Results 61 to 70 of about 9,819 (266)
Cardiotoxicity after cancer treatment: a process map of the patient treatment journey [PDF]
Cardio-Oncology, 2019 Cardiotoxicity is a potential complication of anticancer therapy. While guidelines have been developed to assist practitioners, an effective, evidence based clinical pathway for the treatment of cardiotoxicity has not yet been developed. The aim of this study was to describe the journey of patients who developed cardiotoxicity through the healthcare ...
Robyn A. Clark +8 more
openaire +6 more sources
Patient journey in cystinosis: focus on non-adherence and disease management [PDF]
Background: Few studies have assessed patient-reported experience measures in nephropathic cystinosis. This study uses patient reports focused on the impact of cystinosis, cysteamine treatment-associated problems, and therapeutic adherence and suggests ...
Martínez Montero, Marta +12 more
core +1 more source
Five‐Year Disease Progression in Synuclein Seeding Positive Sporadic Parkinson's Disease
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective To provide a comprehensive description of disease progression in synuclein seeding assay (SAA) positive sporadic Parkinson Disease participants, using Neuronal Synuclein Disease integrated biological and functional impairment staging framework.
Paulina Gonzalez‐Latapi +19 more
wiley +1 more source
A study on the patient journey map of inpatients with mood disorders
BMC PsychiatryAbstract Objective To explore the emotional responses, behavioral adaptations, and core needs of inpatients with mood disorders during the admission, hospitalization, and discharge phases, and to construct their inpatient journey map, thereby providing a basis for optimizing psychiatric healthcare ...
Shi Wen +3 more
openaire +1 more source
Patient Journey Mapping in human-centered design: a critical review [PDF]
, 2021 Recent studies indicate that a positive Patient eXperience (PX) leads to a faster patient recovery, greater safety and lower costs for the healthcare system. Therefore, PX design is fundamental for hospitals service delivery. The Patient Journey Map (PJM)
Val, Ester +3 more
core
Complementarity of Long‐Reads and Optical Mapping in Parkinson's Disease for Structural Variants
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Long‐read sequencing and optical genome mapping technologies have the ability to detect large and complex structural variants. This has led to the discovery of novel pathogenic variants in neurodegenerative movement disorders. Thus, we aimed to systematically compare the SV detection capabilities of OGM and ONT in Parkinson's disease.
André Fienemann +17 more
wiley +1 more source
Vestibular Patient Journey: Insights From Vestibular Disorders Association (VeDA) Registry
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Vestibular symptoms impose a high burden of disability. Understanding real‐world diagnostic and treatment pathways can identify care gaps and guide interventions. We aimed to characterize symptom profiles, diagnostic trends, provider involvement, and treatment patterns in vestibular disorders.
Ali Rafati +10 more
wiley +1 more source
International Journal of Qualitative MethodsJourney mapping, a participatory arts-based research method, is used to explore experiences, connections and influences by creating graphical depictions that include both time and emotional response dimensions. In health and social sciences research, use
Roberta L. Woodgate PhD +2 more
doaj +1 more source
Cracking the Code: Genotype–Phenotype Correlation Models in Sarcoglycanopathies
Annals of Clinical and Translational Neurology, EarlyView.ABSTRACT Objective Sarcoglycanopathies are among the most severe limb‐girdle muscular dystrophies (LGMD), though milder presentations have been described. These diseases are primarily caused by missense variants, but the limited predictability of their effect on protein maturation, complex formation, and transport has hindered reliable genotype ...
Leonela Luce +72 more
wiley +1 more source