Results 131 to 140 of about 151,312 (300)

Prevalence of Systemic Lupus Erythematosus in Australia, 2010–2022: A Population‐Based Study Using Linked National Administrative Health Data

open access: yesArthritis Care &Research, EarlyView.
Objective Systemic lupus erythematosus (SLE) is a heterogenous inflammatory condition with widely varying global prevalence estimates. The frequency of SLE in the general population of Australia has been reported to be notably lower than contemporary estimates in countries such as the United States or United Kingdom, at 19 to 39 per 100,000 as opposed ...
Lucinda Roper   +7 more
wiley   +1 more source

Addressing Online Health Privacy Risks for Older Adults: A Perspective on Ethical Considerations and Recommendations. [PDF]

open access: yesGerontol Geriatr Med, 2022
Friedman AB   +5 more
europepmc   +1 more source

Transparent government, not transparent citizens: a report on privacy and transparency for the Cabinet Office

open access: yes, 2011
1. Privacy is extremely important to transparency. The political legitimacy of a transparency programme will depend crucially on its ability to retain public confidence.
O'Hara, Kieron, Cabinet Office
core  

Formal and Informal Social Care in People With Rheumatic and Musculoskeletal Diseases: A Cross‐Sectional Multicenter Survey

open access: yesArthritis Care &Research, EarlyView.
Objective Rheumatic and musculoskeletal diseases (RMDs) are leading causes of physical disability, necessitating support with activities of daily living. This study describes social care received by patients with RMDs in two disparate regions of England: Salford (urban) and Norfolk (rural).
Mehreen Somro   +6 more
wiley   +1 more source

High Health Care Utilization Preceding Diagnosis With Juvenile Idiopathic Arthritis

open access: yesArthritis Care &Research, EarlyView.
Objective Although early diagnosis improves long‐term outcomes, patients with juvenile idiopathic arthritis (JIA) often experience prolonged, circuitous paths to diagnosis. To inform diagnostic improvement, we sought to characterize health care utilization in the year preceding diagnosis. Methods We identified 10,021 patients with an incident diagnosis
Anna Costello   +5 more
wiley   +1 more source

Mental privacy: navigating risks, rights and regulation

open access: yesEMBO Reports
Rapid advances in neurotechnology are eroding the boundary between mental activity and data, creating urgent risks for mental privacy. This article examines the regulatory landscape and proposes a framework – grounded in user agency, data solidarity, and
Łukasz Szoszkiewicz, Rafael Yuste
doaj   +1 more source

Cumulative Social Disadvantage and Disease Activity in Juvenile Idiopathic Arthritis: A Childhood Arthritis and Rheumatology Research Alliance Registry Study

open access: yesArthritis Care &Research, EarlyView.
Objective Social determinants of health (SDOH) contribute to juvenile idiopathic arthritis (JIA) disparities, but most studies have assessed SDOH independently rather than cumulatively across individual, family, and neighborhood levels. Using a socioecological framework, we investigated the relationship among cumulative social disadvantage ...
William Daniel Soulsby   +448 more
wiley   +1 more source

DPKnob: A visual analysis approach to risk-aware formulation of differential privacy schemes for data query scenarios

open access: yesVisual Informatics
Differential privacy is an essential approach for privacy preservation in data queries. However, users face a significant challenge in selecting an appropriate privacy scheme, as they struggle to balance the utility of query results with the preservation
Shuangcheng Jiao   +7 more
doaj   +1 more source

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