Results 61 to 70 of about 7,135 (173)

Consensus‐based follow‐up and treatment registry for GNAO1‐associated disorder

Developmental Medicine &Child Neurology, EarlyView.
Abstract Aim To establish consensus‐based recommendations on relevant domains of functioning and assessment instruments for an GNAO1‐associated disorder follow‐up and treatment registry. Method This was a mixed‐methods study consisting of a systematic literature search, a survey, and a real‐time Delphi procedure to achieve consensus on domains and ...
Larissa R. Heideman, Nicole I. Wolf, Moritz Thiel, Jolanda H. Schieving, Chris De Kruiff, Suzanne van den Bos, Eva Van Heeringen‐Broekhuizen, J. Jasper Deuring, Annemieke I. Buizer, Laura A. Van De Pol   +9 more
wiley   +1 more source

Health related quality of life of Dutch children: psychometric properties of the PedsQL in the Netherlands

BMC Pediatrics, 2009
Background Knowledge about psychometric properties of the Pediatric Quality of Life Inventory (PedsQL) in the Netherlands is limited and Dutch reference data are lacking.
Koopman Hendrik M, Detmar Symone B, Haentjens Marleen M, Engelen Vivian, Grootenhuis Martha A   +4 more
doaj   +1 more source

A cause for concern? How discrepancies between self‐ and parent proxy–reported quality of life are associated to well‐being in children and adolescents attending a headache outpatient clinic: A case‐control study

Headache: The Journal of Head and Face Pain, EarlyView.
Abstract Objectives We examined whether discrepancies between self‐reported and parent proxy–reported health‐related quality of life (HRQoL) were associated with child well‐being in children and adolescents attending a headache clinic compared to controls.
Amalie Akulenok Berring‐Uldum, Maria J. Miranda, Nanette Marinette Monique Debes   +2 more
wiley   +1 more source

Mediating Effects of Parental Family Adaptation on the Quality of Life of Children With Down Syndrome: A Study of Father–Mother Dyads

Journal of Advanced Nursing, EarlyView.
ABSTRACT Aim To investigate the impact of parenting stress in both fathers and mothers on the quality of life (QoL) of children with down syndrome (DS) and the mediating effect of family adaptation. Design This cross‐sectional study was conducted between April 2023 and August 2023.
Seung Hyeon Yang, Chang Gi Park, Eun Kyoung Choi   +2 more
wiley   +1 more source

Reliability and validity of the Sinhala version of the PedsQL™ 3.0 Asthma Module in early adolescents with asthma in a district of Sri Lanka

Journal of the College of Community Physicians, 2011
Objective: To examine the psychometric properties of the Sinhala version of the Pediatric Quality of Life Inventory™ (PedsQL™) 3.0 Asthma Module among adolescents with asthma in Sri Lanka.
MN Danansuriya, LC Rajapaksa, JW Varni
doaj   +1 more source

Core Components of Effective Home Visiting Programmes and Parenting Interventions Delivered by Nurses and Midwives—A Scoping Review

Journal of Advanced Nursing, EarlyView.
ABSTRACT Aim To investigate international evidence on home visits and parenting interventions delivered by nurses and midwives and to identify core components, such as intervention content, programme characteristics, contextual factors and implementation elements shared by effective interventions. Design Scoping Review.
Outi Savolainen, Hanna Rouvinen, Margaret M. Barry   +2 more
wiley   +1 more source

Pediatric Quality of Life Inventory (PedsQL) in Fragile X Syndrome

Journal of Autism and Developmental Disorders, 2019
To date, health related quality of life (QoL) has not been systematically evaluated in youth with fragile X syndrome (FXS), the most common single gene cause of autism and the most common inherited form of developmental disability. We describe QoL data gathered using the Pediatric Quality of Life Inventory (PedsQL) completed online by 364 parents of ...
Sarah E. Fitzpatrick, Lauren M. Schmitt, Ryan Adams, Ernest V. Pedapati, Logan K. Wink, Rebecca C. Shaffer, Jessica Sage, Jayne Dixon Weber, Kelli C. Dominick, Craig A. Erickson   +9 more
openaire   +3 more sources

The Association Between Affect and Adiposity in Childhood and Adolescence: A Systematic Review

Obesity Reviews, EarlyView.
ABSTRACT Background The relationship between adiposity and psychological health is complex, with much of the current research focused on adult or adolescent psychopathology. Affect, a facet of psychological well‐being observable from infancy, appears to influence energy balance behaviors, but relationships with adiposity are not fully understood.
Emma S. Young, Alice R. Kininmonth, Yue Wang, Jason C. G. Halford, Clare Llewellyn, Alison Fildes   +5 more
wiley   +1 more source

Impact of caring for children with medical complexity and high resource use on family quality of life

Journal of Pediatric Rehabilitation Medicine, 2015
PURPOSE: This study examined the impact of caring for children with medical complexity (CMC) and high resource use on family quality of life (QoL). METHODS: Families of CMC enrolled in a complex care program completed the PedsQL Family Impact module ...
Sarah A. Johaningsmeir, Holly Colby, Mary Krauthoefer, Pippa Simpson, Simone C.O. Conceição, John B. Gordon   +5 more
doaj   +1 more source

Validation and Reliability of PedsQL in Healthy Malaysian Pediatric Population

International Journal of Social Science Studies, 2013
This study aimed at examining the validity and reliability of the translated PedsQL instruments in healthy Malaysian pediatric population. Study population consisted of children aged 5-7 and 8 -12 years as well as adolescent aged 13- 18 years recruited from the continently selected primary and secondary schools located in Klang valley area.
Varatharajan, Shanthi, Chen, Won-Sun
openaire   +4 more sources