Results 111 to 120 of about 92,290 (306)

Evaluation of Digital Technologies for Home‐Based Assessment in People With Amyotrophic Lateral Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Digital technologies hold promise for transforming healthcare by enhancing personalized treatments and offer valuable opportunities to improve patient care. Here, we evaluated several novel, self‐administered, home‐based, digital endpoints for their association with corresponding conventional standard clinical measures (primary) in ...
Arne Mueller, Vanessa Vallejo, Mónica Povedano Panadés, Orla Hardiman, Véronique Danel‐Brunaud, Senda Ajroud‐Driss, Philippe Couratier, Jeremy Shefner, Anna Gokey, Mike DiCesare, Erin Lennox, Jens Praestgaard, Lucie Brujin, Peggy Allred, Ram Miller   +14 more
wiley   +1 more source

How we diagnose and treat hereditary transthyretin-mediated amyloidosis with polyneuropathy in the Balkan region: an expert opinion

Frontiers in Neurology
Hereditary transthyretin-mediated (ATTRV; v, variant) amyloidosis is a genetic disorder that causes abnormal accumulation of amyloid deposits in organs and tissues.
Ivailo Tournev, Ivailo Tournev, Ivailo Tournev, Janez Zidar, Borut Peterlin, Ervina Bilić, Stojan Perić, Sonja Pavlović, Teodora Chamova, Teodora Chamova   +9 more
doaj   +1 more source

Using appreciative inquiry as a framework to enhance the patient experience

, 2017
The following case depicts the journey of a non-profit hospital in an under-served community and its attempts to turn around suffering patient experience.
Moorer, Kerry, MBA, Elilzabeth Delgado, Schawan Kunupakaphun, Pracha Eamranond, Kunupakaphun, Schawan, Kerry Moorer, Moody, Matthew, Wolf, Christina, MSN, RN, CNL, Delgado, Elilzabeth, Eamranond, Pracha, MD, MPH, Moore, Karen, RN, MS, FACHE, Christina Wolf, Karen Moore, Matthew Moody   +13 more
core   +1 more source

How information can improve patient and family experience in critical care: A focus group study

, 2020
The experience of being in hospital critical care has major impacts upon the patient, their family and carers. This situation is likely to be stressful, fast changing and challenging for those involved.
Treadway, Victoria, Girendra Sadera, GARNER, JAYNE, Victoria Treadway, Kelly, Sioban, Jayne Garner, Sadera, Girendra, Sioban Kelly   +7 more
core   +1 more source

Early Recognition of Treatment‐Responsive Rapidly Progressive Dementia: The Modified STAM3mP Score

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Early identification of patients with treatment‐responsive rapidly progressive dementia (RPD) is important as early treatment improves outcomes. The STAM3P score identifies treatment‐responsive RPD using “high risk” presenting features. We optimized performance by adding a time component (i.e., dementia within 3 months) and validated the ...
R. W. van Steenhoven, N. Satyadev, A. E. M. Bastiaansen, Y. D. Piura, J. Kerstens, Y. S. Crijnen, J. Brenner, T. Brand, T. M. Bienfait, S. Veenbergen, J. M. de Vries, F. J. de Jong, E. G. P. Dopper, P. A. E. Sillevis Smitt, H. Seelaar, G. S. Day, M. J. Titulaer   +16 more
wiley   +1 more source

A Qualitative Analysis of Patient Perspectives and Preferences in Lupus Management to Guide Lupus Guidelines Development

Arthritis Care &Research, EarlyView.
Objective A patient‐centered approach for chronic disease management, including systemic lupus erythematosus (SLE), aligns treatment with patients’ values and preferences, leading to improved outcomes. This paper summarizes how patient experiences, perspectives, and priorities informed the American College of Rheumatology (ACR) 2024 Lupus Nephritis (LN)
Shivani Garg, Izzy Hartel, Lisa R. Sammaritano, Anca Askanase, Bonnie L. Bermas, Maria Dall'Era, Alí Duarte‐García, Victoria P. Werth, Brad Rovin, Reem A. Mustafa, Amy S. Turner, Bené Williams, Brian L. Ung, Hiya Bhavsar, Monique C. Gore‐Massy, Nahirannette Pulido, Natacha Guerrero, Natalie M. Smith, Wambui Machua, Linda T. Hiraki, Mary Beth Son   +20 more
wiley   +1 more source

Application status of patient journey mapping in the nursing field

Huli yanjiu
This article introduced the basic concepts,components,and drawing of patient journey mapping,reviewed the application of patient journey mapping in the nursing field,and summarized their advantages and limitations.The aim was to provide reference for the
HUANG Yubing, ZHU Li
doaj  

Patient journey modeling experiences : remote Aboriginal maternity services in the Top End of Australia

, 2010
Background to the study: Aboriginal women repeatedly request different type of service; 2006: Workshop to explore issues with current model of service provision; The key issues identified as the 4 C’s: Choice, Coordination, Communication, Continuity ...
Curry, Joanne (R9655), Barclay, Lesley, Bar-Zeev, Sarah, Kildea, Sue, Farrington, Cath   +4 more
core  

Patient journey in cystinosis: focus on non-adherence and disease management [PDF]

Background: Few studies have assessed patient-reported experience measures in nephropathic cystinosis. This study uses patient reports focused on the impact of cystinosis, cysteamine treatment-associated problems, and therapeutic adherence and suggests ...
Martínez Montero, Marta, Elisa Giner, Simón Lalanza, Bezos, Carlos, Laura Acuña Álvarez, Peña, Catalina, Catalina Peña, Acuña Álvarez, Laura, Gema Ariceta, Carlos Bezos Daleske, Lalanza, Simón, Marta Martínez Montero, Ariceta Iraola, Gema   +12 more
core   +1 more source

From Doubt to Diagnosis: Canadian Patient Perspectives on a Limb‐Girdle Muscular Dystrophy Diagnosis

Health Expectations
Introduction Limb‐girdle muscular dystrophies (LGMDs) encompass a rare and genetically diverse set of disorders, posing challenges in diagnosis due to the absence of distinct pathological features, leading to frequent misdiagnoses and inadequate symptom ...
Homira Osman, Zainab Adamji, Gerald Pfeffer, Jodi Warman‐Chardon, Pryamvada Varma, Jenna Keindel, Stacey Lintern   +6 more
doaj   +1 more source