Results 51 to 60 of about 1,843,947 (302)

Patient-reported outcome measures for life engagement in mental health: a systematic review

Journal of Patient-Reported Outcomes, 2022
Background Life engagement in the context of mental health is a broad term that describes positive health aspects relating to cognition, vitality, motivation and reward, and the ability to feel pleasure—concepts that are meaningful to patients.
R. McIntyre, Z. Ismail, C. Watling, C. Weiss, S. Meehan, P. Musingarimi, M. Thase   +6 more
semanticscholar   +1 more source

Sickle Cell Disease Is an Inherent Risk for Asthma in a Sibling Comparison Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Sickle cell disease (SCD) and asthma share a complex relationship. Although estimates vary, asthma prevalence in children with SCD is believed to be comparable to or higher than the general population. Determining whether SCD confers an increased risk for asthma remains challenging due to overlapping symptoms and the ...
Suhei C. Zuleta De Bernardis, Okeleji Olayinka, Mariam Z. Quraishi, Lakshmi V. Srivaths, Deborah L. Brown, Neethu M. Menon, Ricardo A. Mosquera, Ashwin P. Patel, James M. Stark, Aravind Yadav   +9 more
wiley   +1 more source

Questions of Copyright

Health and Quality of Life Outcomes, 2012
The Berne Convention and the national laws on intellectual property fully apply to PRO instruments. The identification of and access to an original PRO instrument is often associated with copyright ownership.
Anfray Caroline, Emery Marie-Pierre, Conway Katrin, Acquadro Catherine   +3 more
doaj   +1 more source

Patient-Reported Outcome Measures in Cancer Care

JAMA Network Open
Key Points Question How does the integration of patient-reported outcome measures (PROMs) affect outcomes of cancer care? Findings In this update to a systematic review and meta-analysis of 45 randomized clinical trials examining the use of PROMs for ...
Amaris K. Balitsky, Daniel Rayner, Joanne Britto, A. Lionel, Lydia Ginsberg, Wanjae Cho, Ann Mary Wilfred, Huda Sardar, Nathan Cantor, Hira Mian, M. N. Levine, Gordon H. Guyatt   +11 more
semanticscholar   +1 more source

The facilitators and barriers to implementing patient reported outcome measures in organisations delivering health related services: a systematic review of reviews

Journal of Patient-Reported Outcomes, 2018
BackgroundThere is increasing interest in using Patient Reported Outcome Measures (PROMs) within organisations delivering health related services. However, organisations have had mixed success in implementing PROMs and there is little understanding about
Alexis Foster, L. Croot, J. Brazier, Janet Harris, A. O’Cathain   +4 more
semanticscholar   +1 more source

Pazopanib Combined With Vincristine and Irinotecan in Relapsed Wilms Tumor: Encouraging Outcomes in a Heavily Pretreated Pediatric Cohort

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background While Wilms tumor (WT) typically has a favorable prognosis, relapsed cases—especially those with high‐risk histology—remain therapeutically challenging after intensive frontline therapy. The combination of vincristine and irinotecan has demonstrated activity in pediatric solid tumors, and pazopanib, a multi‐targeted tyrosine kinase ...
Maria Debora De Pasquale, Alessandro Crocoli, Giuseppe Maria Milano, Pierluigi Di Paolo, Francesca Diomedi Camassei, Ida Russo, Annalisa Serra   +6 more
wiley   +1 more source

Adoption of electronic patient-reported outcomes in cancer clinical practice: the point of view of Italian patients

ESMO Real World Data and Digital Oncology
Background: In 2022, the European Society for Medical Oncology (ESMO) guideline recommended the adoption of electronic patient-reported outcomes measures (ePROMs) in routine clinical practice for patients with cancer.
A.A. Valsecchi, V. Battista, S. Terzolo, R. Dionisio, G. Lacidogna, D. Marino, V. Quarà, E. Sperti, V. Tuninetti, F. Vignani, C. Zichi, V.E. Bounous, G. Valabrega, A. Ferrero, N. Biglia, M. Di Maio   +15 more
doaj   +1 more source

Personalizing the Pediatric Hematology/Oncology Fellowship: Adapting Training for the Next Generation

Pediatric Blood &Cancer, EarlyView.
ABSTRACT The pediatric hematology‐oncology fellowship training curriculum has not substantially changed since its inception. The first year of training is clinically focused, and the second and third years are devoted to scholarship. However, this current structure leaves many fellows less competitive in the current job market, resulting in ...
Scott C. Borinstein, Melissa J. Rose, Scott Moerdler, Richard Ho   +3 more
wiley   +1 more source

Usage of glaucoma-specific patient-reported outcome measures (PROMs) in the Singapore context: a qualitative scoping exercise

BMC Ophthalmology, 2018
Background Despite the increasing emphasis on the role of glaucoma-specific patient-reported outcome measures (PROMs) as relevant outcome measures for the impact of glaucoma and its intervention on patients' daily lives, the feasibility of implementing ...
Owen Kim Hee, Zheng-Xian Thng, Hong-Yuan Zhu, Ecosse Luc Lamoureux   +3 more
doaj   +1 more source

Psychosocial Outcomes in Patients With Endocrine Tumor Syndromes: A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction The combination of disease manifestations, the familial burden, and varying penetrance of endocrine tumor syndromes (ETSs) is unique. This review aimed to portray and summarize available data on psychosocial outcomes in patients with ETSs and explore gaps and opportunities for future research and care.
Daniël Zwerus, Floortje Strobbe, Annemarie A. Verrijn Stuart, Hanneke M. van Santen, Gerlof D. Valk, Sasja A. Schepers, Rachel S. van Leeuwaarde   +6 more
wiley   +1 more source