Results 81 to 90 of about 1,618,682 (263)
Pediatric Blood &Cancer, EarlyView.ABSTRACT As part of the European Cooperative Study Group for Paediatric Rare Tumours initiative, we developed standard clinical practice guidelines for ovarian sex cord stromal tumors, based on comprehensive national and international cohort analyses, literature review, and a final expert consensus conference.
Dominik T. Schneider +15 more
wiley +1 more source
, 2018 A presentation held at The Unit of Human-Centered Technology (IHTE) research group 27th March 2018 at the Tampere Technical University, Finland.
openaire +2 more sources
Research Data Lifecycle: Role of Data Services
, 2015 This presentation starts with basic information about the Social Science Data Archives. Then it mostly introduces complexity and diversity of research data field. Participants can learn about Open Data project in Slovenia, about research lifecycle and research data lifecycle. And it concludes with roles and responsibilities in research data lifecycle.
openaire +2 more sources
Pediatric Blood &Cancer, EarlyView.ABSTRACT The International Paediatric Oncology Society Global Mapping Programme aims to collect data on global paediatric oncology services by continent, with Africa and Latin America completed. This study reports on the methodology and lessons learned for Oceania, a unique continent with resource disparity across countries, multiple small island ...
Trisha Soosay Raj +16 more
wiley +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Although significant progress has been made in childhood leukemia survival, healthcare providers, and caregivers often face challenges in explaining this disease to patients. Disease‐targeted storybooks have been proposed as a tool to facilitate the understanding of diagnoses and treatment.
Nutvipha Ummartyotin +6 more
wiley +1 more source
A Newbie at the RDAP Summit, or How I Learned that the RDAP Summit is for Everyone
Journal of eScience Librarianship, 2018 This commentary describes the thoughts and perceptions of a first-time attendee to the Research Data Access and Preservation (RDAP) Summit in March 2018.
Joanna Thielen
doaj +1 more source
Globus research data management service
, 2020 Research data can traverse a multitude of compute and storage devices from their collection, through analysis, dissemination, and archival storage. The scientific data lifecycle often requires acting on data spanning geographical locations and timescales, from nearreal time quality control, to human-oriented curation, through to long-term cataloguing ...
Foster, Ian, Chard, Kyle, Chard, Ryan
openaire +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Animal‐assisted activities (AAAs) with therapy dogs have shown positive effects on patient well‐being and quality of life in various areas of medicine, including pediatric oncology. However, research on this topic is limited. The aim of this study is to present the current status of AAA in pediatric oncology in Germany, Austria, and
Jan‐Marius Wedig +7 more
wiley +1 more source
Journal of eScience Librarianship, 2015 The increasing importance of data management in the sciences has led the Department of Earth & Environmental Sciences at a research intensive university to work closely with the Physical Sciences Librarian and Data Services Librarian on campus to provide
Bonnie L. Fong, Minglu Wang
doaj +1 more source
Pediatric Blood &Cancer, EarlyView.ABSTRACT Background Childhood aplastic anemia (AA) is a rare disease, and both the disease itself and its treatment cause significant morbidity. We aimed to determine the contemporary incidence of childhood AA in Finland, to compare the clinical characteristics of AA against inherited bone marrow failure syndromes (IBMFS) and refractory cytopenia of ...
Lauri‐Matti Kulmala +8 more
wiley +1 more source