Results 61 to 70 of about 1,618,682 (263)

Forging Resilience and Building Capacity: Professional Development in Early-Career Research Data Services 

Journal of eScience Librarianship
As research and information landscapes evolve, shaped through the intentional incorporation of data services and emerging technologies like artificial intelligence (AI), academic libraries are being asked to expand service capacities, develop new ...
Samantha Harmon
doaj   +2 more sources

Misperception of Body Weight After Childhood Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Misperception of body weight can negatively impact the weight management efforts of childhood cancer survivors (CCSs). Both being overweight or underweight are associated with chronic health conditions commonly observed in CCS; therefore, accurate weight perception is critical for reducing long‐term health risks.
Fabiën N. Belle, Tomáš Sláma, Eva Haegler‐Laube, Reto D. Kurmann, Gabriela M. Kuster, Christoph Saner, Eva Scheler, Yara Shoman, Christina Schindera   +8 more
wiley   +1 more source

An Exploratory Sequential Mixed Methods Approach to Understanding Researchers’ Data Management Practices at UVM: Findings from the Quantitative Phase

Journal of eScience Librarianship, 2017
This is the second in a series of articles reporting on a study of researcher data management practices and data services at the University of Vermont.
Elizabeth A. Berman
doaj   +1 more source

Tracking Health Related Quality of Life From Diagnosis to Follow‐Up Among Australian Children With Acute Lymphoblastic Leukaemia

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Background Acute lymphoblastic leukaemia (ALL) is one of the most treatable forms of paediatric cancer; however, there is a substantial burden of treatment‐related toxicities (TRTs). In addition, the long‐term changes in children's health‐related quality of life (HRQoL) due to toxic treatments are not well understood.
Clare Ghows, Clarissa E. Schilstra, Karen McCleary, Nancy E. Briggs, Rishi S. Kotecha, Richard De Abreu Lourenco, Shanti Ramachandran, Ruelleyn Cockcroft, Rachel Conyers, Siobhan Cross, Luciano Dalla‐Pozza, Peter Downie, Tamas Revesz, Michael Osborn, Frank Alvaro, Claire E. Wakefield, Glenn M. Marshall, Toby Trahair, Marion K. Mateos, Joanna E. Fardell   +19 more
wiley   +1 more source

Advancements in Pan-Canadian Data Access and Analysis Facilitation: Insights from Collaborative Health Research supported in Alberta, British Columbia, and Ontario

International Journal of Population Data Science
Objective To highlight progress in facilitating and supporting pan-Canadian data analysis research that is supported by a central coordinating center. This process will be illustrated with the use of a recently completed project that has been supported ...
Stefana Jovanovska, Joanna Ou, Erik Youngson, Tim Choi, Carmen La, Erind Dvorani, Refik Saskin, Michael Paterson, Victoria Kirsh, Philip Awadalla, Jennifer Brooks, Sheraz Cheema, Nouar Elkhair, Jennifer Vena, Shandra Harman, Kelly McDonald, Parveen Bhatti, Dina Skvirsky   +17 more
doaj   +1 more source

Clinical, Histopathological, and Molecular Characterization of Pediatric MN1::ZNF341‐Associated Cancer

Pediatric Blood &Cancer, EarlyView.
ABSTRACT A lethal round‐cell malignancy with an MN1::ZNF341 fusion has recently been reported in three infants. Here, we describe four further tumors, three in newborns (including monozygotic twins), and one in an adolescent. Detailed clinical, radiological, and histopathological data differentiate these tumors from their main mimics, neuroblastoma and
Thomas R. W. Oliver, Dyanne Rampling, Barbara Walkowiak, Nathaniel D. Anderson, Manas Dave, Henry Lee‐Six, Sadie Baskind, Pooja Balasubramanian, Glenn Anderson, Conor Parks, Toochi Ogbonnah, Emilia R. Robertson, Simon Hannam, Rohan Verma, John C. Achermann, Liina Palm, Neil Sebire, Thomas Jacques, Tom Watson, Carryl Dryden, Karin Straathof, Mette Jorgensen, Olga Slater, Sam Behjati, Sarita Depani, J. Ciaran Hutchinson   +25 more
wiley   +1 more source

Evolving the 3-2-1 backup rule for more resilient data

Journal of eScience Librarianship
Background: Many resources and professionals reference the 3-2-1 backup rule as an effective strategy to prevent active research data loss. However, the changes in storage technology and the pace of research data growth have outgrown the 3-2-1 rule ...
Deb McCaffrey, Erin D. Foster, Lev Gorestein, Tobin Magle, Venice Bayrd   +4 more
doaj   +2 more sources

Bridging the Gap in Neuroblastoma Care: Consensus‐Based Statements With Recommendations for Improved Patient and Caregiver Experiences

Pediatric Blood &Cancer, EarlyView.
ABSTRACT Neuroblastoma's complex, heterogeneous biology poses significant diagnostic and therapeutic challenges, often requiring caregivers to absorb complex information and participate in time‐sensitive decisions. However, caregivers often feel unprepared to evaluate options.
Vickie Buenger, Joseph Bauer, Jennifer Diamond, Maggie Fader, Shae Hansen, Jacqueline M. Kraveka, Johanna Schoen, Amber Shearer, Dena Sherwood   +8 more
wiley   +1 more source

Send It Away, or Put It On Display? How librarians and research computing staff can collaborate across language barriers

Journal of eScience Librarianship
The data services landscape continues to change rapidly. From shifting cloud file storage platform quotas, to rising storage costs, to increasing focus on multi-disciplinary projects, rapid changes warrant an evolving collaborative approach toward data ...
Deb McCaffrey, Erin D. Foster, Lev Gorestein, Tobin Magle, Venice Bayrd   +4 more
doaj   +2 more sources

Bringing All the Stakeholders to the Table: A Collaborative Approach to Data Sharing

Journal of eScience Librarianship, 2022
Objective: This paper examines a unique data set disclosure process at a medium sized, land grant, research university and the campus collaboration that led to its creation.
doaj   +2 more sources