Results 161 to 170 of about 30,870 (207)
Cumulative Social Disadvantage and Disease Activity in Juvenile Idiopathic Arthritis: A Childhood Arthritis and Rheumatology Research Alliance Registry Study
Arthritis Care &Research, Volume 78, Issue 10, Page 1552-1563, October 2026.Objective
Social determinants of health (SDOH) contribute to juvenile idiopathic arthritis (JIA) disparities, but most studies have assessed SDOH independently rather than cumulatively across individual, family, and neighborhood levels. Using a socioecological framework, we investigated the relationship among cumulative social disadvantage ...William Daniel Soulsby, John Boscardin, Andrea Knight, Daniel B. Horton, Karine Toupin‐April, Emily von Scheven, on behalf of the Childhood Arthritis and Rheumatology Research Alliance (CARRA) Registry Investigators and for the CARRA Health Equity Work Group, R. Aamir, K. Abulaban, A. Adams, C. Aguiar Lapsia, H. Ahmed, S. Akoghlanian, A. AlBijadi, E. Allenspach, M. Alpizar, G. Amarilyo, M. Amoruso, S. Angeles‐Han, S. Ardoin, S. Armendariz, N. Aviran Dagan, I. Balboni, S. Balevic, S. Ballinger, S. Baluta, L. Barillas‐Arias, L. Barillas‐Arias, M. Basiaga, K. Baszis, M. Becker, A. Begezda, E. Beil, H. Bell‐Brunson, H. Benham, S. Benseler, L. Bermudez‐Santiago, W. Bernal, T. Bigley, C. Bingham, B. Binstadt, C. Black, B. Blackmon, M. Blakley, J. Bohnsack, A. Boneparth, H. Bradfield, J. Bridges, E. Brooks, M. Brothers, D. Brown, H. Brunner, L. Buckley, Mary Buckley, Meredith Buckley, H. Bukulmez, D. Bullock, A. Cancino, S. Canna, L. Cannon, S. Canny, V. Cartwright, E. Chalom, Johanna Chang, Joyce Chang, M. Chang, A. Chang‐Hoftman, A. Chen, P. Chiraseveenuprapund, K. Ciaglia, M. Cidon, D. Co, E. Cohen, R. Connor, K. Cook, A. Cooper, J. Cooper, K. Corbin, C. Correll, R. Cron, M. Curry, A. Dagci, A. Dalrymple, E. Datyner, T. Davis, D. De Ranieri, J. Dean, C. DeCoste, F. Dedeoglu, M. DeGuzman, N. Delnay, E. L. DeSantis, R. Devine, M. Dhalla, A. Dhanrajani, D. Dissanayake, B. Dizon, J. Drew, K. Driest, Q. Du, E. Duncan, K. Dunnock, D. Durkee, J. Dvergsten, A. Eberhard, K. Ede, B. Edelheit, C. Edens, M. Elder, Y. Elzaki, C. Failing, D. Fair, L. Favier, B. Feldman, J. Fennell, I. Ferguson, P. Ferguson, C. Figueroa, E. Flanagan, L. Fogel, E. Fox, M. Fox, L. Franklin, R. Fuhlbrigge, J. Fuller, T. Futch‐West, S. Gagne, M. Geiszler, D. Gerstbacher, M. Gilbert, A.C. Gironella, D. Glaser, I. Goh, S. Gorry, N. Goswami, B. Gottlieb, T. Graham, S. Grevich, T. Griffin, A. Grim, A. Grom, M. Guevara, L. Guzman, T. Hahn, O. Halyabar, E. Hammelev, T. Hammond, S. Haro, J. Harris, O. Harry, J. Hausmann, A. Hay, K. Hays, K. Hayward, L. Henderson, M. Henrickson, A. Hersh, L. Hiraki, M. Hiskey, P. Hobday, C. Hoffart, M. J. Holland, M. Hollander, S. Hong, D. Horton, J. Hsu, A. Huber, J. Huggins, J. Hui‐Yuen, M. Ibarra, A. Imlay, L. Imundo, C. Inman, A. Jackson, K. James, G. Janow, Y. Jiang, L. Johnson, N. Johnson, J. Jones, D. Kafisheh, K. Kaidar, S. Kasinathan, R. Kaur, E. Kessler, B. Kienzle, S. Kim, Y. Kimura, D. Kingsbury, M. Kitcharoensakkul, J. Klauss, K. Klein, M. Klein‐Gitelman, A. Knight, L. Kovalick, D. Krajewski, C. Kremer, T. LaFlam, B. Lang, S. Lapidus, B. Lapin, A. Lasky, E. Lawson, R. Laxer, A. Lee, Patricia