Results 61 to 70 of about 151,252 (289)

Sirolimus for Extracranial Arteriovenous Malformations: A Scoping Review of the Evidence in Syndromic and Non‐Syndromic Cases

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Arteriovenous malformations (AVMs) are rare, high‐flow, vascular anomalies that can occur either sporadically or as part of a genetic syndrome. AVMs can progress with serious morbidity and even mortality if left unchecked. Sirolimus is an mTOR inhibitor that is effective in low‐flow vascular malformations; however, its role in AVMs is unclear.
Will Swansson   +3 more
wiley   +1 more source

Grey Literature and Persistent Identifiers: GreyNet’s Use Case

open access: yes, 2021
The PID (Persistent Identifier) Project is a follow-up to the AccessGrey Project carried out in 2019 in which an online survey was held among stakeholders in GreyNet’s community of practice. Recipients were asked their opinions about persistent identifiers and grey literature.
Farace, Dominic   +3 more
openaire   +3 more sources

Evaluating the Utility of Paired Tumor and Germline Targeted DNA Sequencing for Pediatric Oncology Patients: A Single Institution Report

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Objective To evaluate the diagnostic yield and utility of universal paired tumor–normal multigene panel sequencing in newly diagnosed pediatric solid and central nervous system (CNS) tumor patients and to compare the detection of germline pathogenic/likely pathogenic variants (PV/LPVs) against established clinical referral criteria for cancer ...
Natalie Waligorski   +9 more
wiley   +1 more source

What Is a Taxon? Identity, Persistence, and Operability in Taxonomy

open access: yesDiversity
Although central reference units in biology, taxa remain difficult to integrate coherently across scientific and digital frameworks because they are repeatedly created, destroyed, or redefined through taxonomic revisions.
Thierry Bourgoin   +3 more
doaj   +1 more source

Seven Dimensions of Portability for Language Documentation and Description

open access: yes, 2002
The process of documenting and describing the world's languages is undergoing radical transformation with the rapid uptake of new digital technologies for capture, storage, annotation and dissemination.
Bird, Steven, Simons, Gary
core   +6 more sources

Pediatric Oncology Nursing Competencies in Latin America and the Caribbean: A Scoping Review to Inform Practice, Education, and Research

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background Nurses are central to cancer care for children and adolescents, yet no comprehensive synthesis has defined essential core competencies for pediatric oncology nursing (PON) practice internationally, particularly in Latin America and the Caribbean (LAC).
Luís Carlos Lopes‐Júnior   +7 more
wiley   +1 more source

ORCID Austria Workshop (Wien, 24. Mai 2018)

open access: yesMitteilungen der Vereinigung Österreichischer Bibliothekarinnen und Bibliothekare, 2018
Am 24.5.2018 fand im Rahmen des HRSM-Projektes „e-infrastructures Austria PLUS“ (AP 6 Persistente Identifikatoren) an der Universität für Bodenkultur Wien (BOKU) der ORCID Austria Workshop statt.
Markus Heindl   +2 more
doaj   +1 more source

Pulmonary Dysfunction Is Associated With Sleep Study Abnormalities in Children With Sickle Cell Disease: A Multicenter Study

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Pulmonary dysfunction and sleep abnormalities are common in children with sickle cell disease (SCD) and are associated with worse clinical outcomes. Whether spirometry abnormalities are associated with polysomnography (PSG) findings remains unclear.
Ammar Saadoon Alishlash   +4 more
wiley   +1 more source

Prevalence and Trajectory of Household Material Hardship Among Children With Advanced Cancer

open access: yesPediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Families of children with advanced cancer living in poverty experience inferior outcomes including poor parent mental health and worse child quality of life. Household material hardship (HMH: food, housing, transportation, and/or utility insecurity) is a modifiable poverty exposure—and potential intervention target—that ...
Sarah Wright   +13 more
wiley   +1 more source

Persistent Identification of Instruments

open access: yesData Science Journal, 2020
Instruments play an essential role in creating research data. Given the importance of instruments and associated metadata to the assessment of data quality and data reuse, globally unique, persistent and resolvable identification of instruments is ...
Markus Stocker   +7 more
doaj   +1 more source

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