Results 41 to 50 of about 5,084,188 (262)

Patient and public involvement and engagement with underserved communities in dementia research: Reporting on a partnership to co‐design a website for postdiagnostic dementia support

Health Expectations
Introduction Despite the advancements in Patient and Public Involvement and Engagement (PPIE), the voices of traditionally underserved groups are still poorly reflected in dementia research.
Claudio Di Lorito, Sarah Griffiths, Marie Poole, Chandrika Kaviraj, Martin Robertson, Neil Cutler, Jane Wilcock   +6 more
doaj   +1 more source

Safety and Effectiveness of a High‐Dose, Tailored Tissue Plasminogen Activator Therapy Protocol: A Joint Pediatric Hematology and Cardiac ICU Quality Improvement Initiative Analysis

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Pediatric thromboembolism is increasingly encountered in critical care. Systemic thrombolysis with tissue plasminogen activator (tPA) facilitates vessel or valve patency, yet pediatric‐specific protocols remain undefined, and safety concerns persist. Objective To evaluate the efficacy and safety of a tailored, prolonged systemic tPA
Eran Shostak, Oded Gilad, Yael Feinstein, Sigal Nakav, Ofer Schiller, Joanne Yacobovich   +5 more
wiley   +1 more source

Advance care planning for patients with advanced multiple long-term conditions: a qualitative thematic analysis of health and social care professionals’ perspectives

BMC Palliative Care
Background Advance care planning helps people plan for and communicate preferences about future care, including when decision-making capacity is lost.
Georgina Simpson, Felicity Dewhurst, Philip Mordue, Charlotte Stenson, Mark Adley, Katie Brittain, Barbara Hanratty   +6 more
doaj   +1 more source

Neuropsychological and Educational Outcomes in Shwachman–Diamond Syndrome—A Report From the North American Shwachman–Diamond Syndrome Registry

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Shwachman–Diamond syndrome (SDS) is a rare autosomal recessive ribosomopathy characterized by bone marrow failure and multisystem involvement, with emerging evidence of associated neurocognitive impairment. Methods We conducted a retrospective study of 240 individuals with biallelic Shwachman–Bodian–Diamond syndrome (SBDS) mutations
Jane Koo, Melissa Gerstle, Leah Cheng, Richard Cooper, Katherine Coyne, Claire Dusa, Naomi E. Joffe, Diana Schwarz, Sarah Steltz, Akiko Shimamura, Kasiani C. Myers, Thea Quinton   +11 more
wiley   +1 more source

Survival After Hematopoietic Stem Cell Transplantation in Diamond–Blackfan Anemia Syndrome: The Role of Iron Overload—A Systematic Review

Pediatric Blood &Cancer, EarlyView.
ABSTRACT We assessed the effect of iron overload (IO) on mortality and complications following hematopoietic stem cell transplantation (HSCT) in patients with Diamond–Blackfan anemia syndrome (DBAS) in a systematic review of individual participant data and cohort data from observational studies.
Geoffrey Z. L. Kuppens, Evangelia Kiakou, Lieke de Zwart, Maurizio Miano, Eduard J. van Beers, Marc Bierings, Marije Bartels   +6 more
wiley   +1 more source

Why were New Zealand levels of life-expectation so high at the dawn of the twentieth century? [PDF]

, 2002
With population ageing becoming an issue of major importance for societies in the developed countries, in both the scientific and policy communities there is widespread interest in the determinants of these structural changes.
Cheung, Jit, Pool, Ian
core  

Population development in Africa with special regards to ageing

, 2019
Background: Population ageing is a global trend of the 21st century, with huge socioeconomic implications. Yet Africa’s population ageing is not fully understood. Africa is often characterized as a homogenous region which is not useful in terms of policy
Mangombe, Kudzaishe, Muza, Collet
core   +1 more source

“We Don't Normally Go Down This Avenue; This Is Normally Taboo”: Using Co‐Design to Develop a Training Intervention for Spiritual Health in Primary Care

Health Expectations
Introduction Spiritual health is an important component of holistic health and social care provision; however, previous research highlights a training gap in this area.
Ishbel Orla Whitehead, Mark Adley, Alexandra Thompson, Elizabeth Westhead, Marina Politis, Philip Mordue, Amy O'Donnell, Barbara Hanratty   +7 more
doaj   +1 more source

Referral Practices and Utilisation of Paediatric Oncology Physiotherapy Services in Ghana: A Cross‐Sectional Study

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Physical rehabilitation is highly recognised in improving the quality of life of cancer survivors through prehabilitation, sequelae management and palliative care, yet its integration into routine care in Ghana has not been characterised, leading to potential gaps in service access.
Dorothy Ekua Adjabu, Philip Junior Nyarko, Precious Madzimbe, Kofi Adesi Kyei, Tawagidu Mohammed, Sandra Banini   +5 more
wiley   +1 more source

Carotid atherosclerosis in people of European, South Asian and African Caribbean ethnicity in the Southall and Brent revisited study (SABRE)

Frontiers in Cardiovascular Medicine, 2023
BackgroundAtherosclerotic cardiovascular disease (ASCVD) risk differs by ethnicity. In comparison with Europeans (EA) South Asian (SA) people in UK experience higher risk of coronary heart disease (CHD) and stroke, while African Caribbean people have a ...
Rayan Anbar, Rayan Anbar, Nish Chaturvedi, Sophie V. Eastwood, Therese Tillin, Alun D. Hughes   +5 more
doaj   +1 more source