Results 31 to 40 of about 1,068,059 (316)

Developing an in-depth understanding of patient and caregiver engagement across care transitions from hospital: protocol for a qualitative study exploring experiences in Canada

BMJ Open, 2023
Introduction Patient and caregiver engagement is critical, and often compromised, at points of transition between care settings, which are more common, and more challenging, for patients with complex medical problems.
Helen Johnson, Joanie Sims Gould, Paul Stolee, Jacobi Elliott, Judith Carson, Justine L Giosa, Catherine E Tong, Paula van Wyk, Roy Butler, Mary Margaret Taabazuing, Paige Coyne, Fallon Mitchell, Alexandra Whate, Anne Callon   +13 more
doaj   +1 more source

Cancer diagnosed by emergency admission in England: an observational study using the general practice research database. [PDF]

, 2013
BACKGROUND: Patients diagnosed with cancer by the emergency route often have more advanced diseases and poorer outcomes. Rates of cancer diagnosed through unplanned admissions vary within and between countries, suggesting potential inconsistencies in the
Majeed, Azeem, Paul Aylin, Bottle, Alex, Tsang, Carmen, Aylin, Paul, Alex Bottle, Azeem Majeed, Carmen Tsang   +7 more
core   +1 more source

Issues in the development of advance directives in mental health care [PDF]

, 2003
<i>Background</i>: Interest in advance directives in mental health care is growing internationally. There is no clear universal agreement as to what such an advance directive is or how it should function.
Patrick, H., Garner, H., Stuart, S., Atkinson, J.M.   +3 more
core   +1 more source

Health‐Related Quality of Life and Symptom Severity Among Patients With PIK3CA‐Related Overgrowth Spectrum: A Mixed‐Methods Study to Understand Real‐World Experience With Alpelisib Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background PIK3CA‐related overgrowth spectrum (PROS) includes several rare overgrowth disorders resulting from somatic gain‐of‐function mutations in PIK3CA. Despite treatment advances, including the recent approval of alpelisib for PROS in the United States, literature detailing the patient experience with PROS is limited.
Vamsi Bollu, Kaitlin LaGasse, Cory D. Saucier, Kimberly Raymond, Miranda Lauher‐Charest, Lauren Crowder, Beilei Cai, Mary Lisha Paul, Denise Adams   +8 more
wiley   +1 more source

Patient Centricity and the Ethics of Glaucoma Care

Journal of Current Glaucoma Practice, 2020
The ultimate goal of glaucoma therapy, as of any other therapeutic intervention, is to achieve superior clinical outcomes, patient satisfaction, and patient adherence to treatment. In a chronic asymptomatic disease, such as, glaucoma, where diagnostic and therapeutic algorithms may have multiple acceptable treatment arms, patient centricity becomes ...
openaire   +2 more sources

Clinical and Biological Features of Response in Resistant Neuroblastoma to 131I‐Metaiodobenzylguanidine Radiotherapy in the Anti‐GD2 Immunotherapy Era

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background 131I‐metaiodobenzylguanidine (131I‐MIBG) radiotherapy is a key treatment for relapsed and refractory (R/R) neuroblastoma (NB). Patients with R/R disease treated in the modern era are increasingly exposed to anti‐GD2 immunotherapy, which exerts selective pressure and may modify both tumor cell state and microenvironment.
Benjamin J. Lerman, Katherine K. Matthay, Fabienne Hollinger, Catriona Black, Ann A. Lazar, Miguel Pampaloni, Steven G. DuBois, Kieuhoa T. Vo   +7 more
wiley   +1 more source

The inability to pay for health services in Central and Eastern Europe: evidence from six countries. [PDF]

, 2013
BACKGROUND: Out-of-pocket payments for health services constitute a major financial burden for patients in Central and Eastern European (CEE) countries. Individuals who are unable to pay use different coping strategies (e.g.
Rechel, Bernd, Golinowska, S., Groot, W., Groot, Wim, Sowada, Christoph, Golinowska, Stanisława, Pavlova, Milena, Tambor, M., Sowada, C., Pavlova, M.; id_orcid, Pavlova, M., Tambor, Marzena, Rechel, B.   +12 more
core   +1 more source

Virtue ethics and the commitment to learn: overcoming disparities faced by transgender individuals

Philosophy, Ethics, and Humanities in Medicine, 2019
The purpose of this paper is to utilize virtue ethics as the appropriate paradigm by which to improve health care delivery to transgender individuals.
Jennifer Markusic Wimberly
doaj   +1 more source

Hospitalization Through Families’ Eyes: Comparing Inpatient Care Quality for Children With Sickle Cell Disease and Cystic Fibrosis in Canada

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Sickle cell disease (SCD) is a chronic, inherited hemoglobinopathy that requires frequent hospitalization for disease‐related complications. Canadian data on inpatient care is limited. This study compared caregiver‐reported hospital experiences of children with SCD to those with cystic fibrosis (CF), a chronic, autosomal recessive ...
Hailey M. Zwicker, Kyle Kemp, Perri Tutelman, Sharon H. J. Hou, Paul Fairie, Maria Santana, Gregory M. T. Guilcher, Taryn Fay‐McClymont, Glenda Bendiak, Wendy Pelletier, Nicola Wright, Fiona Schulte   +11 more
wiley   +1 more source

The value of experts by experience in social domain supervision in the Netherlands: results from a ‘mystery guests’ project

BMC Health Services Research
Background User involvement and participation in the supervision of the quality of care is an important topic for many healthcare inspectorates. It offers regulators an additional view on quality, increases the legitimacy and accountability of the ...
Sophia M. Kleefstra, Brenda J.M. Frederiks, Adriënne Tingen, Petra G.J. Reulings   +3 more
doaj   +1 more source