Results 251 to 260 of about 548,187 (314)

Novel use of a hash-based tokenization for sharing sickle cell disease data without sharing protected health information. [PDF]

Blood Adv
Galadanci NA, Hellemann G, Washko S, Abrams CS, Torres K, Kanter J.   +5 more
europepmc   +1 more source

Artificial Intelligence in Systemic Sclerosis: Clinical Applications, Challenges, and Future Directions

Arthritis Care &Research, EarlyView.
Systemic sclerosis (SSc) is a rare autoimmune disease defined by immune dysregulation, vasculopathy, and progressive fibrosis of the skin and internal organs. Despite advances in care, major complications such as interstitial lung disease (ILD) and myocardial involvement remain the leading causes of morbidity and mortality.
Cristiana Sieiro Santos, José Miguel Sequí‐Sabater, Diego Benavent   +2 more
wiley   +1 more source

Discordance Between Patient and Physician Global Assessments in Early Systemic Sclerosis

Arthritis Care &Research, EarlyView.
Objective This study aims to identify factors associated with patient global assessment (PtGA) and physician global assessment (PhGA) and discordance between them in systemic sclerosis (SSc). Methods Data from adults with early SSc (<5 years) from the Collaborative National Quality and Efficacy Registry were included.
Ellen Romich, Alexis Ogdie, Alisa Stephens Shields, Peter A. Merkel, Shervin Assassi, Elana J. Bernstein, Andreea Bujor, Flavia V. Castelino, Lorinda Chung, Luke B. Evnin, Tracy M. Frech, Jessica K. Gordon, Melissa Griffith, Faye N. Hant, Monica L. Harding, Laura K. Hummers, Dinesh Khanna, Kimberly S. Lakin, Dorota J. Lebiedz‐Odrobina, Yiming Luo, Ashima Makol, Maureen D. Mayes, Zsuzsanna H. McMahan, Jerry Molitor, Duncan F. Moore, Julie Paik, Carrie Richardson, Brian Skaug, Ami A. Shah, Ankoor Shah, Virginia Steen, John M. VanBuren, Elizabeth R. Volkmann, Carleigh Zahn, Nora Sandorfi, for the CONQUER Investigators   +35 more
wiley   +1 more source

Building MASLD registries in the MENA region: From fragmented care to a learning health system. [PDF]

Saudi J Gastroenterol
El-Kassas M, AlNaamani KM, Sanai FM.
europepmc   +1 more source

Neighborhood Socioeconomic Status and Short‐Term Functional Outcomes in Systemic Lupus Erythematosus

Arthritis Care &Research, EarlyView.
Objective Individuals with systemic lupus erythematosus (SLE) can accumulate functional status (FS) impairment. We evaluated the association between neighborhood socioeconomic disadvantage, as measured by the Area Deprivation Index (ADI), and FS in a national SLE sample.
Baljeet Rai, Jessica Fitzpatrick, Jing Li, Eric Roberts, Patricia Katz, Laura Plantinga, Gabriela Schmajuk, Jinoos Yazdany   +7 more
wiley   +1 more source

Enhancing research capacity among local actors providing surgical care in low-resource conflict settings. [PDF]

Trauma Surg Acute Care Open
Ratnayake A, Wild HB.
europepmc   +1 more source

Characteristics of intensive care unit registries - findings from the Global Registry ICU Datasets (GRID) survey. [PDF]

Crit Care Sci
Pisani L, Di Lecce P, Sendagire C, Pari V, Olivieri C, Uddin RAME, Aryal D, Athapattu P, Bagshaw S, Burghi G, Buanes EA, Christensen S, Dwyer R, Fernández AL, Finazzi S, Guidet B, Harrison D, Hanciles E, Hashmi M, Hashimoto S, Ichihara N, Lone NI, Arias López MDP, Minh YL, Perren A, Phommasone K, Pilcher D, Reinikainen M, Waweru-Siika W, Siaw-Frimpong M, Sigurdsson MI, Shamal M, Sultan M, Palo JEM, Thomson D, Vijayaraghavan BKT, Beane A, Haniffa R, Dongelmans DA, Lipcsey M, Salluh JIF.   +40 more
europepmc   +1 more source

Assessing the value for money of a registry: an exploratory analysis of the Dutch Arthroplasty Register. [PDF]

Acta Orthop
Van Veghel MHW, Hannink G, Schreurs BW, Grutters JPC.   +3 more
europepmc   +1 more source