Results 191 to 200 of about 1,336,020 (297)

Co-Producing Patient-Reported Experience Measures With People With Intellectual Disability to Improve Healthcare Quality and Outcomes: The 'Listen to Me' Project Protocol. [PDF]

Health Expect
Harrison R, Newman B, Catlett B, Mimmo L, Wu L, Tokutake M, Phillips K, Hoek MV, Hoek DV, Manias E, Patterson P, Baumgartner DD, Bowen K, Trollor J, Woolfenden S, Strnadova I, Westbrook J, Mitchell R, Dew A, Olivier P, Mumford V, Badgery-Parker T, Ellis L, Rodier S, Szanto T, Small J, Adams C, Templeton M, Evans J, Hackl NA, Churruca K, Hadley AM.   +31 more
europepmc   +1 more source

Project Tooth Fairy: a pan-London initiative from conception to delivery to patient-reported experience measures. [PDF]

Br Dent J, 2023
Patel A, McQuillan J, Johnson J, Sadio H, Dungarwalla M.   +4 more
europepmc   +1 more source

Paramagnetic Rim Lesions Are Associated With Trans‐Synaptic Degeneration of the Visual Pathway in Multiple Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objectives Retrograde trans‐synaptic degeneration (rTSD) from posterior visual pathway lesions in multiple sclerosis (MS) is characterized by hemi‐macular ganglion cell‐inner plexiform layer (GCIPL) thinning and contralateral visual field loss.
Abdul Jaber Tayem, Angel Liu, Sargis Manukyan, Mustafa Subhi, Elaina Luskin, Bryan Quah, Sreekanth Madhusoodhanan Nair, Arzu C. Has Silemek, Gabriela Zabala, Yujie Cui, Laura Locke, Paula Barreras, Marwa Kaisey, Vinicius Calsavara, Daniel S. Reich, Nancy L. Sicotte, Pascal Sati, Omar Al‐Louzi   +17 more
wiley   +1 more source

A Multicentric Study to Validate the Patient-Reported Experience Measures (PREM) Tool for Wound Management and Safety in India. [PDF]

Cureus
Michael JC, Murugesan M, Murthy VBN, Seetharaman S, Sharmil H, Rosy HJ, Manjrekar P, Shanmugam Rajendran S, Gomez T.   +8 more
europepmc   +1 more source

Perception of quality of care using patient reported experience measures (PREMs) in a cohort of adults with HIV: A cross-sectional study. [PDF]

Medicine (Baltimore), 2023
de Lazzari E, Berrocal L, Fernández E, Laguno M, Chivite I, Torres B, González-Cordón A, de la Mora L, Ambrosioni J, Iniciarte A, Blanco JL, Miró JM, Martínez E, Martínez-Rebollar M, Mallolas J.   +14 more
europepmc   +1 more source

Normal‐Appearing White Matter Injury Mediates Chronic Deep Venous Hypoxia and Disease Progression in Multiple Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To explore how cerebral hypoxia and Normal‐Appearing White Matter (NAWM) integrity affect MS lesion burden and clinical course. Methods Seventy‐nine MS patients, including 13 clinically isolated syndrome (CIS) patients and 66 relapsing–remitting multiple sclerosis (RRMS) patients, and 44 healthy controls (HCs) were recruited from ...
Xinli Wang, Huiying Wang, Zhizheng Zhuo, Ai Guo, Ke Lv, Decai Tian, Chao Chai, Yunyun Duan, Shuang Xia   +8 more
wiley   +1 more source

Digital Monitoring of Pre-Exposure Prophylaxis Users Through Electronic Patient-Reported Outcome Measures and Electronic Patient-Reported Experience Measures: Multicenter Prospective Study on Feasibility, Safety, and Predictive Modeling of Digital Engagement. [PDF]

J Med Internet Res
Mercadal-Orfila G, Serrano JI, Mijares T, Vidal L, Curran A, Herrera-Pérez S.   +5 more
europepmc   +1 more source

Onasemnogene Abeparvovec in Type I Spinal Muscular Atrophy: 24‐Month Follow‐Up From the Italian Registry

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Onasemnogene abeparvovec (OA) is an AAV9‐based gene therapy for spinal muscular atrophy type I (SMA I). Real‐world outcomes show increased response variability compared to clinical trials, and follow‐up data beyond 12–18 months are limited.
Marika Pane, Giorgia Coratti, Chiara Cutrì, Antonio Varone, Riccardo Masson, Adele D'Amico, Valeria Sansone, Sonia Messina, Federica Ricci, Chiara Ticci, Claudio Bruno, Caterina Agosto, Francesca Benedetti, Antonella Pini, Sabrina Siliquini, Massimiliano Filosto, Alberto Zambon, Ilaria Bitetti, Maria Rosaria Manna, Claudia Dosi, Riccardo Zanin, Stefano Parravicini, Roberto De Sanctis, Giulia Stanca, Michela Catteruccia, Michele Tosi, Irene Mizzoni, Emilio Albamonte, Valentina Franchino, Maria Sframeli, Ilaria Cavallina, Elena Procopio, Michele Sacchini, Simone Morando, Noemi Brolatti, Federica Trucco, Gaia Scarpini, Elena Briganti, Beatrice Berti, Concetta Palermo, Daniela Leone, Stefano C. Previtali, Eugenio Mercuri, the ITASMAC working group   +43 more
wiley   +1 more source

The association of appointment type in healthcare with patient reported experience measures: a population-based survey study. [PDF]

BMC Health Serv Res
Heponiemi T, Kainiemi E, Virtanen L, Vehko T, Aalto AM.   +4 more
europepmc   +1 more source

A Depolarizing Leak in Sodium Bicarbonate Cotransporter NBCe1 Causes Brain Edema

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objectives SLC4A4 encodes electrogenic sodium bicarbonate cotransporter NBCe1, prominently expressed in kidney and brain. Recessive loss‐of‐function variants in SLC4A4 cause proximal renal tubular acidosis, no brain edema. In the brain, NBCe1 is expressed by astrocytes, where it regulates pH and mediates astrocyte volume changes.
Quinty Bisseling, Mark D. Parker, Sven Kerst, Richard A. Pasternack, Jacob Tondreau, Marjolein Breur, Gemma M. van Rooijen‐van Leeuwen, Davide Tonduti, Ettore Salsano, Alejandra Darling, Joanna A. E. van Wijk, Susanna Törnroth‐Horsefield, Marianna Bugiani, Petra J. W. Pouwels, Quinten Waisfisz, Marjo S. van der Knaap, Rogier Min   +16 more
wiley   +1 more source