Results 141 to 150 of about 744,719 (277)

Predicting Loss of Ambulation in Limb Girdle Muscular Dystrophy R9

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Limb girdle muscular dystrophy type R9 (LGMDR9) results from biallelic variants in FKRP. There is limited data to predict loss of ambulation (LOA) among those with LGMDR9. Methods Participants in an ongoing dystroglycanopathy natural history study (NCT00313677) with FKRP variants who had achieved ambulation and were more than 3 ...
Chandra L. Miller, Lauren N. Coffey, Shelley R. H. Mockler, Katie M. Laubscher, Carrie M. Stephan, M. Bridget Zimmerman, Katherine D. Mathews   +6 more
wiley   +1 more source

INTERNAL SELF-DETERMINATION AND POWER-SHARING AS A MEANS OF ADDRESSING CLAIMS FOR SELF-DETERMINATION

Iustinianus Primus Law Review
Shaped by the experiences of the two World Wars, self-determination emerged as a key  element in the maintenance of international peace and gradually acquired its legal and political  framework within the United Nations system, particularly through its ...
Marija Mircheska
doaj  

Applying an Ethical Lens to the Treatment of People With Multiple Sclerosis

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT The practice of neurology requires an understanding of clinical ethics for decision‐making. In multiple sclerosis (MS) care, there are a wide range of ethical considerations that may arise. These involve shared decision‐making around selection of a disease‐modifying therapy (DMT), risks and benefits of well‐studied medications in comparison to
Methma Udawatta, Farrah J. Mateen
wiley   +1 more source

Detailed statistical analysis plan for a guided self-determination intervention versus an attention control for outpatients with type 2 diabetes in the randomised OVERCOME trial

Trials
Background Autonomy-supporting interventions may be a prerequisite to achieve better long-term management of type 2 diabetes. Evidence suggests that the guided self-determination (GSD) method might improve haemoglobin A1c and diabetes distress in people ...
Anne Sophie Mathiesen, Vibeke Zoffmann, Jane Lindschou, Janus Christian Jakobsen, Christian Gluud, Markus Harboe Olsen, Bodil Rasmussen, Emilie Haarslev Schröder Marqvorsen, Mette Juel Rothmann   +8 more
doaj   +1 more source

The Political Economy of Secession. [PDF]

Secessionist movements present themselves to the global public as analogues of colonial liberation movements: long-established identities are denied rights of self-determination by quasi-imperial authorities.
Collier, Paul, Hoeffler, Anke
core   +1 more source

Clinically Relevant Outcome Measures in Women With Adrenoleukodystrophy

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Adrenoleukodystrophy is a rare inherited peroxisomal disease caused by pathogenic variants in the ABCD1 gene located on the X chromosome. Although the most severe central nervous system and adrenal complications typically affect only men with adrenoleukodystrophy, the majority of women develop myeloneuropathy symptoms in adulthood.
Chenwei Yan, Elizabeth I. Pierpont, Amena S. Fine, Reena V. Kartha   +3 more
wiley   +1 more source

LIFE STRATEGIES OF STUDENTS’ SELF-DETERMINATION DURING TRAINING IN HIGH SCHOOL

Вестник Кемеровского государственного университета, 2013
The paper addresses the concepts of «life strategy», «strategy of self-determination inlife» and related definitions. The problem of typology of people’slife strategies is discussed.
T. N. Martynova
doaj  

Neighborhoods and States: Why Collective Self-determination is Not Always Valuable [PDF]

Collective self-determination is considered to be an important political value. Many liberal political philosophers appeal to it to defend the right of states to exclude would-be newcomers.
Menge, Torsten
core  

Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Spinocerebellar ataxia type 3 (SCA3) is a genetically defined ataxia. The Scale for Assessment and Rating of Ataxia (SARA) is a clinician‐reported outcome that measures ataxia severity at a single time point. In its standard application, SARA fails to capture short‐term fluctuations, limiting its sensitivity in trials.
Marcus Grobe‐Einsler, Vivian Maas, Arian Taheri Amin, Jennifer Faber, Tamara Schaprian, Katharina Hill, Matthis Synofzik, Lisa H. Graf, Heike Jacobi, Manuela Lima, Ana F. Ferreira, Bart P. van de Warrenburg, Ilse H. J. Willemse, Dagmar Timmann, Andreas Thieme, Paola Giunti, Hector Garcia‐Moreno, Magda M. Santana, Jeannette Hübener‐Schmid, Elin H. Davies, Thomas Klockgether   +20 more
wiley   +1 more source

'External' Aspects of Self-Determination Movements in Burma [PDF]

Based on secondary resources and long term anthropological field research, this paper explores some of the 'external' factors involved in the pro-democracy and ethnic struggles for self-determination currently being experienced in Burma.
Sandra Dudley
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