Results 41 to 50 of about 176,114 (284)

Early Impact of Childhood Opportunity on Neurocognitive Outcomes in Sickle Cell Disease

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Introduction Neurocognitive impairment is a well‐recognized complication of sickle cell disease (SCD) that begins early in childhood and persists across development. While cerebrovascular injury contributes substantially to risk, neurocognitive deficits are also observed in children without overt or silent cerebral infarctions, suggesting ...
Julia E. LaMotte, Hannah Koch, Olivia A. Coughlin, Jillian R. Bouck, Allie Carter, Seethal A. Jacob   +5 more
wiley   +1 more source

Privacy, security, liberty : informing the design of emergency management information systems [PDF]

, 2013
Faced with life-threatening circumstances, many people would consider a loss of privacy a small price to pay for swift assistance. However, how societies handle, and how individuals can be aware of, and control, personal data are highly sensitive and ...
Buscher, Monika, Wood, Lisa, Perng, Sung-Yueh   +2 more
core  

Multiple operating models for data linkage: A privacy positive

International Journal of Population Data Science, 2017
Objectives The data linkage landscape is rapidly evolving and a variety of operating models are used across dedicated data linkage centres. We have reviewed various operating models and redesigned the technical operating models for our multi ...
Katrina Irvine, Stephanie Hollis
doaj   +1 more source

Ironic Medications: A Narrative‐Based Psycho‐Educational Intervention to Explore Patient–Provider Communication in Adolescents With Haematological Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Adolescents with haematological malignancies face significant emotional and relational challenges, often accompanied by difficulties in communicating their needs within the healthcare context. To address these issues, a narrative‐based psycho‐educational intervention based on the creation and prescription of Ironic Medications was ...
Marta Stoppa, Elena Pagani Bagliacca, Selena Russo, Giulia Rampoldi, Maria Grazia Strepparava, Adriana Cristina Balduzzi, Andrea Biondi, Marco Spinelli   +7 more
wiley   +1 more source

Systematic evaluation of content and quality of English and German pain apps in European app stores

Internet Interventions, 2021
Background and objective: Pain spans a broad spectrum of diseases and types that are highly prevalent and cause substantial disease burden for individuals and society. Up to 40% of people affected by pain receive no or inadequate treatment.
Yannik Terhorst, Eva-Maria Messner, Dana Schultchen, Sarah Paganini, Alexandra Portenhauser, Anna-Sophia Eder, Melanie Bauer, Mike Papenhoff, Harald Baumeister, Lasse Bosse Sander   +9 more
doaj   +1 more source

BMT4me En Español: Multisite Feasibility and Usability Testing of a Spanish‐Language mHealth Adherence Support App for Spanish‐Speaking Caregivers of Children After Hematopoietic Stem Cell Transplantation and Cancer Treatment

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Medication nonadherence during the first 100 days after pediatric hematopoietic stem cell transplantation (HSCT) and during oncology treatment increases risk for complications. BMT4me is a caregiver‐facing mobile health (mHealth) application providing medication reminders, symptom tracking, and note‐taking features to support ...
Micah A. Skeens, Madeline R. Peek, Bianca Franklin, Emre Sezgin, Melissa Beauchemin   +4 more
wiley   +1 more source

Balancing information privacy and operational utility in healthcare: proposing a privacy impact assessment (PIA) framework [PDF]

, 2022
One needs to look only at recent data breaches to be reminded of the severe and far-reaching damage caused by privacy threats. In light of these threats, global healthcare leaders are striving to understand how to protect patient information without the ...
Rolf T Wigand (13188355), Paul Benjamin Lowry (9607505), Rachida F Parks (13188352)   +2 more
core   +1 more source

Blockchain and Privacy Protection in the Case of the European General Data Protection Regulation (GDPR): A Delphi Study

The Journal of The British Blockchain Association, 2018
The present work deals with the inter relationships of blockchain technology and the new European General Data Protection Regulation, that will be intact after May 28th, 2018.
Simon Schwerin
doaj   +2 more sources

Reducing privacy risks of China’s healthcare big data through the policy framework

Frontiers in Public Health
While healthcare big data brings great opportunities and convenience to the healthcare industry, it also inevitably raises the issue of privacy leakage.
Xinyuan Shi
doaj   +1 more source

ASSIST: Refinement of a Benefits Navigator Intervention Among Low‐Income Pediatric Oncology Families

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background/Objectives Children with cancer living in poverty experience worse survival and quality of life. Interventions connecting low‐income families to benefits (e.g., Supplemental Nutrition Assistance Program [SNAP] improve health outcomes; yet nearly 50% of SNAP‐eligible pediatric oncology families are unenrolled.
Puja J. Umaretiya, Selena Murcia Mendez, Jennifer Kellett, Sarah Wright, Marisel Ponton, Robin T. Higashi, Rahela Aziz‐Bose, Colleen A. Kelly, Ayesha Zia, Joanne Wolfe, Sandi L. Pruitt, Kira Bona   +11 more
wiley   +1 more source