Lee, Pui Lee, T. Lee, E. Leisinger, L. Lentini, M. Lerman, Y. Levinsky, D. Levy, S. Li, S. Lieberman, L. Lim, E. Limenis, C. Lin, N. Ling, G. Lionetti, R. Livny, M. Lo, A. Long, M. Lopez‐Peña, D. Lovell, S. Lvovich, A. Lytch, M. Ma, A. Machado, J. MacMahon, J. Madison, M. Mannion, C. Manos, L. Mansfield, B. Marston, K. Marzan, T. Mason, S. Matossian, L. McAllister, K. McBrearty, D. McCurdy, K. McDaniels, J. McDonald, L. McIntosh, E. Meidan, E. Mellins, Z. Mian, P. Miettunen, M. Miller, D. Milojevic, R. Mitacek, R. Modica, S. Mohan, K. Moore, T. Moore, L. Moorthy, J. Moreno, E. Morgan, A. Moyer, B. Murante, A. Murphy, E. Muscal, O. Mwizerwa, A. Najafi, K. Nanda, L. Nassi, S. Nativ, M. Natter, J. Neely, L. Newhall, A. Nuyen, P. Nigrovic, J. Nocton, B. Nolan, A. Nowakowski, K. Nowicki, R. Oakes, E. Oberle, S. Ogbonnaya‐Whittesley, E. Ogbu, M. Oliver, R. Olveda, K. Onel, A. Orandi, J. Padam, N. Pan, J. Pandya, S. Panupattanapong, A. Pappo Toledano, J. Patel, P. Patel, A. Patrick, S. Patrizi, S. Paul, J. Perfetto, M. Perron, M. Peskin, C. Pinotti, L. Ponder, R. Pooni, S. Prahalad, M. Quinlan‐Waters, J. Rafko, H. Rahimi, S. Ramsey, R. Randell, L. Ray, Ann Reed, Annelle Reed, H. Reid, D. Reiff, I. Reyhan, B. Richard, M. Riebschleger, E. Rife, M. Riskalla, A. Robinson, L. Robinson, L. Rodgers, M. Rodriquez, D. Rogers, T. Ronis, A. Rosado, M. Rosenkranz, N. Rosenwasser, H. Rothermel, D. Rothman, E. Rothschild, K. Rouster ‐ Stevens, T. Rubinstein, N. Ruth, S. Sabbagh, R. Sadun, L. Santiago, V. Saper, A. Sarkissian, L. Scalzi, J. Schahn, K. Schikler, A. Schlefman, B. Schlichting, H. Schmeling, E. Schmitt, G. Schulert, C. Schutt, C. Seper, B. Shaham, R. Sheets, A. Shehab, S. Shenoi, M. Sherman, J. Shirley, M. Shishov, N. Singer, V. Sivaraman, E. Sloan, C. Smith, J. Smith, E. Smitherman, J. Soep, M. B. Son, C. Spencer, L. Spiegel, J. Spitznagle, H. Srinivasalu, H. Stapp, A. Stephens, Y. Sterba Rakovchik, S. Stern, B. Stevens, R. Stevenson, C. Stingl, M. Stoll, E. Stringer, S. Sule, J. Sullivan, R. Sundel, M. Sutter, C. Swaffar, N. Swayne, T. Symington, G. Syverson, A.M. Szymanski, S. Taber, R. Tal, A. Tambralli, A. Taneja, T. Tanner, S. Tarvin, A. Taxter, M. Tesher, T. Thakurdeen, A. Theisen, G. Thieroff, B. Thomas, L. Thomas, N. Thomas, L. Timmerman, T. Ting, C. Todd, D. Toib, K. Torok, H. Tory, M. Toth, E. Treemarcki, S. Tse, T. Tse, C. Tsin, J. Twachtman‐Bassett, M. Twilt, T. Valcarcel, R. Valdovinos, A. Vallee, H. Van Mater, S. Vandenbergen, C. Varghese, N. Vasquez, P. Vega‐Fernandez, J. Verbsky, R. Verstegen, E. von Scheven, S. Vora, L. Wagner‐Weiner, D. Wahezi, S. Wakefield, B. Walker, S. Wallgren, H. Walters, M. Waterfield, J. Weiss, P. Weiss, E. Wershba, V. Westheuser, K. Widrick, C. Williams, S. Wong, S. Wooldridge, L. Woolnough, T. Wright, E. Wu, A. Yalcindag, R. Yeung, K. Yomogida, A. Zeft, Y. J. Zhang, Y. D. Zhao, Z. Zheng, A. Zhu, C. Zic +448 morewiley +1 more sourceThe Lupus Damage Index Revision Program: Results From the Item Generation and Reduction Phases
