Results 131 to 140 of about 5,603,571 (322)

Clinically Relevant Outcome Measures in Women With Adrenoleukodystrophy

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Adrenoleukodystrophy is a rare inherited peroxisomal disease caused by pathogenic variants in the ABCD1 gene located on the X chromosome. Although the most severe central nervous system and adrenal complications typically affect only men with adrenoleukodystrophy, the majority of women develop myeloneuropathy symptoms in adulthood.
Chenwei Yan, Elizabeth I. Pierpont, Amena S. Fine, Reena V. Kartha   +3 more
wiley   +1 more source

Self-Help Groups within Nursing Homes: The Experiences of Family Caregivers in Northeastern Italy. [PDF]

Behav Sci (Basel), 2023
De Vincenzo C, Marian I, Piol S, Keisari S, Testoni I.   +4 more
europepmc   +1 more source

Remote Assessment of Ataxia Severity in SCA3 Across Multiple Centers and Time Points

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Objective Spinocerebellar ataxia type 3 (SCA3) is a genetically defined ataxia. The Scale for Assessment and Rating of Ataxia (SARA) is a clinician‐reported outcome that measures ataxia severity at a single time point. In its standard application, SARA fails to capture short‐term fluctuations, limiting its sensitivity in trials.
Marcus Grobe‐Einsler, Vivian Maas, Arian Taheri Amin, Jennifer Faber, Tamara Schaprian, Katharina Hill, Matthis Synofzik, Lisa H. Graf, Heike Jacobi, Manuela Lima, Ana F. Ferreira, Bart P. van de Warrenburg, Ilse H. J. Willemse, Dagmar Timmann, Andreas Thieme, Paola Giunti, Hector Garcia‐Moreno, Magda M. Santana, Jeannette Hübener‐Schmid, Elin H. Davies, Thomas Klockgether   +20 more
wiley   +1 more source

A Study on Socio-Economic Profile of Working Women Mem-bers of Self Help Groups of an Urban Slum of Davangere, Kar-nataka

National Journal of Community Medicine, 2016
Background: Self help groups provide a critical outlet for building more sustainable socioeconomic status. They have emerged as support groups in facing all kinds of problems in their domestic environment and makes a significant impact on their socio ...
Ranjitha A, Vidya GS
doaj  

Attitudes of Chinese nurses towards self-help groups in Hong Kong [PDF]

, 2014
Version of ...
Mok, E
core  

Feasibility and Tolerability of Performing Portable MRI for Neurological Disorders in an Outpatient Neurology Clinic: A Prospective Cohort

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background Accessing brain magnetic resonance imaging (MRI) can be challenging, especially for underserved patients, which may lead to disparities in neurological diagnosis. Method This mixed‐methods study enrolled adults with one of four neurological disorders: mild cognitive impairment or dementia of the Alzheimer type, multiple sclerosis ...
Maya L. Mastick, Nomin Enkhtsetseg, Joseph Sadok, Matheus Mochetti, Annabel Sorby Adams, Jennifer Guo, Cristina Trapaga Hacker, Isabella Gomez Hjerthen, Seungwon Lee, Siddharth Satish, Andrew S. Ham, Justin Hill, Denis Balaban, Kevin Kyle, Rebecca L. Gillani, Marcelo Matiello, Aleksandar Videnovic, Eric C. Klawiter, W. Taylor Kimberly, Farrah J. Mateen   +19 more
wiley   +1 more source

Organisations supporting cardiac arrest survivors: An exploratory survey of organisational structures and activities

Resuscitation Plus
Background: Cardiac arrest survivors have diverse needs beyond healthcare, including spirituality, social networks, practical, legal, and economic matters, highlighting the need for community-based support.
Lorenzo Gamberini, Kirstie L. Haywood, Sebastian Schnaubelt, Mazarine Thyssens, Federico Semeraro, Koenraad G. Monsieurs, Sachin Agarwal, Mari Blek-Vehkaluoto, Erga Cerchiari, Johan Israelsson, Mary Newman, Paul Swindell, Jellis Vaes, Philipp Tinguely, Elena G. Bignami, Bernd W. Böttiger, Nino Fijačko, Carolina Malta Hansen, Andrew Lockey, Bibiana Metelmann, Camilla Metelmann, Theresa M. Olasveengen, Giuseppe Ristagno, Hans van Schuppen, Kaushila Thilakasiri   +24 more
doaj   +1 more source

Structure–Function Decoupling of the Sensorimotor and Default Mode Networks in Black Americans With MS

Annals of Clinical and Translational Neurology, EarlyView.
ABSTRACT Background and Objectives Multiple sclerosis (MS) exhibits racially disparate rates of disease progression. Black people with MS (B‐PwMS) experience a more severe disease course than non‐Hispanic White people with MS (NHW‐PwMS). Here we investigated structural and functional connectivity as well as structure–function decoupling in the ...
Emilio Cipriano, Giacomo Boffa, Maria Petracca, Marta Ponzano, Nicole Graziano, Claire Wigley, Claire Riley, Jonathan Howard, Pietro Bontempi, Sylvia Klineova, Fred Lublin, Matilde Inglese   +11 more
wiley   +1 more source

Online Social Support for Patients with Multiple Sclerosis: A Thematic Analysis of Messages Posted to a Virtual Support Community

International Journal of Community Based Nursing and Midwifery, 2016
Background: Currently with the emergence of the Internet, patients have an opportunity to exchange social support online. However, little attention has been devoted to different dimensions of online social support exchanged in virtual support communities
Masoumeh Abbasi Shavazi, Mohammad Ali Morowatisharifabad, Mohammad TaghiAbbasi Shavazi, Masoud Mirzaei, Ali Mellat Ardekani   +4 more
doaj  

Civic and Community Engagement among Poor Rural Women in Bihar: A Pilot Study

Canadian Journal of Nonprofit and Social Economy Research
Civic and community engagement is often crucial for the successful development of rural areas and a catalyst of personal transformation. This article examines changes in civic and community engagement among women in rural Bihar, India.
Kirk Leach, Mirivel Julien, Tusty ten Bensel, Avinash Thombre   +3 more
doaj   +1 more source