Results 71 to 80 of about 2,875,336 (355)
Pediatric Blood &Cancer, EarlyView.ABSTRACT We present two pediatric cases of pediatric low‐grade gliomas (PLGG) with BRAF V600E mutations diagnosed and monitored using cerebrospinal fluid (CSF) liquid biopsy analyzed via digital droplet PCR (ddPCR), without tissue biopsy. Both patients were treated with dabrafenib and trametinib and monitored through clinical assessments, magnetic ...
Hannah Sultan +5 more
wiley +1 more source
BMC Research Notes, 2017 Background The purpose of this study is to develop patient-reported (PRO) and observer-reported (ObsRO) outcome measures of ulcerative colitis (UC) signs/symptoms in children aged 5–17 with mild/moderate UC.
Emuella Flood +5 more
doaj +1 more source
Structured review of the patient-reported outcome instruments used in clinical trials in head and neck surgery [PDF]
, 2018 The number of clinical trials that relate to patients with cancer of the head and neck is growing. Patient-reported outcomes, which are rarely the primary outcome, are now an important component, and in this structured review to identify and report the ...
Barraclough, J +4 more
core +2 more sources
Patient-reported outcomes in schizophrenia [PDF]
British Journal of Psychiatry, 2007 BackgroundPatient-reported outcomes are increasingly used to evaluate the care of people with schizophreniaAimsTo review established and emerging patient-reported outcomes in schizophrenia research, assessment tools and key findingsMethodA non-systematic review addressing relevant constructs, the associated scales and key empirical ...
McCabe, R, Saidi, M, Priebe, S
openaire +3 more sources
Pediatric Blood &Cancer, EarlyView.ABSTRACT Ongoing evidence indicates increased risk of sarcopenic obesity among children and young people (CYP) with acute lymphoblastic leukemia (ALL), often beginning early in treatment, persisting into survivorship. This review evaluates current literature on body composition in CYP with ALL during and after treatment.
Lina A. Zahed +5 more
wiley +1 more source
Patient information role in integrated health care
International Journal of Integrated Care, 2019 Background: Integrated patient-centered care is a call for fundamental shift in how health care services are delivered as it is believed to improve patient outcomes and experience. Patient-Reported Outcome Measures (PROMs) and Patient Reported Experience
José M Quintana +5 more
doaj +1 more source
Communicating prognostic uncertainty in potential end-of-life contexts: experiences of family members [PDF]
, 2016 Background: This article reports on the concept of “communicating prognostic uncertainty” which emerged from a mixed methods survey asking family members to rank their satisfaction in seven domains of hospital end-of-life care. Methods: Open-ended
Gallagher, Romayne, Krawczyk, Marian
core +2 more sources
Parent‐to‐Child Information Disclosure in Pediatric Oncology
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Despite professional consensus regarding the importance of open communication with pediatric cancer patients about their disease, actual practice patterns of disclosure are understudied. Extant literature suggests a significant proportion of children are not told about their diagnosis/prognosis, which is purported to negatively ...
Rachel A. Kentor +12 more
wiley +1 more source
A qualitative reflexive thematic analysis of innovation and regulation in hearing health care
BMC MedicineBackground The hearing health sector is an example of a health sector that is experiencing a period of rapid innovation driven by digital technologies.
Isabelle Boisvert +5 more
doaj +1 more source
The Lancet: Digital Health, 2020 Summary: The SPIRIT 2013 statement aims to improve the completeness of clinical trial protocol reporting by providing evidence-based recommendations for the minimum set of items to be addressed.
Samantha Cruz Rivera, PhD +39 more
doaj +1 more source