Family Reported Outcome Measures and Patient Reported Outcome Measures in Multiple Myeloma Patients
Abstract Background : Multiple myeloma (MM) is one of the most common hematological malignancies. The disease is characterized by multiple symptoms resulting from the disease itself, from complications related to therapy, and as a result of the involvement of other organ systems.
Kareem Midlig +4 more
openaire +1 more source
Patient-reported Outcome Measures for Angioedema: A Literature Review [PDF]
Angioedema and hereditary angioedema are characterized by swelling of the subcutaneous and/or submucosal tissue, resulting in localized oedema. The rarity, but also the diverse clinical presentation, of these conditions can be challenging regarding diagnosis, treatment, and management.
Brix, Anna Trier Heiberg; id_orcid 0000-0002-5242-859X +4 more
openaire +5 more sources
Properties of patient-reported outcome measures in individuals following acute whiplash injury [PDF]
Background: The aim of this study was to assess the acceptability, reliability, validity and responsiveness of the Short-Form Health Survey (SF-12) and its preference-based derivative (SF-6D), the EQ-5D and the Neck Disability Index (NDI) in patients ...
Petrou, S +16 more
core +1 more source
Patient-reported outcome and experience measures in geriatric emergency medicine [PDF]
Older people with frailty and health crises have complex physical and social needs. Modern emergency care systems are fast-flowing, using protocols optimised for single-problem presentations.
SP Conroy (7633688) +3 more
core +7 more sources
Patient-reported outcome measures in orthopaedics [PDF]
INTRODUCTION. The Patient Activity Treatment Outcome Scale (PATOS) is a novel patient-reported outcome measure (PROM). This study explored patients’ and orthopaedic surgeons’ experiences with PATOS as part of a PROM battery. It aimed to investigate its influence on patient involvement and healthcare decisions about knee or hip osteoarthritis patients ...
Hansen, Stine Thestrup +3 more
openaire +3 more sources
The employment of Patient-Reported Outcome Measures to communicate the likely benefits of surgery [PDF]
Decision aids as part of shared care are underutilized in surgery. Patient-Reported Outcome Measures (PROMS) are rapidly gaining interest as useful tools for various purposes in all fields of surgery.
Briffa, N., Briffa N
core +1 more source
Measuring patients' views: a bifactor model of distinct patient-reported outcomes in psychosis. [PDF]
BACKGROUND: Patient-reported outcomes (PROs) are widely used for evaluating the care of patients with psychosis. Previous studies have reported a considerable overlap in the information captured by measures designed to assess different outcomes. This may
Burns, T. +16 more
core +1 more source
Measuring Patient-Reported Outcomes Adaptively: Multidimensionality Matters! [PDF]
As there is currently a marked increase in the use of both unidimensional (UCAT) and multidimensional computerized adaptive testing (MCAT) in psychological and health measurement, the main aim of the present study is to assess the incremental value of using MCAT rather than separate UCATs for each dimension. Simulations are based on empirical data that
Paap, Muirne C. S. +5 more
openaire +6 more sources
Background: Persons with high-grade glioma face both neurological and cancer-related symptoms from the tumor itself and its treatment affecting their daily lives. Survival alone is not an adequate outcome, the quality of the survivorship experience needs
Degsell, E. +2 more
core +1 more source
Pre-validation methods for developing a patient reported outcome instrument [PDF]
Background: Measures that reflect patients' assessment of their health are of increasing importance as outcome measures in randomised controlled trials.
Ramsay, Craig R +47 more
core +2 more sources