Arthritis Care &Research, Volume 78, Issue 10, Page 1449-1466, October 2026.Objective
A data‐driven and expert/patient consensus‐based project to develop a revised Systemic Lupus International Collaborating Clinics (SLICC)/American College of Rheumatology (ACR) Damage Index (SDI) is under way supported by SLICC, ACR, and the Lupus Foundation of America. Our objective is to report the item generation and reduction phase results Burak Kundakci, Megan R. W. Barber, Ann E. Clarke, Sindhu R. Johnson, Anselm Mak, Hermine I. Brunner, Murat Inanc, Rosalind Ramsey‐Goldman, Guillermo Ruiz‐Irastorza, Ellen M. Ginzler, John G. Hanly, Alexandra Legge, Cynthia Aranow, Laurent Arnaud, Nathalie Costedoat‐Chalumeau, Dafna D. Gladman, Søren Jacobsen, Michelle Petri, Clovis A. Silva, Évelyne Vinet, Alexandre E. Voskuyl, SDI Revision Literature Review Groups, SDI Revision Delphi Panel, SDI Revision Item Reduction Committee, SDI Revision Clinical Domain Groups, Ian N. Bruce +25 morewiley +1 more sourceThe Impact of Caring for a Child With Juvenile Idiopathic Arthritis on Caregiver Quality of Life
ACR Open Rheumatology, Volume 8, Issue 10, October 2026.Objective
Juvenile idiopathic arthritis (JIA) impacts children and their families, often increasing caregiver burden and diminishing quality of life. This study assessed the care‐related quality of life of parent‐caregivers of children with JIA using the Care‐Related Quality of Life instrument (CarerQol), identified the most affected caregiving ...Deborah A. Marshall, Ana Claudia Fuhrmann, Rodrigo Dal Ben, Gillian R. Currie, Rae S. M. Yeung, Sebastiaan J. Vastert, Nico Wulffraat, Joost F. Swart, Susanne Benseler, on behalf of the UCAN CAN‐DU and UCAN CURE Consortia, Rae Yeung, Shirley Tse, Deborah Levy, Ronald Laxer, Brian Feldman, Jennifer Ji Young Lee, Alisa Rachlis, Susanne Benseler, Nicole Johnson, Muhammed Dhalla, Paivi Miettunen, Heinrike Schmeling, Marinka Twilt, Rebeka Stevenson, Deborah Marshall, Andrea Human, David Cabral, Jaime Guzman, Kim Morishita, Kristin Houghton, Lori Tucker, Tommy Gerschman, Herman Tam, Mercedes Chan, Ross Petty, Roman Jurencak, Nadia Luca, Ciarán Duffy, Tala El Tal, Roberta Berard, Jonathan Park, Erkan Demirkaya, Lily Lim, Adam Huber, Bianca Lang, Elizabeth Stringer, Chelsea DeCoste, Suzanne Ramsey, Dax G. Rumsey, Daniah Basodan, Lillian Lim, Hon Yan Ng, Jeanine McColl, Tara McGrath, Michelle Batthish, Tania Cellucci, Liane Heale, Claire LeBlanc, Gaëlle Chédeville, Rosie Scuccimarri, Sarah Campillo, Piya Lahiry, Paul Dancey, Nickolas Blanchette, Alan Rosenberg, Mehul Jariwala, Tristan Kerr, Kate Neufeld, Clare Hutchinson, Gordon Soon, Dieneke