Results 211 to 220 of about 967,104 (403)
Abstract Research‐Practice Partnerships seek to close the research‐practice gap through developing collaborative, authentic partnerships between researchers and community members. Our team has leveraged Research‐Practice Ambassadors to support socially just and equitable partnership processes in schools.
Danielle R. Hatchimonji +8 more
wiley +1 more source
Equity Access: Authentic Simulations of Caring for People With Disabilities. [PDF]
Evatt M +4 more
europepmc +1 more source
Barriers to healthcare for people with disabilities: an umbrella review
Sara Rotenberg +7 more
openalex +1 more source
The Diagnosis That Arrived Decades Late: Living Without and Then With Myhre Syndrome
ABSTRACT Myhre syndrome (MIM #139210) is a rare multisystem disorder first described in 1981, characterized by short stature, neurodevelopmental delay, joint contractures, and cardiopulmonary complications. Its molecular basis, recurrent pathogenic variants in SMAD4, was not discovered until 2011. This narrative is based on a review of medical records,
Abdallah F. Elias
wiley +1 more source
Pandemic-related experiences of older adults and people with disabilities. [PDF]
Mortenson WB +18 more
europepmc +1 more source
ABSTRACT Myhre syndrome is an ultrarare genetic disease characterized by short stature, distinct craniofacial features, cardiovascular and respiratory fibrosis and stenosis, neurodevelopmental delays, autism, intellectual disability, and hearing loss. The natural history of Myhre syndrome is still not fully understood due to a small patient population ...
Mary K. Young +6 more
wiley +1 more source
ConnectUp: Co-Designing an Online Social Connection Platform with People with Disabilities and Carers. [PDF]
Kwasnicka D +11 more
europepmc +1 more source

