Results 61 to 70 of about 17,112,291 (286)

Demonstrating wireless IPv6 access to a Federated Health Record Server [PDF]

open access: yes, 2004
This paper describes the practical implementation of a federated health record server based on a generic and comprehensive architecture, deployed in a live clinical setting and accessed from wireless and IPv6 network test-beds.
A. Austin   +17 more
core   +1 more source

Comprehensive Characterization of 98 Chinese Cases of Genetic Creutzfeldt‐Jakob Disease With T188K Mutation

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective To characterize the demographic, clinical, and laboratory features of the Chinese patients of genetic Creutzfeldt‐Jakob disease with T188K variant (T188K‐gCJD), the most common subtype of genetic prion diseases (gPrDs) in China. Methods In this nationwide retrospective study, data from 98 genetically confirmed T188K‐gCJD patients ...
Chun‐Jie Li   +11 more
wiley   +1 more source

The adolescence of electronic health records: Status and perspectives for large scale implementation

open access: yesActa Informatica Pragensia, 2013
Health informatics started to evolve decades ago with the intention to support healthcare using computers. Since then Electronic health records (EHRs) and personal health records (PHRs) have become available but widespread adoption was limited by lack of
Andreas Drauschke   +6 more
doaj  

Deconstructing the VISA: Academic Accommodations and Self-Disclosure

open access: yesProceedings from the Document Academy, 2017
College students living with disabilities must disclose, manage, share, and communicate their personal health information in order to receive academic accommodations.
Catherine Smith
doaj   +1 more source

Personal Health Records: The People\u27s Choice? [PDF]

open access: yes, 2006
Information technology (IT), especially in the form of an electronic health record (EHR), is touted by many as a key component of meaningful improvement in health care delivery and outcomes. A personal health record (PHR) may be an element of an EHR or a
Sprague, Lisa
core  

Unraveling 4‐Phenylbutyrate's Therapeutic Role in SLC6A1 Disorders: Pharmacochaperoning Over HDAC Inhibition

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Variants in SLC6A1, encoding the GABA transporter 1 (GAT‐1), cause epilepsy, autism spectrum disorder, and developmental delay via loss of GABA uptake, impaired trafficking, and ER retention. We previously found that 4‐Phenylbutyrate (PBA), an FDA‐approved drug, restores GABA uptake and reduces seizures in SLC6A1‐related disorders ...
Melissa B. DeLeeuw   +5 more
wiley   +1 more source

Use of personal child health records in the UK: findings from the millennium cohort study. [PDF]

open access: yes, 2006
OBJECTIVES: The personal child health record (PCHR) is a record of a child's growth, development, and uptake of preventive health services, designed to enhance communication between parents and health professionals.
Bedford, H   +3 more
core  

Peripheral Neutrophil Activation and Extracellular Trap Formation in Amyotrophic Lateral Sclerosis

open access: yesAnnals of Clinical and Translational Neurology, EarlyView.
Markers of neutrophil activation are increased in plasma during ALS, and markers of NET formation associate with ALS survival. ABSTRACT Objectives Peripheral neutrophil levels in amyotrophic lateral sclerosis (ALS) inversely correlate with survival, suggesting a role for neutrophils in disease progression.
Lillia A. Baird   +9 more
wiley   +1 more source

Designing a Minimum Data Set for Major Thalassemia Patients: Towards Electronic Personal Health Record

open access: yesJournal of Community Health Research, 2018
Introduction: In advanced medicine, large amounts of data are produced. However, there is always a gap between their collection and their understanding and interpretation. Thus, the minimum data sets are prepared.
Khadije Moeil Tabaghdehi   +4 more
doaj  

Potential of electronic personal health records [PDF]

open access: yesBMJ, 2007
Novel methods for helping patients to access and manage their personal electronic health data are emerging in the UK and internationally.
Pagliari, C., Detmer, D., Singleton, P.
openaire   +3 more sources

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