Results 81 to 90 of about 7,135 (173)

Health related quality of life in Dutch infants, toddlers, and young children

Health and Quality of Life Outcomes, 2017
Background The purpose of this study is to provide Dutch normative data and to assess internal consistency and known-groups validity for the TNO AZL Preschool Children Quality of Life (TAPQOL) and the acute version of the generic Pediatric Quality of ...
S. A. Schepers, H. A. van Oers, H. Maurice-Stam, J. Huisman, C. M. Verhaak, M. A. Grootenhuis, L. Haverman   +6 more
doaj   +1 more source

Mapping EQ-5D Utility Scores from the PedsQL™ Generic Core Scales

PharmacoEconomics, 2014
The Pediatric Quality of Life Inventory™ (PedsQL™) General Core Scales (GCS) were designed to provide a modular approach to measuring health-related quality of life in healthy children, as well as those with acute and chronic health conditions, across the broadest, empirically feasible, age groups (2-18 years). Currently, it is not possible to estimate
Khan, K, Petrou, S, Rivero-Arias, O, Walters, S, Boyle, SE   +4 more
openaire   +3 more sources

Parent‐to‐Child Information Disclosure in Pediatric Oncology

Pediatric Blood &Cancer, Volume 73, Issue 3, March 2026.
ABSTRACT Background Despite professional consensus regarding the importance of open communication with pediatric cancer patients about their disease, actual practice patterns of disclosure are understudied. Extant literature suggests a significant proportion of children are not told about their diagnosis/prognosis, which is purported to negatively ...
Rachel A. Kentor, Flora Hoodin, Michelle Byrd, Kristin A. Kullgren, Leah LaLonde, Lauren Benkoske, Patrick Smith, Dawn Carson, Karen MacDonald, Susumu Inoue, Brenda Kitchen, Kate Gowans, Gregory A. Yanik   +12 more
wiley   +1 more source

Exploring concurrent validity of the CLN2 Clinical Rating Scale: Comparison to PedsQL using cerliponase alfa clinical trial data.

PLoS ONE
BackgroundThe CLN2 Clinical Rating Scale evaluates disease progression in CLN2 disease, an ultra-rare, neurodegenerative disorder with late infantile onset. To validate the Clinical Rating Scale, a comparison with the Pediatric Quality of Life Inventory (
Nicola Specchio, Paul Gissen, Emily de Los Reyes, Andrew Olaye, Charlotte Camp, Tristan Curteis, Annabel Griffiths, Thomas Butt, Jessica Cohen-Pfeffer, Peter Slasor, Zlatko Sisic, Mohit Jain, Angela Schulz   +12 more
doaj   +1 more source

Preliminary reliability and validity of the PedsQL™ Family Impact Module in parents of children with congenital muscular dystrophy

Journal of Rare Diseases
Purpose This study examines the preliminary reliability and validity of the PedsQL™ Family Impact Module (PedsQL™ FIM) in parents of children with congenital muscular dystrophy (CMD).
Yoonjeong Lim, Seungmin Lee, Ickpyo Hong, Areum Han   +3 more
doaj   +1 more source

Metabolic correlates of health-related quality of life among overweight and obese adolescents

BMC Pediatrics, 2018
Background Little is known about the metabolic factors associated with the health-related quality of life (HRQOL) among obese youths. The aim of this study is to assess metabolic correlates of HRQOL in a clinical sample of Taiwanese overweight and obese (
Chih-Ting Lee, Chung-Ying Lin, Carol Strong, Yu-Fang Lin, Yen-Yin Chou, Meng-Che Tsai   +5 more
doaj   +1 more source

Health‐related quality of life in youth with chronic gastrointestinal disease following a biofeedback enhanced cognitive behavioral therapy intervention: A randomized controlled trial

Journal of Pediatric Gastroenterology and Nutrition, Volume 82, Issue 3, Page 672-683, March 2026.
Abstract Objectives Pediatric patients with chronic gastrointestinal (GI) conditions including inflammatory bowel diseases (IBD) and irritable bowel syndrome (IBS) on average endorse lower health related quality of life (HRQOL) than their healthy counterparts.
S. Taylor Younginer, Adrianna Westbrook, Jessica Buzenski, Chelly Dykes, Subra Kugathasan, Clair Talmadge, Bonney Reed   +6 more
wiley   +1 more source

Longitudinal Improvements in Health‐Related Quality of Life Among Children Enrolled in the CANadian Paediatric Weight Management Registry (CANPWR) Over 3 Years

Pediatric Obesity, Volume 21, Issue 3, March 2026.
ABSTRACT Background Health‐related quality of life (HRQoL) can be impaired in children with obesity. Utilising data from the CANadian Paediatric Weight Management Registry (CANPWR), we examined changes in HRQoL up to 3‐year after enrollment in paediatric weight management programs (PWMP) and demographic, socioeconomic, behavioural and health‐related ...
Marina Ybarra, Grace Rebekah, Geoff D. C. Ball, Annick Buchholz, Jill Hamilton, Josephine Ho, Ian Zenlea, Rajibul Mian, Lehana Thabane, Katherine M. Morrison, on behalf of the CANPWR Investigators, Stasia Hadjiyannakis, Anne‐Marie Laberge, CHU Sainte Justine, Laurent Legault, Mark Tremblay   +15 more
wiley   +1 more source

RELIABILITY, VALIDITY AND SENSITIVITY OF RUSSIAN VERSIONS OF PEDSQL GENERIC CORE SCALE AND PEDSQL RHEUMATOLOGY MODULE QUESTIONNAIRES

Вопросы современной педиатрии, 2009
The article presents a results of evaluation of psychometric properties of Russian versions of PedsQL Rheumatology Module (PedsQL RM) and PedsQL Generic Core Scale (PedsQL GCS) questionnaires in estimation of quality of life in children of 5-18 years old with juvenile arthritis.138 children took part in this trial: 57 patients in age 5-7 years old ...
R.V. Denisova, E.I. Alexeeva, V.Yu. Al'bitsky, I.V. Vinyarskaya, S.I. Valieva, T.M. Bzarova, A.O. Lisitsin, E.Yu. Gudkova   +7 more
openaire   +2 more sources

Надежность, валидность и чувствительность русских версий опросников PedsQL Generic Core Scale и PedsQL Rheumatology Module

Вопросы современной педиатрии, 2009
В статье представлены результаты оценки психометрических свойств русских версий опросников PedsQL Rheumatology Module (PedsQL RM) и PedsQL Generic Core Scale (PedsQL GCS) при определении качества жизни детей в возрасте 5-18 лет, страдающих юношеских артритом.
openaire   +1 more source