Results 71 to 80 of about 287,309 (252)

Onasemnogene Abeparvovec in Patients With SMA: Interim Results of the RESTORE Registry in Japan

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective There are limited real‐world data regarding the safety and effectiveness of onasemnogene abeparvovec (OA; Zolgensma) infusion, a one‐time gene replacement therapy, for Japanese patients with spinal muscular atrophy (SMA). We aimed to improve understanding of the real‐world outcomes for OA in Japan.
Kayoko Saito, Kamal Benguerba, Ken Tsuchida, Kazushige Yazawa, Isao Tsumiyama, Hiromitsu Kayama, Sandra P. Reyna, Farid Khan, Richard S. Finkel   +8 more
wiley   +1 more source

Diabetic Personal Health Record: A Systematic Review Article

Iranian Journal of Public Health, 2016
Background: Diabetes disease is one of the 4 main types of non-communicable diseases. No research has been conducted in order to identify data items for Diabetic Personal Health Record (DPHR), in Iran.
Amirabbas AZIZI, Robab ABOUTORABI, Zahra MAZLOUM-KHORASANI, Benyamin HOSEINI, Mahmood TARA   +4 more
doaj  

Towards an Accessible Personal Health Record [PDF]

, 2012
Patient empowerment frameworks, including personal health records (PHR), actively engage technology empowered citizens in their healthcare. Particularly today, with the current increase of chronic diseases, the high growth rate of the elderly and disabled populations and at the same time the much higher cross-border patient mobility,such systems may ...
Basdekis, I., Sakkalis, V., Stephanidis, C.   +2 more
openaire   +2 more sources

Subclinical Optic Nerve Involvement in Radiologically Isolated Syndrome: Multimodal Detection and Diagnostic Impact

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objectives We aimed to determine the frequency of subclinical optic nerve (ON) lesions using MRI, optical coherence tomography (OCT), and visual evoked potentials (VEP) in radiologically isolated syndrome (RIS), and to assess their diagnostic and prognostic significance.
Christine Lebrun‐Frenay, Cassandre Landes‐Château, Lydiane Mondot, Mikael Cohen, Margherita Popolo, Jérôme de Seze, Bertrand Bourre, Françoise Durand‐Dubief, Olivier Casez, Orhun H. Kantarci, Aksel Siva, Stephanie Baillif, Darin T. Okuda, Letizia Leocani   +13 more
wiley   +1 more source

Personal Health Record, Information Technology in Future Health Care System: Physicians and Nurses View Point

مدیریت اطلاعات سلامت, 2011
Introduction: Personal health record is an individual–oriented system that is planned for people to access their health information that using other means of support such as knowledge databases to help people to have more active role in their health ...
Maryam Ahmadi, Farahnaz Sadoghi, Mahmmod Gohari, Fatemeh Rangraz Jeddi   +3 more
doaj  

Vascular Disease, Non‐Steroidal Anti‐Inflammatory Drugs and Risk of Parkinson's Disease

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objectives A history of vascular disease has been shown to be associated with an increased risk of Parkinson's disease, but this may be due to reverse causation. In addition, non‐steroidal anti‐inflammatory drugs are thought to reduce Parkinson's disease risk, but evidence is inconsistent and confounding by prior vascular disease is possible ...
Clare Wotton, Carol Hermon, Sarah Floud, Gillian Reeves, Isobel Barnes   +4 more
wiley   +1 more source

Claustrum Involvement in New Onset Refractory Status Epilepticus: A Systematic Review

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT The claustrum sign is a distinctive neuroimaging finding characterized by bilateral T2/FLAIR hyperintensity of the claustrum, one of the most interconnected regions of the human brain. It was first described in new‐onset refractory status epilepticus (NORSE) and febrile infection–related epilepsy syndrome (FIRES).
Margherita Burani, Lorenzo Muccioli, Giada Giovannini, Niccolò Orlandi, Francesca Bisulli, Stefano Meletti   +5 more
wiley   +1 more source

Evaluation of a prototype electronic personal health record for patients with idiopathic thrombocytopenic purpura

Patient Preference and Adherence, 2012
Laurent Chiche,1 Alessandra Brescianini,1 Julien Mancini,2 Hervé Servy,3 Jean-Marc Durand11Service de Médecine Interne, Centre de Compétence pour la prise en charge des Cytopénies Auto-immunes, H&ocirc ...
Chiche L, Brescianini A, Mancini J, Servy H, Dur, JM   +5 more
doaj  

Privacy-Preserving Search Over Encrypted Personal Health Record In Multi-Source Cloud

IEEE Access, 2018
Cloud-based Personal Health Record systems (CB-PHR) have great potential in facilitating the management of individual health records. Security and privacy concerns are among the main obstacles for the wide adoption of CB-PHR systems.
Xin Yao, Yaping Lin, Qin Liu, Junwei Zhang   +3 more
doaj   +1 more source

Will the Potential of Personal Health Records Be Realized?

AMA Journal of Ethics, 2013
For patients to adopt personal health records, they must be convinced of the value the technology has for them. Framing that value in a way that actively engages patients as collaborators in their health care management will not only empower the individual but improve patient-clinician relationships overall.
Tara, LePage, O'Neil, Britton
openaire   +2 more sources