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UK Health Data Research Alliance Data Officers Group Meeting Report-June 2025

The June 2025 Data Officers Group meeting highlighted updates on the HDR UK Driver's Programme Data Design Authority's revision of the 2021 white paper. Presentations covered the EU-supported QUANTUM project’s data quality label and maturity model, the University of Nottingham’s OMOP mapping toolset “CARROT,” and data curation support from the BHF Data
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An overview of real‐world data sources for oncology and considerations for research

Ca-A Cancer Journal for Clinicians, 2022
Lynne Penberthy   +2 more
exaly  

UK Health Data Research Alliance Data Officers' Group Meeting Report- May 2024

This data officer group meeting brought together data leads from Alliance memeber organisation to discuss opeEHR: why it matters for health and care data, its potential for clinically led app development and its technical frame work. The presentation also highlighted updates from the Health Data Research(HDR) UK Research Drivers programme Data Design ...
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Seizing Opportunities: The Role of RMAs in the Research Data Alliance (RDA)

Research Data Alliance (RDA) is a community-driven initiative to build technical and social infrastructures that enable data sharing and reuse. RDA has over 14,500 members from 153 countries who come together in 104 working groups, interest groups and communities of practice to engage in peer-to-peer exchange and to produce community-based ...
Papadopoulou, Athina, Lehtsalu, Liise
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Introducing the Research Data Alliance (RDA): Leveraging global data communities in regional initiatives

This talk was presented in Bern, Switzerland at the Swiss Research Data Support Network (SRDSN) Fall Meeting 2024 on 7 November 2024. It was presented by Wolmar Nyberg Åkerström at National Bioinformatics Infrastructure Sweden (NBIS) / ELIXIR Sweden. Description of the talk The presentation provided an overview of what the Research Data Alliance (RDA)
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Innovations in research and clinical care using patient‐generated health data

Ca-A Cancer Journal for Clinicians, 2020
H S L Jim   +2 more
exaly  

Translating energy balance research from the bench to the clinic to the community: Parallel animal‐human studies in cancer

Ca-A Cancer Journal for Clinicians, 2023
Miriam B. Garcia   +2 more
exaly  

Blueprint for cancer research: Critical gaps and opportunities

Ca-A Cancer Journal for Clinicians, 2021
exaly  

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