Results 51 to 60 of about 9,313 (188)

Pediatrik yaşam kalitesi envanteri (PedsQL) sağlık bakım memnuniyeti hematoloji/onkoloji modülü ebeveyn formu geçerlik-güvenirliliği

, 2012
Calisma, cocuklari kanser tanisi almis ebeveynlerde Pediatrik Yasam Kalitesi Envanteri (PedsQL) Saglik Bakim Memnuniyeti Hematoloji/Onkoloji Modulunun gecerlik ve guvenilirliginin belirlenmesi amaciyla gerceklestirilmistir.
KUĞUOĞLU, Sema, KÜRTÜNCÜ TANIR, Meltem   +1 more
core   +1 more source

PedsQL scores for children With ENPP1 Deficiency and infant onset ABCC6 Deficiency vs healthy children.

, 2022
PedsQL scores for children With ENPP1 Deficiency and infant onset ABCC6 Deficiency vs healthy children.
Pedro Huertas (4891903), Christine O’Brien (8602185), Beth Leiro (13162611), Liz Molloy (13162614), Gus Khursigara (13162608), Catherine Nester (13162617)   +5 more
core   +1 more source

Measurement Instruments to Assess Quality of Life in Pediatric Patients With Alopecia Areata: A Systematic Review

Pediatric Dermatology, EarlyView.
ABSTRACT Alopecia areata (AA) is an immune‐mediated hair loss disorder that can affect various demographics, including pediatric patients, and in turn, severely impact self‐esteem, peer interactions, and overall quality of life (QoL). Existing QoL tools, such as the Children's Dermatology Life Quality Index (CDLQI), address pertinent aspects of QoL ...
Shanti Mehta, Dea Metko, Eric McMullen, Cathryn Sibbald   +3 more
wiley   +1 more source

Psychometric properties of PedsQL Generic Core Scales for children with Functional constipation in The Netherlands

, 2014
Objectives:  The aim of the study was to evaluate the psychometric properties of the Dutch translation of the Pediatric Quality of Life Inventory version 4.0 Generic Core Scales (PedsQL) in children with functional constipation (FC). Methods:  The PedsQL
Joseph, A., Dubois, D., Joseph, Alain, Williams, Valerie, Hartman, E.E., McLeod, L., McLeod, Lori, Benninga, Marc A., Pawaskar, Manjiri, Williams, V., Hartman, Esther E., Benninga, M.A., Pawaskar, M., Dubois, Dominique, Hartman, E.E.; id_orcid   +14 more
core   +1 more source

RELIABILITY, VALIDITY AND SENSITIVITY OF RUSSIAN VERSIONS OF PEDSQL GENERIC CORE SCALE AND PEDSQL RHEUMATOLOGY MODULE QUESTIONNAIRES

Вопросы современной педиатрии, 2009
The article presents a results of evaluation of psychometric properties of Russian versions of PedsQL Rheumatology Module (PedsQL RM) and PedsQL Generic Core Scale (PedsQL GCS) questionnaires in estimation of quality of life in children of 5-18 years old with juvenile arthritis.138 children took part in this trial: 57 patients in age 5-7 years old ...
R.V. Denisova, E.I. Alexeeva, V.Yu. Al'bitsky, I.V. Vinyarskaya, S.I. Valieva, T.M. Bzarova, A.O. Lisitsin, E.Yu. Gudkova   +7 more
openaire   +2 more sources

Feasibility and Preliminary Efficacy of Integrative Neuromuscular Training for Childhood Cancer Survivors: A Pilot Study

Pediatric Blood &Cancer, Volume 73, Issue 7, July 2026.
ABSTRACT Background Survivors of childhood acute lymphoblastic leukemia (ALL) often exhibit early deficits in muscle and movement competence, which can compromise long‐term health. Integrative neuromuscular training (INT), a multifaceted approach combining fundamental movement activities with strength exercises, may help address these deficits during ...
Anna Maria Markarian, Robert U. Newton, Dennis R. Taaffe, Nicholas G. Gottardo, Santosh Valvi, Carolyn J. Peddle‐McIntyre, Jodie Cochrane Wilkie, Daniel A. Galvão   +7 more
wiley   +1 more source

Confiability and sensibility of pedsql 4.0™ instrument (pediatric quality of life inventory) in Colombia

Introduction. The aim of this study was to adapt and to assess the reliability of the PedsQL 4.0™ instrument, for measuring pediatric health-related quality of life (HRQoL) in Colombian children. Method.
Eslava Schmalbach, Javier Hernando, Bonilla Vargas, Kely, Romero Vanegas, Sara, Amaya Arias, Ana Carolina   +3 more
core   +1 more source

First Revision of the Guidelines for the Diagnosis and Management of Remethylation Disorders

Journal of Inherited Metabolic Disease, Volume 49, Issue 4, July 2026.
ABSTRACT This guideline summarizes diagnostic and therapeutic approaches based on a systematic literature review and evidence evaluation using the GRADE methodology. Given the limited high‐quality data, expert consensus was additionally obtained through a modified Delphi process.
Giorgia Olivieri, Andrea Bordugo, Birute Burnyte, Alessandro Costetti, Maria‐Luz Couce, Luisa Diogo, Francois Feillet, D. Sean Froese, Benedetta Greco, Jean‐Louis Gueant, Luciana Hannibal, Friederike Hörster, Viktor Kožich, Giancarlo La Marca, Irini Manoli, Fanny Mochel, Lorenzo Orazi, Belén Pérez, Manuel Schiff, Bernd C. Schwahn, Ida Schwartz, Karolina M. Stepien, Jolanta Sykut‐Cegielska, Trine Tangeraas, Rolf H. Zetterström, Carlo Dionisi‐Vici, Martina Huemer   +26 more
wiley   +1 more source

Supporting Children With a Chronic Disease and Their Parents When Admitted to Hospital: A Scoping Review of Psychosocial Supports

Acta Paediatrica, Volume 115, Issue 7, Page 1322-1372, July 2026.
Importance of psychosocial support. ABSTRACT Aim The aim of this scoping review was to identify, examine, and summarize available evidence regarding psychosocial supports provided to children with a chronic disease when admitted to hospital and their parents. Method The JBI methodology for conducting and reporting scoping reviews was followed.
Lyndsay Jerusha MacKay, Nolan Lagrisolal, Una Chang, Matthew Christoffersen, K. Alix Hayden, Kathryn Birnie, Tammie Dewan   +6 more
wiley   +1 more source

The reliability of the health related quality of life questionnaire PedsQL 3.0 cancer module in a sample of Swedish children

, 2020
The Pediatric Quality of Life Inventory (PedsQL) is a modular instrument, designed to integrate generic and disease specific measures, and includes both self- and proxy-reports.
Kljajic, Marizela,, Sand, Peter,, Kleiberg, Anna Nilsson, Lannering, Birgitta,   +3 more
core   +1 more source