Results 101 to 110 of about 187,932 (306)

Articles of Association of Research Data Alliance Foundation

open access: yes, 2014
A legal document describing the structure of the RDA Foundation under british law.
openaire   +1 more source

Formal and Informal Social Care in People With Rheumatic and Musculoskeletal Diseases: A Cross‐Sectional Multicenter Survey

open access: yesArthritis Care &Research, EarlyView.
Objective Rheumatic and musculoskeletal diseases (RMDs) are leading causes of physical disability, necessitating support with activities of daily living. This study describes social care received by patients with RMDs in two disparate regions of England: Salford (urban) and Norfolk (rural).
Mehreen Somro   +6 more
wiley   +1 more source

Predstavitev RDA (Research Data Alliance) vozlišča Slovenije

open access: yes, 2019
Predstavitev RDA (Research Data Alliance) vozlišča ...
Irena Vipavc Brvar, Janez Štebe
openaire   +2 more sources

High Health Care Utilization Preceding Diagnosis With Juvenile Idiopathic Arthritis

open access: yesArthritis Care &Research, EarlyView.
Objective Although early diagnosis improves long‐term outcomes, patients with juvenile idiopathic arthritis (JIA) often experience prolonged, circuitous paths to diagnosis. To inform diagnostic improvement, we sought to characterize health care utilization in the year preceding diagnosis. Methods We identified 10,021 patients with an incident diagnosis
Anna Costello   +5 more
wiley   +1 more source

Identifying metadata commonalities across restricted health data sources: A mixed methods study exploring how to improve the discovery of and access to restricted datasets

open access: yesJournal of eScience Librarianship
Background: While open datasets are adopting FAIR principles to improve their discovery and use, restricted data—those only accessible via request or application—have fallen behind.
Ambery Leahey   +7 more
doaj   +2 more sources

Trajectories of Physical Function in Canadian Children With Juvenile Idiopathic Arthritis

open access: yesArthritis Care &Research, EarlyView.
Objective We describe trajectories of physical function in children newly diagnosed with juvenile idiopathic arthritis (JIA) and identify trajectories with persisting functional impairments and associated baseline characteristics. Methods We included patients enrolled in the Canadian Alliance of Pediatric Rheumatology Investigators (CAPRI) Registry ...
Clare Cunningham   +81 more
wiley   +1 more source

Domain Specific Placebo Response in the Modified Friedreich's Ataxia Rating Scale

open access: yesAnnals of Clinical and Translational Neurology
The placebo response in clinical trials in ataxias complicates outcome interpretation and potentially obscures genuine treatment effects. We analyzed placebo group data from past trials in Friedreich Ataxia and observed notable responses in appendicular ...
Christian Rummey   +2 more
doaj   +1 more source

Thoughts on the Research Data Alliance 6th Plenary

open access: yes, 2015
The Research Data Alliance 6th Plenary last week discussed numerous topics very relevant to DataCite. Below is a short subjective list of topics I found interesting. If you attended RDA, feel free to add your thoughts in the comments. And if you didn't attend, you can still provide feedback.
openaire   +1 more source

Cumulative Social Disadvantage and Disease Activity in Juvenile Idiopathic Arthritis: A Childhood Arthritis and Rheumatology Research Alliance Registry Study

open access: yesArthritis Care &Research, EarlyView.
Objective Social determinants of health (SDOH) contribute to juvenile idiopathic arthritis (JIA) disparities, but most studies have assessed SDOH independently rather than cumulatively across individual, family, and neighborhood levels. Using a socioecological framework, we investigated the relationship among cumulative social disadvantage ...
William Daniel Soulsby   +448 more
wiley   +1 more source

Utilizing Dual-Stream Encoding and Transformer for Boundary-Aware Agricultural Parcel Extraction in Remote Sensing Images

open access: yesRemote Sensing
The accurate extraction of agricultural parcels from remote sensing images is crucial for advanced agricultural management and monitoring systems. Existing methods primarily emphasize regional accuracy over boundary quality, often resulting in fragmented
Weiming Xu   +6 more
doaj   +1 more source

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