Results 211 to 220 of about 967,104 (403)

The role of Research‐Practice Ambassadors in strengthening socially just and equitable partnership processes

open access: yesAmerican Journal of Community Psychology, EarlyView.
Abstract Research‐Practice Partnerships seek to close the research‐practice gap through developing collaborative, authentic partnerships between researchers and community members. Our team has leveraged Research‐Practice Ambassadors to support socially just and equitable partnership processes in schools.
Danielle R. Hatchimonji   +8 more
wiley   +1 more source

Equity Access: Authentic Simulations of Caring for People With Disabilities. [PDF]

open access: yesNurse Educ
Evatt M   +4 more
europepmc   +1 more source

Barriers to healthcare for people with disabilities: an umbrella review

open access: green
Sara Rotenberg   +7 more
openalex   +1 more source

The Diagnosis That Arrived Decades Late: Living Without and Then With Myhre Syndrome

open access: yesAmerican Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Myhre syndrome (MIM #139210) is a rare multisystem disorder first described in 1981, characterized by short stature, neurodevelopmental delay, joint contractures, and cardiopulmonary complications. Its molecular basis, recurrent pathogenic variants in SMAD4, was not discovered until 2011. This narrative is based on a review of medical records,
Abdallah F. Elias
wiley   +1 more source

Pandemic-related experiences of older adults and people with disabilities. [PDF]

open access: yesPLoS One
Mortenson WB   +18 more
europepmc   +1 more source

Descriptive Epidemiology From the Myhre Syndrome Foundation Registry: The Value of Self‐Reported Data

open access: yesAmerican Journal of Medical Genetics Part C: Seminars in Medical Genetics, EarlyView.
ABSTRACT Myhre syndrome is an ultrarare genetic disease characterized by short stature, distinct craniofacial features, cardiovascular and respiratory fibrosis and stenosis, neurodevelopmental delays, autism, intellectual disability, and hearing loss. The natural history of Myhre syndrome is still not fully understood due to a small patient population ...
Mary K. Young   +6 more
wiley   +1 more source

ConnectUp: Co-Designing an Online Social Connection Platform with People with Disabilities and Carers. [PDF]

open access: yesBehav Sci (Basel)
Kwasnicka D   +11 more
europepmc   +1 more source

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