Results 81 to 90 of about 64,613,075 (301)

Identifying metadata commonalities across restricted health data sources: A mixed methods study exploring how to improve the discovery of and access to restricted datasets

Journal of eScience Librarianship
Background: While open datasets are adopting FAIR principles to improve their discovery and use, restricted data—those only accessible via request or application—have fallen behind.
Ambery Leahey, Grant Gibson, Julie Shi, Kelly Stathis, Kevin B. Read, Lynn Peterson, Sarah Rutley, Victoria Smith   +7 more
doaj   +2 more sources

Articles of Association of Research Data Alliance Foundation

, 2014
A legal document describing the structure of the RDA Foundation under british law.
openaire   +1 more source

Community seed banks and the Alliance

An overview by numbers of the community seed banks established and supported by the Alliance Metodology:Data were collected from records and interviews with knowledgeable ...
Vernooy, Ronnie
core   +1 more source

HRCI’s 2022 position paper – using data for better health research [PDF]

, 2022
Our 2022 Position Paper is all about data and its importance to health research. The themes contained within are a priority for our member charities and have also been guided by the outcomes of the Irish Health Research Forum events, which HRCI runs. The
Health Research Charities Ireland, /
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Cracking the Code: Which Ocular Symptoms Predict Dry Eye Signs? Insights From a Large International Sicca Registry

Arthritis Care &Research, EarlyView.
Objective The study aimed to identify symptom‐based predictors of dry eye disease (DED) signs in the Sjögren's International Collaborative Clinical Alliance (SICCA) cohort. Methods We performed a retrospective analysis examining 16 ocular symptoms (most graded 0–4) and artificial tear (AT) use (graded 0–3) as predictors of DED signs (abnormal ocular ...
Pragnya R. Donthineni, Chloe Shields, Rohit Muralidhar, Shreya Bhatt, Alan Baer, Robert Fox, Sara S. McCoy, Anat Galor   +7 more
wiley   +1 more source

Disability and family carer policy - challenges and responses [PDF]

, 2017
A working definition of ‘disability’ is crucial to any research, policy development or service provision in the field. There are many definitions of disability (Iezzoni & Freedman, 2008), some directly contradicting others. These differences originate
Care Alliance Ireland
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Physician‐Scientist Pipeline for Pediatric Rheumatology: The Current Landscape and Future Perspectives

Arthritis Care &Research, EarlyView.
Over the past 50 years, the science of pediatric rheumatology has grown exponentially due to an expansion in the understanding of complex rheumatic conditions and a surge in novel targeted therapeutics. Physician‐scientists in the field of pediatric rheumatology have played major roles in these advancements that have improved the care of children ...
Ekemini A. Ogbu, Linda T. Hiraki, Mara L. Becker   +2 more
wiley   +1 more source

Domain Specific Placebo Response in the Modified Friedreich's Ataxia Rating Scale

Annals of Clinical and Translational Neurology
The placebo response in clinical trials in ataxias complicates outcome interpretation and potentially obscures genuine treatment effects. We analyzed placebo group data from past trials in Friedreich Ataxia and observed notable responses in appendicular ...
Christian Rummey, Jennifer M. Farmer, David R. Lynch   +2 more
doaj   +1 more source

Discordance Between Systemic Lupus Erythematosus Disease Activity Index Domain Weights and Their Association With Organ Damage Accrual

Arthritis Care &Research, EarlyView.
Objective Studies of damage accrual in patients with systemic lupus erythematosus (SLE) show associations with disease activity measured by the SLE Disease Activity Index 2000 (SLEDAI‐2K), but these associations are imperfect. SLEDAI scores are powerfully influenced by weightings (1–8) assigned to each domain.
Kevin Zhang, Eric F. Morand, Sarah E. Boyd, François Petitjean, Alberta Hoi, Rachel Koelmeyer, Iolanda Miceli, Julie A. Monk, Hieu T. Nim   +8 more
wiley   +1 more source

Utilizing Dual-Stream Encoding and Transformer for Boundary-Aware Agricultural Parcel Extraction in Remote Sensing Images

Remote Sensing
The accurate extraction of agricultural parcels from remote sensing images is crucial for advanced agricultural management and monitoring systems. Existing methods primarily emphasize regional accuracy over boundary quality, often resulting in fragmented
Weiming Xu, Juan Wang, Chengjun Wang, Ziwei Li, Jianchang Zhang, Hua Su, Sheng Wu   +6 more
doaj   +1 more source