BMJ Open, 2020 Introduction Concerns unique to women with breast cancer can include impact of cancer on body image, sexual well-being and changes in breast appearance and sensation.
Andrea L Pusic +5 more
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Integrating Patient-Reported Outcomes
Value in Health, 2004 This paper discusses the relations between different types of patient-reported outcomes that may be collected in clinical studies. Two models are presented that argue that there is a linear relation between the different outcomes. When needs-based quality of life (QoL) is incorporated into the model it is proposed that a two-dimensional relation is ...
McKenna, Stephen P., Doward, Lynda C.
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Beyond the symptoms: Personalizing giant cell arteritis care through multidimensional patient reported outcome measure [PDF]
, 2023 Giant Cell Arteritis (GCA) is the commonest form of systemic vasculitis in people over the age of 50. Published research highlighted the lack of a disease-specific patient reported outcomes (PROMs) for GCA.
El Miedany, Y. +10 more
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Patient-Reported Outcomes (PROs) and Patient-Reported Outcome Measures (PROMs).
Health services insights, 2013 In recent years, there has been an increased focus on placing patients at the center of health care research and evaluating clinical care in order to improve their experience and ensure that research is both robust and of maximum value for the use of medicinal products, therapy, or health services.
Welding, Theresa +1 more
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Translation and cultural adaptation of IPOS (integrated palliative care outcome scale) in Estonia
Journal of Patient-Reported Outcomes, 2021 Background Patient Reported Outcome Measures (PROMs) are questionnaires that could be used in palliative care (PC) to evaluate patient well-being and monitor their care.
Merli Laissaar +5 more
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Improving Outcomes in Patients with CRC: The Role of Patient Reported Outcomes—An ESDO Report [PDF]
Cancers, 2017 Colorectal cancer is one of the most commonly diagnosed cancers worldwide and nearly half of patients will develop metastatic disease at some point during the course of their disease. The goal of anticancer therapy in this context is to extend survival, while trying to maximise the patient’s health-related quality of life.
Van Cutsem, Eric +5 more
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The feasibility and acceptability of using the Mother-Generated Index (MGI) as a Patient Reported Outcome Measure in a randomised controlled trial of maternity care [PDF]
, 2015 Background: Using patient-reported outcome measures (PROMs) to assess Quality of Life (QoL) is well established, but commonly-used PROM item-sets do not necessarily capture what all respondents consider important.
Downe, Soo +11 more
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BMJ Open, 2020 Introduction Most patient-reported outcome measures (PROM) for chronic wounds are specific to a single wound type (eg, pressure ulcer) or part of the body.
Andrea L Pusic +14 more
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Patient reported outcomes in orthopaedics [PDF]
Journal of Orthopaedic Research, 2017 ABSTRACTPatient reported outcome measures (PROMs) are key tools when performing clinical research and PROM data are increasingly used to inform clinical decision‐making, patient‐centered care, health policy and more recently, reimbursement decisions. PROMs must possess particular properties before they are used. Thus purpose of this paper is to give an
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Creating and validating a patient-reported outcome instrument for women with vulvar neoplasia after surgical treatment : a mixed-methods project [PDF]
, 2012 In vulvar neoplasia, substantial improvements in therapy and care have been attained during the last decades.1 Nevertheless even minor surgical interventions cause multiple symptoms and side effects that impact women’s quality of life.2 The term ...
Senn, Beate
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