adults, established through the James Lind Alliance Priority Setting Partnership, with specific attention to priority 3 ...
Paul F Clift +12 more
doaj +1 more source
"About sixty per cent I want to do it": Health researchers' attitudes to, and experiences of, patient and public involvement (PPI)-A qualitative interview study. [PDF]
Boylan AM +3 more
europepmc +2 more sources
Introduction Many people with Parkinson’s (PwP) are not given the opportunity or do not have adequate access to participate in clinical research. To address this, we have codeveloped with users an online platform that connects PwP to clinical studies in ...
Stephen Mullin +8 more
doaj +1 more source
Personal and Public Involvement (PPI) and its impact - Monitoring, measuring and evaluating the impact of Personal and Public Involvement (PPI) in Health and Social Care in Northern Ireland [PDF]
The Health and Social Care Reform Act (2009) made PPI a legal requirement in Northern Ireland. To develop the knowledge base on the status of PPI in NI this research was commissioned by the Public Health Agency (PHA) and the Patient Client Council (PCC ...
McGlone, Ann +6 more
core +7 more sources
Optimizing patient and public involvement (PPI): Identifying its "essential" and "desirable" principles using a systematic review and modified Delphi methodology. [PDF]
Baines RL, Regan de Bere S.
europepmc +2 more sources
Objectives We assessed how often National Health Service (NHS) hospitals reported that they had specific supportive services for patients with prostate cancer available onsite, including nursing support, sexual function and urinary continence services ...
Melanie Morris +9 more
doaj +1 more source
Adapting Patient and Public Involvement processes in response to the Covid‐19 pandemic
Background The COVID‐19 pandemic brought rapid and major changes to research, and those wishing to carry out Patient and Public Involvement (PPI) activities faced challenges, such as restrictions on movement and contact, illness, bereavement and risks to
Claire Snowdon +8 more
doaj +1 more source
Planning and optimising a digital intervention to protect older adults’ cognitive health
Background By 2050, worldwide dementia prevalence is expected to triple. Affordable, scalable interventions are required to support protective behaviours such as physical activity, cognitive training and healthy eating.
Rosie Essery +24 more
doaj +1 more source
Showcasing patient and public involvement: Using consultation, collaboration and co-design to shape a respiratory programme [PDF]
The NHS is committed to working with patient groups and the public to co-design health services to ensure that lived experience is used to optimise service design and delivery.
Williams, Elizabeth +2 more
core +1 more source
Background Having a stroke or transient ischaemic attack increases the risk of a subsequent one, especially with high blood pressure (BP). Home‐based BP management can be effective at maintaining optimal BP.
Tanvi Rai +11 more
doaj +1 more source