Schonenberg, Mariken Gruppen, Merlijn van den Berg, Giske Biesbroek, Philomine van Pelt, Marleen Verkaaik, Sylvia Kamphuis, Danielle Brinkman, Petra Hissink Muller, Ellen Schatorje, Esther Hoppenreijs, Annet van Royen‐Kerkhof, Sebastiaan Vastert, Berent Prakken, Erika Van Nieuwenhove, Joost Swart, Marc Jansen, Nico Wulffraat, Elizabeth Legger, Wineke Armbrust, Joseph Cafazzo, Maarten IJzerman, Alexander Mosoiu, Amy Xu, Arthur Cheng, Bruno Pereira, Trang Duong, Harper Cheng, Brenleigh Jebb, Gillian R. Currie, Rodrigo Dal Ben, Ravneet Sran, Elodie Boudes, Michelle Kip, Sytze de Rook, Regina de Geus +105 morewiley +1 more sourceWork Productivity Loss and Activity Impairment in Parents of Children With Juvenile Idiopathic Arthritis
ACR Open Rheumatology, Volume 8, Issue 10, October 2026.Objective
To determine the impact of juvenile idiopathic arthritis (JIA) on work productivity loss and daily activities of parents. Methods
The multicenter Canada‐Netherlands Understanding Childhood Arthritis Network (UCAN) CAN‐DU and CURE study captures consecutive clinical and patient‐reported data for patients and parents since 2019.Deborah A. Marshall, Rodrigo Dal Ben, Gillian R. Currie, Rae S. M. Yeung, Sebastiaan J. Vastert, Nico Wulffraat, Joost F. Swart, Susanne Benseler, on behalf of the UCAN CAN‐DU and UCAN CURE Consortia, Rae Yeung, Shirley Tse, Deborah Levy, Ronald Laxer, Brian Feldman, Elizaveta Limenis, Ruud Verstegen, Lynn Spiegel, Rayfel Schneider, Evelyn Rozenblyum, Jennifer Ji Young Lee, Alisa Rachlis, Susanne Benseler, Nicole Johnson, Muhammed Dhalla, Paivi Miettunen, Heinrike Schmeling, Marinka Twilt, Rebeka Stevenson, Deborah Marshall, Andrea Human, David Cabral, Jaime Guzman, Kim Morishita, Kristin Houghton, Lori Tucker, Tommy Gerschman, Herman Tam, Mercedes Chan, Ross Petty, Roman Jurencak, Nadia Luca, Ciarán Duffy, Tala El Tal, Roberta Berard, Jonathan Park, Erkan Demirkaya, Lily Lim, Adam Huber, Bianca Lang, Elizabeth Stringer, Chelsea DeCoste, Suzanne Ramsey, Dax G. Rumsey, Daniah Basodan, Lillian Lim, Hon Yan Ng, Jeanine McColl, Tara McGrath, Michelle Batthish, Tania Cellucci, Liane Heale, Claire LeBlanc, Gaëlle Chédeville, Rosie Scuccimarri, Sarah Campillo, Piya Lahiry, Paul Dancey, Nickolas Blanchette, Alan Rosenberg, Mehul Jariwala, Tristan Kerr, Kate Neufeld, Clare Hutchinson, Gordon Soon, Dieneke Schonenberg, Mariken Gruppen, Merlijn van den Berg, Giske Biesbroek, Philomine van Pelt, Marleen Verkaaik, Sylvia Kamphuis, Danielle Brinkman, Petra Hissink Muller, Ellen Schatorje, Esther Hoppenreijs, Annet van Royen‐Kerkhof, Sebastiaan Vastert, Berent Prakken, Erika Van Nieuwenhove, Joost Swart, Marc Jansen, Nico Wulffraat, Elizabeth Legger, Wineke Armbrust, Joseph Cafazzo, Maarten IJzerman, Alexander Mosoiu, Amy Xu, Arthur Cheng, Bruno Pereira, Trang Duong, Harper Cheng, Brenleigh Jebb, Gillian R. Currie, Rodrigo Dal Ben, Ravneet Sran, Elodie Boudes, Michelle Kip, Sytze de Rook, Regina de Geus +109 morewiley +1 more source
