Results 41 to 50 of about 19,606 (268)

Regional working in the East of England: using the UK National Standards for Public Involvement

Research Involvement and Engagement, 2018
Plain English summary Involving patients and members of the public to help shape and carry out research is recommended in health research in the United Kingdom (UK).
Elspeth Mathie, Helena Wythe, Diane Munday, Graham Rhodes, Penny Vicary, Paul Millac, Julia Jones   +6 more
doaj   +1 more source

Challenges Facing Healthwatch, a New Consumer Champion in England [PDF]

International Journal of Health Policy and Management, 2016
This article engages with debates about the conceptualisation and practical challenges of patient and public involvement (PPI) in health and social care services.
Pam Carter , Graham Martin
doaj   +1 more source

Public and Patient Involvement (PPI) Contributor Training Companion Manual

, 2023
This document is designed to act as a reference manual to support introductory public and patient involvement (PPI) in academic research training. The training is designed for PPI contributors*.  The training and manual covers four core topics: 1.
Emma Dorris (7553870), Thilo Kroll (14557139)   +1 more
core   +1 more source

Details of patient and public involvement (PPI) in the ACTIOHN study.

, 2023
Details of patient and public involvement (PPI) in the ACTIOHN study.
Andrew R. Levy, Rachel C. Brooker, Valerie Bryant, Michael M. Nugent, Joanne M. Patterson, Bridget Young (128749), Rachel C. Brooker (16884295), Michael M. Nugent (16884301), Simon N. Rogers (9383322), Adrian W. Midgley (7239479), Bridget Young, Valerie Bryant (16884298), Steven Lane (347900), Ruth Price (11955653), Andrew G. Schache (8894705), Adrian W. Midgley, Mary Gemma Cherry (4566451), Ruth Price, Steven Lane, Andrew R. Levy (16884292), Joanne M. Patterson (16884304), Simon N. Rogers, Mary Gemma Cherry, Andrew G. Schache   +23 more
core   +1 more source

“PROUD to have been involved”: an evaluation of participant and community involvement in the PROUD HIV prevention trial

Research Involvement and Engagement, 2020
Background The PROUD trial, a HIV prevention trial in men who have sex with men and trans women, set out to involve community representatives and trial participants in several ways.
Mitzy Gafos, Annabelle South, Bec Hanley, Elizabeth Brodnicki, Matthew Hodson, Sheena McCormack, T. Charles Witzel, Justin Harbottle, Claire Vale   +8 more
doaj   +1 more source

Developing patient-centred care: an ethnographic study of patient perceptions and influence on quality improvement. [PDF]

, 2015
BACKGROUND: Understanding quality improvement from a patient perspective is important for delivering patient-centred care. Yet the ways patients define quality improvement remains unexplored with patients often excluded from improvement work.
Cicely Marston, Marston, Cicely, Renedo, Alicia, Alicia Renedo   +3 more
core   +2 more sources

The extent, quality and impact of patient and public involvement in primary care research: a mixed methods study [PDF]

, 2018
Background: To improve the lives of patients in primary care requires the involvement of service users in primary care research. We aimed to explore the extent, quality and impact of patient and public involvement (PPI) in primary care research.Methods ...
Jinks
core   +1 more source

A co-produced method to involve service users in research: the SUCCESS model

BMC Medical Research Methodology, 2019
Background Public and patient involvement is a routine element of health services research methods to produce better designed and reported studies. Although co-production is recommended when involving people in research, methods for involving people are ...
Bridie Angela Evans, Alison Porter, Helen Snooks, Vanessa Burholt   +3 more
doaj   +1 more source

Genetic predisposition to porto‐sinusoidal vascular disorder: A functional genomic‐based, multigenerational family study

Hepatology, EarlyView., 2022
A deleterious variant of FCHSD1 results in mTOR pathway overactivation and may cause porto‐sinusoidal vascular disorder (PSVD). The pedigree of the family demonstrated an autosomal dominant disease with variable expressivity. Whole‐genome sequencing and Sanger sequencing both validated the existence of the FCHSD1 variant and the heterozygosity of c ...
Jingxuan Shan, André Megarbane, Aziz Chouchane, Deepak Karthik, Ramzi Temanni, Atilio Reyes Romero, Huiying Hua, Chun Pan, Xixi Chen, Murugan Subramanian, Chadi Saad, Hamdi Mbarek, Cybel Mehawej, Eliane Chouery, Sirin W. Abuaqel, Alexander Dömling, Sami Remadi, Cesar Yaghi, Pu Li, Lotfi Chouchane   +19 more
wiley   +1 more source

Partnering with patients to get better outcomes with chimeric antigen receptor T-cell therapy: towards engagement of patients in early phase trials

Research Involvement and Engagement, 2020
Aim Though patient engagement in clinical research is growing, recent reports suggest few clinical trials report on such activities. To address this gap, we describe our approach to patient engagement in the development of a clinical trial protocol to ...
Madison Foster, Dean A Fergusson, Terry Hawrysh, Justin Presseau, Natasha Kekre, Stuart Schwartz, Gisell Castillo, Sarah Asad, Grace Fox, Harold Atkins, Kednapa Thavorn, Joshua Montroy, Robert A Holt, Zarah Monfaredi, Manoj M Lalu   +14 more
doaj   +1 more source