Healthcare Utilization and the Quality of Life of Children and Adolescents with Sickle Cell Disease
Introduction: Youth diagnosed with sickle cell disease (SCD) often utilize the healthcare setting to manage disease-related symptoms, yet the connection between healthcare use and their overall wellbeing has been understudied. This study investigates whether healthcare utilization predicts the health-related quality of life (HRQOL) in youth with SCD ...
openaire +2 more sources
Germline variants in CDKN2A wild‐type melanoma prone families
Among melanoma‐prone families, wild‐type for CDKN2A and CDK4, some have pathogenic variants in genes not usually linked to melanoma. Furthermore, rare XP‐related variants and variants in MC1R are enriched in such families. Germline pathogenic variants in CDKN2A are well established as an underlying cause of familial malignant melanoma. While pathogenic
Gjertrud T. Iversen+5 more
wiley +1 more source
Can I trust my fake data -- A comprehensive quality assessment framework for synthetic tabular data in healthcare [PDF]
Ensuring safe adoption of AI tools in healthcare hinges on access to sufficient data for training, testing and validation. In response to privacy concerns and regulatory requirements, using synthetic data has been suggested. Synthetic data is created by training a generator on real data to produce a dataset with similar statistical properties ...
arxiv +1 more source
Open and free EEG datasets for epilepsy diagnosis [PDF]
The Epilepsies are a common, chronic neurological disorder affecting more than 50 million individuals across the globe. It is characterized by unprovoked, recurring (similar or different type) seizures which are commonly diagnosed through clinical EEGs.
arxiv
Scientific production on quality of life in patients with renal undergoing hemodialysis [PDF]
Objective: To analyze the scientific production on quality of life of patients with renal failure undergoing hemodialysis. Method: This is an integrative literature review conducted on the banks of LILACS and MEDLINE databases.
Landim, Arthur Flavio Linard Paes+5 more
core +3 more sources
Chronic TGF‐β exposure drives epithelial HCC cells from a senescent state to a TGF‐β resistant mesenchymal phenotype. This transition is characterized by the loss of Smad3‐mediated signaling, escape from senescence, enhanced invasiveness and metastatic potential, and upregulation of key resistance modulators such as MARK1 and GRM8, ultimately promoting
Minenur Kalyoncu+11 more
wiley +1 more source
Patient led PROMs must take centre stage in cancer research
Plain English summary Patient involvement in research is about adding value rather than commenting on technical quality. After 15 years as an involved patient in cancer research I started looking around and I found I was asking myself, where is the next ...
Roger Wilson
doaj +1 more source
Heterogeneous Collaborative Learning for Personalized Healthcare Analytics via Messenger Distillation [PDF]
In this paper, we propose a Similarity-Quality-based Messenger Distillation (SQMD) framework for heterogeneous asynchronous on-device healthcare analytics. By introducing a preloaded reference dataset, SQMD enables all participant devices to distill knowledge from peers via messengers (i.e., the soft labels of the reference dataset generated by clients)
arxiv
The use of yoga to manage stress and burnout in healthcare workers: a systematic review [PDF]
The purpose of this systematic review is to analyze and summarize the current knowledge regarding the use of yoga to manage and prevent stress and burnout in healthcare workers.
Cocchiara, Rosario Andrea+7 more
core +1 more source
Health Literacy in the Everyday Lives of Older Adults in Greece, Hungary, and the Netherlands [PDF]
Health literacy (HL) encompasses someone’s knowledge and abilities to access and use health information in order to make appropriate health decisions in life. HL is particularly valuable in later life when health challenges grow.
Csizmadia, Peter+6 more
core +2 more sources